Bilateral Internal Tib/Fib and Bilateral Internal Femurs with Dr. Mahboubian.

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Phew, that's intense. Maybe once it's all said and done you'll be happy, but at this moment in time, it's painful and excruciating. These are the kinds of things we tend to forget after some time has passed, so it's good to have it in writing now that it's a real struggle that should be avoided if at all possible.

Sorry to hear about the troubles you're having with your business. When it rains, it pours... But it will eventually stop.

Ibuprofen seems to be the serial offender these last few updates in the diaries. Were you not warned against taking them? It's such a common pain reliever that you'd think patients would be dissuaded from using it by now. I think most Americans would reach for it when in pain, since it's OTC and is for the most part harmless.

Sucks to not have an appetite, but eat anyway. Make it your job to eat, a box you have to check off by end of day. Let your body do the heavy work by feeding it.

And good tip about sleep, no need to stick to the once a night schedule like everyone else. Every minute helps!

Best of luck.

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Phew, that's intense. Maybe once it's all said and done you'll be happy, but at this moment in time, it's painful and excruciating. These are the kinds of things we tend to forget after some time has passed, so it's good to have it in writing now that it's a real struggle that should be avoided if at all possible.

Sorry to hear about the troubles you're having with your business. When it rains, it pours... But it will eventually stop.

Ibuprofen seems to be the serial offender these last few updates in the diaries. Were you not warned against taking them? It's such a common pain reliever that you'd think patients would be dissuaded from using it by now. I think most Americans would reach for it when in pain, since it's OTC and is for the most part harmless.

Sucks to not have an appetite, but eat anyway. Make it your job to eat, a box you have to check off by end of day. Let your body do the heavy work by feeding it.

And good tip about sleep, no need to stick to the once a night schedule like everyone else. Every minute helps!

Best of luck.

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Thanks for your update.. Very nice of you to keep us posted amidst all your problems... I wish you all the best

So te be clear.. you now have 4 bones with a nail inside? And I guess you can/cannot get up from your bed/move alone(crutches, wheelchair)? When do you expect to be walking unaided/without crutches(optimum prognoses)?

So this is what I have to endure in the (hopefully) near future(minimum10cm/tibia/femur)? I hope I'll have your guts/stamina

get well, my friend..

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Thanks for your update.. Very nice of you to keep us posted amidst all your problems... I wish you all the best

So te be clear.. you now have 4 bones with a nail inside? And I guess you can/cannot get up from your bed/move alone(crutches, wheelchair)? When do you expect to be walking unaided/without crutches(optimum prognoses)?

So this is what I have to endure in the (hopefully) near future(minimum10cm/tibia/femur)? I hope I'll have your guts/stamina

get well, my friend..

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Quote from: Android on April 02, 2018, 06:11:24 AMIbuprofen seems to be the serial offender these last few updates in the diaries. Were you not warned against taking them? It's such a common pain reliever that you'd think patients would be dissuaded from using it by now. I think most Americans would reach for it when in pain, since it's OTC and is for the most part harmless.
At the Paley Institute, they recommend Tylenol.  A lot of the others have anti-inflammatories which can apparently impede bone growth.

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Quote from: FormerKidd on April 02, 2018, 11:36:23 PMAt the Paley Institute, they recommend Tylenol.  A lot of the others have anti-inflammatories which can apparently impede bone growth.

Thanks, found the info on this page.

QuoteYou may use Tylenol (acetaminophen) for pain control following surgical intervention. However, you should refrain from using any anti-inflammatory for the first year following surgery as it can slow the growth of your cells. These anti-inflammatory medications include medications such as Advil, Aleve, Ibuprofen, Naproxen, and Celebrex.

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Quote from: Optimistic1 on March 09, 2018, 05:33:02 AMI had my first x-ray yesterday and I thought I saw some early bone consolidation and my fibula bones are not in alignment. I emailed Dr. M some of the images and asked for his opinion. He said everything looks fine and my bone is generating at an ideal rate.

So Dr. M said about the March 7 x-Ray's that bone was generating at an ideal rate.

Then a week later...

Quote from: Optimistic1 on March 14, 2018, 04:39:34 AMI had my second x-ray at Dr. M's office and was informed that my bone growth is not so good. He measured my distraction at 1.5 cm but I measured it at 1.35 cm. He said there's little or no bone growth in my fibula bone.

Can the x-rays show an "ideal rate" then a week later, "growth not so good"? You were taking Ibuprofen all along. What changed?

Or is looking at x-rays not that reliable for determining bone growth? Unicorn888 might suggest the same:

Quote from: Unicorn888 on March 09, 2018, 01:26:41 PM-  Watch your fortnightly XRAY carefully, needs to show growing and bridging CALLUS (no matter how faint), don't rely blindly on your doctor

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OverrideYourGenetics,

Based on my recollection, I didn’t start taking Ibuprofen until after or a couple of days before the first  x-ray was taken. Therefore, there were signs of bone formation. However, when I took the second x-ray, was on Ibuprofen for about 2 weeks. That’s why there was no bone growth during those 2 weeks. My doctor didn’t know I was taking Ibuprofen at that time and I didn’t know it could delay my healing process. The last time I took Ibuprofen was the night before my femur surgery, March 14, 2018). It’s been 3 weeks since I stopped taking it so I’m hoping to see some bone growth tomorrow when I take my x-ray or I have to look into a bone graft procedure which I don’t like. My Dr. was very mad when he found out I took it. I feel so bad and shouldn’t have listened to my primary care doctor. I didn’t want to abuse the Norco so I took it with Ibuprofen to increase its effectiveness and it did.

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Quote from: Android on April 03, 2018, 06:57:36 AMThanks, found the info on this page.

I didn’t know that until after I stopped taking Ibuprofen and started doing research. I’m so worried now. I hope everything will turn out to be okay in the end.

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Honore,

True. 2 nails in the Tibia bones and 2 in the Femurs. Little or no pain in my Tib/Fib region. Also, I r covered much faster after my Tib/Fib surgery. I don’t use crutches in fear of falling. I move around with my wheelchair and practice standing and walking with my walker. I can get in and out of bed pretty easy. I can move around the house, get onto the shower chair, dress myself and some other things on my own. However, there’s a strategy in every move I make. I still can’t get the wheelchair in and out of my car by myself now.

I’m hoping to regain my ability to walk by the end of August. My legs are so weak now. I’m still in a lot of pain from my femur surgery so it kinda discourages me from fully exercising. I think gaining 10 cm will be a challenge because the tightness is double since I’m lengthening both segments at the same time but let’s see.