Quote from: DoingItForMe on September 06, 2015, 04:55:54 PMI will talk about other patients after I am done lengthening. I don't want retaliation for saying negative things that happened to the other patients.
Would Paley really do that, do you get that kind of vibe from him?
I don't know if non-cosmetic LL and cosmetic LL complications can be placed under the same scrutiny. People doing it because they had an accident are bound to have more complications than someone that had his leg tenderly surgically broken.
Out of the cosmetic LL patients, how many are doing well?
And all the best! 
Quote from: Uppland on September 07, 2015, 12:58:14 PMWould Paley really do that, do you get that kind of vibe from him?
Dr. Paley really likes me. I'm like his star patient. He even gave me his personal cell phone number that I can get immediate access/questions from him. I do not want to ruin that type of relationship I have with him. Sorry, but you're going to have to hear about the negative experiences from others.
Here's my honest opinion about him though: He's a very safe doctor. He'll stop you short of your goal if he thinks you might damage yourself permanently. That's why a lot of patients are upset. I'm the only one in my group that's actually heading towards 8 cm without nerve damage. Others have stopped around 7 cm.
Quote from: Penguinn on September 07, 2015, 02:45:13 PMOut of the cosmetic LL patients, how many are doing well?
Depends on your definition of "doing well". Out of the patients that I've talked to, it seems like I'm the luckiest among the group, with no nerve damage, good flexibility, excellent rate of bone consolidation (not too slow/not too fast) and good probability to head to 8 cm. I'd say around 50% of the patients I know have at least one problem in that list. But nobody has a bent nail even after making mistakes. It seems like the nails can handle more than 75 lbs. Nobody is crippled or anything like that. Dr. Paley is very safe. You just might not get to your 8 cm goal, because of how cautious he is. He told me the story of someone disobeying him and continuing his lengthening even after he told him to stop. That patient ended up with a dropped foot. Then there was even a doctor who finished lengthened, went home, and thought that he could weight bear, even though Dr. Paley didn't give him the OK. He was cky, and when he took 4 steps without crutches, he broke his nails at home.
I see makes sense really. It's at least not as bad as it sounded originally (the whole patients and parents crying make it seem horrid) as it's a lot better to be safe then sorry; an aspect I respect greatly of Paley. I'm sort of more interested in the social and daily experiences one might have with the other patients. I do however find it funny that some seem to be stuck-up like you said they were... considering the process they're currently going through. Keep vigilant mate, it seems like you're on the fast track to a great recovery.
That's good to know. I'm surprised so many had complications though. Hopefully you keep the 'star patient' badge intact throughout.
Quote from: AlucardZ on September 07, 2015, 08:15:12 PMI see makes sense really. It's at least not as bad as it sounded originally (the whole patients and parents crying make it seem horrid) as it's a lot better to be safe then sorry; an aspect I respect greatly of Paley. I'm sort of more interested in the social and daily experiences one might have with the other patients. I do however find it funny that some seem to be stuck-up like you said they were... considering the process they're currently going through. Keep vigilant mate, it seems like you're on the fast track to a great recovery.
the crying is because someone might have permanent toe functionality loss and will probably get to 4-5 cm at most.
You make friends with other patients and it becomes like a family. Time passes faster when you have friends to hang out with. Except if you're that stuck up kid who doesn't want to socialize with anyone. Whatever. His loss.
Quote from: DoingItForMe on September 07, 2015, 09:17:14 PMExcept if you're that stuck up kid who doesn't want to socialize with anyone. Whatever. His loss.
That 'snob' really seems to have rustled your jimmies. Go into detail, I wanna know more.
You are probably mistaking snobbishness with shyness. He probably doesn't know how to respond. Might even be scared.
Quote from: patientdad on September 08, 2015, 12:08:29 AMYou are probably mistaking snobbishness with shyness. He probably doesn't know how to respond. Might even be scared.
Perhaps, but this isn't his first LL. He's already above average height, and he's going for more. When I tried to talk to him, he ignored me and even lied to me when I asked if he did his femurs already, too. It was later on that the other patients told me that he doesn't talk to anyone because he's snobbish. They told me that he likes to brag about his accomplishments by keeping a list of them on the back of his phone. He's not worth wasting more of my time talking about. My.point was to only illustrate that you will meet different types of people: self-made millionaires, patients who come from old money and parents are paying for it (mostly these), intelligent people who made it on their own and also have wealthy parents, as well as people with an arrogant attitude.
You must be logged in to post a reply.
