Quote from: SuchLL on November 11, 2021, 05:10:23 PMI’m 157lbs and I only use walker during PT because they kinda force me to use it. They say it’s good for bone generation but I don’t want to live in fear. I also don’t believe walker would make big difference in bone generation because we can only “hop”, not walk. It seems I’m the only person worried about bending nails though. Other patients I talked to were not as nervous…
When I did femurs I think the first 3-4 days were the worst. The second week was better but still bad because I hadn’t recovered from the surgery and at the same time I had to start lengthening which caused more tissue injuries. It’s just me and I don’t know about others though.
Have your nail had any problem so far? I’m worried about bending too because I didn’t get the 75 pound one.
You mentioned that the first 3-4 days are the worst of the whole multiple month process. Was it because of inability to poop? For me, all the pain is manageable so far but I’m very uncomfortable about the inability to poop as I feel that I’m adding toxicity in my body from all the foods I’m eating from the hospital. I usually poop once or even twice a day before the surgery. So no poop for 2 days feels terrible.
Femur Journey with Dr. Paley 11/9/2021
Quote from: TakingAction on November 11, 2021, 05:35:06 PMHave your nail had any problem so far? I’m worried about bending too because I didn’t get the 75 pound one.
You mentioned that the first 3-4 days are the worst of the whole multiple month process. Was it because of inability to poop? For me, all the pain is manageable so far but I’m very uncomfortable about the inability to poop as I feel that I’m adding toxicity in my body from all the foods I’m eating from the hospital. I usually poop once or even twice a day before the surgery. So no poop for 2 days feels terrible.
I’m only at 1.8 cm so far. I’m worried about bend mostly because of PT. They use huge amount of force to stretch my calf. I have to hold the message table tight otherwise my whole body would be moved…. That’s how much force they use on my legs and it always makes me scared.
The first 3-4 days were worst mostly because my legs were super heavy and I couldn’t move them easily. They were also swelling badly. Incisions also felt like burning so I iced my incisions almost 24 hours a day.
Quote from: SuchLL on November 11, 2021, 12:42:15 AMI have diarrhea sometimes but doctor Robbins said xeralto shouldn’t cause diarrhea. I didn’t take xeralto last year because it’s not needed with stryde. With precice 2 we need to take it for about 6 months you are right…
I meant 6 months for both segments. You are being asked to take it for 6 months for just tibias?
Quote from: two on November 11, 2021, 06:44:59 PMI meant 6 months for both segments. You are being asked to take it for 6 months for just tibias?
Yes they told me to take it until full consolidation, which is about 6 months (3 months lengthening + 3 months consolidation)
Day 3: I passed out AGAIN today during the morning PT. But I didn’t pass out during the afternoon PT. My legs are getting better now as they can more up & down and left & right now. Still haven’t taken number 2. I might need to try either coffee or the poop medicine to get it going. The only concern is that it’d be difficult to clean up if I take number 2 on my hospital bed instead of a regular toilet.
Day 4: I had a better sleep (7 hours) last night due to less pain. So I even decided to skip the low-risk Tylenol for the first time this morning after surgery. But I’ll take it right before the PT later today to help me do better. Hopefully I don’t pass out today. I’ll certainly take it slow this time without rushing PT to reduce the risk of passing out. I feel lucky that I don’t have much pain, but also unlucky that I pass out more often than most people. I guess everyone is different but I believe that everyone will eventually all get better.
Yeah, for both my CLL's i found Tramadol easier to stop using than Oxy, and Tramadol was almost as effective as Oxy for me.
Day 4 new update (11:16am): I did it! Just finished a small PT session without passing out! And I’m moving on the wheelchair for the first time! Amazing improvement! This feels like the happiest day of the month because I thought I’d pass out again today. I wanted to thank my physical therapist Justine!
Quote from: TakingAction on November 12, 2021, 04:18:39 PMDay 4 new update (11:16am): I did it! Just finished a small PT session without passing out! And I’m moving on the wheelchair for the first time! Amazing improvement! This feels like the happiest day of the month because I thought I’d pass out again today. I wanted to thank my physical therapist Justine!
Happy to hear you are doing great!!
I'm really happy for your smooth operation, friend. I wish you a smooth recovery!
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