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Posted on Mar 1, 2019, 7:46 pm
#1

Let’s assume i want to gain 5 cm, how long is going to take to start to walk normaly without the device from the day i’m going to have the surgery?

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Posted on Mar 1, 2019, 7:49 pm
#2

I believe that if you are using the frames, you are looking at 9 to 12 months minimum.   If you are using the internal Styrde nail - 5 to  7 months.

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Posted on Mar 1, 2019, 8:02 pm
#3

Quote from: InFullStryde on March 01, 2019, 07:49:29 PMI believe that if you are using the frames, you are looking at 9 to 12 months minimum.   If you are using the internal Styrde nail - 5 to  7 months.


Just to start to walk normaly?

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Posted on Mar 1, 2019, 11:33 pm
#4

If you do external only it will really take a long time. About 8-12 months depending on many factors. But if you use any internal method you can get it done in 4-6 months...

LON or LATN is also an option. Then you are at about 6-8 months...

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Posted on Mar 2, 2019, 2:26 am
#5

Those external devices make for a tough recovery.   I encourage all CLL'ers to go with later technology Stryde internal nails, even if it does cost more money. 

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Posted on Mar 2, 2019, 2:35 am
#6

For 4cm tibia i was walking unaided 3 months after initial surgery and completely normal by 4 months. I did LON on 1 tibia and LATN on 2nd tibia. Both lengthened using external device. I would recommend stryde only on femur but for tibia externals are better in my opinion.

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Posted on Mar 2, 2019, 5:49 am
#7

Quote from: Jim_dabarber on March 02, 2019, 02:35:46 AMFor 4cm tibia i was walking unaided 3 months after initial surgery and completely normal by 4 months. I did LON on 1 tibia and LATN on 2nd tibia. Both lengthened using external device. I would recommend stryde only on femur but for tibia externals are better in my opinion.


That is outstanding Jim!  Everyone is different I suppose.   I would say that if you plan on going through the procedure, reserve about 6-8 months as far as your expectation is concerned.  Having said that, you should be able to return to your life at least, by month 3 or 4, only difference is you MAY need to use crutches. 

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Posted on Mar 2, 2019, 6:08 am
#8

I am at month 5 with externals only and lengthened 5.3cm, not walking unaided but I'm about 1-2 months away, my doctor has said.

Walking reasonably well with a walker. Also I lengthened extremely slow.

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Posted on Mar 2, 2019, 6:16 am
#9

Quote from: jcayabo on March 02, 2019, 06:08:15 AMI am at month 5 with externals only and lengthened 5.3cm, not walking unaided but I'm about 1-2 months away, my doctor has said.

Walking reasonably well with a walker. Also I lengthened extremely slow.


Great job, jcayabo!   Honestly, you're recovery sounds like it is going well and very reasonable time line. 

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Posted on Mar 2, 2019, 10:53 pm
#10

Quote from: InFullStryde on March 02, 2019, 05:49:59 AMThat is outstanding Jim!  Everyone is different I suppose.   I would say that if you plan on going through the procedure, reserve about 6-8 months as far as your expectation is concerned.  Having said that, you should be able to return to your life at least, by month 3 or 4, only difference is you MAY need to use crutches.


Yes everyone is different. Im 27yrs old and was in the best shape of my life. Jogged everyday at work so my legs were really flexible and in good shape. Im sure that helped my recovery out in so many ways. 6-8 months should be what everybody sets aside for LL. I really pushed myself doing pt and was determined to walk way before my timeline. Even if your in pain, push yourself just a little more each day, thats how i seen it.

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