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Posted on Aug 12, 2024, 9:15 am
#11

hello and thank you for this diary, what are the cost of the CLL treatment with Dr. Salameh ? looking forward for more updates.

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Posted on Aug 12, 2024, 11:03 am
#12

Hi! To have the surgery done in Frankfurt Germany, the cost is 22 k Euros. Its just the cost of surgery. To stay in the accomodations above Dr. Shmidt clinic, it's 650 Euros/ months for rent. Food runs about 500 Euros/ month, but that could vary depending on the individual. I hope these information helps!

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Posted on Aug 12, 2024, 11:11 am
#13

It is very important to have money set aside for a helper at least first 2-3 weeks, if you are coming alone. They charge 15 Euros / hour. The accomodation have a full kitchen, laundry facility...

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Posted on Aug 12, 2024, 12:05 pm
#14

12, August, 2024
The only pain that I feel, especially after stretching, and sometimes walking, is that of the bone fractures. It is tolerable during the day. But if it stays until night time, it prevents me from sleeping. So I take a pain killer, and that takes care of it usually.
I am at almost 2 cm. I keep measuring and calculating. It is frustrating, because lengthening is a slow process.

Tip- Avoid frustration by measuring once a month.
 



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Posted on Aug 12, 2024, 1:33 pm
#15

Are you using the same mechanism? Also, are you stretching daily or doing physical therapy?

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Posted on Aug 12, 2024, 3:03 pm
#16

Hello! I stretch daily multiple times. I do exercises to strengthen the thigh muscles. Physiotherapy twice a week. I am sorry but did not understant what you meant by " same mechanism".

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Posted on Aug 12, 2024, 5:14 pm
#17

12 august 24
At about 5.30pm ,Dr. Schmidt came by to check on me. I asked him about accomodation after surgery and if his patients have other options. He affirmed me that there are different packages that he would tailor according to his patient's needs and budget. But declined to give a set price as it is not a standard one size fits all .
He will discuss that individually upon contacting him.

https://www.xn--orthopdie-schmidt-vqb.de/en

I posted all info. I have about Dr. Salameh's external fixator, but if more detailed information are needed about Dr.Salameh external fixator " Salamehfix" ,

his contact number: +49 173 4001615 ( whatsapp )


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Posted on Aug 18, 2024, 5:51 pm
#18

August 18th

Hello again!
 
All is going well thank God!
The dull pain residue comes and goes, but is coming less and less as days go by.
I am at 2.4cm today.
For those who are thinking of coming to Frankfurt for surgery, you have a variety of restaurants to order from and food prices are reasonable.
You do not have to have roaming on your phone, you can order online, using the address you are in, Ask Dr. Shcmidt if you are not sure.
The 2 restaurant i order from are:

Chef pizza            for pizza, pasta,salads
Damasquino.        For meditteranean cuisine, falafel, shawarma, kebabs etc....

For your grocery needs :

Rewe supermarket. They have a delivery service, 50 Euro for minimum order.

A great idea is to bring some food items with you:

Peanut butter
Jam or jelly
Stevia sugar substitute
Sesame seeds, a great calcium source, much better than dairy product
Nuts
Honey, place in a plastic bag and tie really well
Vitamin D
Multivitamin
Collagen powder or tablets
Plant protein powder, the brand Premier does nit taste like chalk, is tasty
Wipes with Aloe
Underwear, boxers comfortable and are not tight at thighs
Shorts
Tshirts
Bath towel
Shaving equipments
A plug that works in Europe, and you can plug your regular plug to it
A flash light
Laptop or i pad
A 90 day supply of all your medications
Amazon sells a one month (4 weeks ) pill organizer, makes life easy
Shampoo ,body wash
A book, pads and pens

If you are coming in winter get sweatpants, sweatshirts, jacket, it gets cold here
Summer is very nice




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Posted on Aug 23, 2024, 4:33 pm
#19

July 23rd, 24

Greetings to all!
As days go by , I learn to embrace the virtue of patience.
I also get to appreciate Dr. Salameh's external fixators half ring " Salamehfix", because I have come to experience the benefits of being able to walk even with help of crutches, while lengthening. Every day , i feel more at ease walking, and my natural way of walking is coming back gradually to the normal status.
I also get to stretch my achilles tendons, calf and chin muscles while on my daily walks.
Today the phisio. Session was dedicated to stair climbing. I noticed a big difference between to day and the 7th, when going up and down the stairs were very difficult, almost impossible.
I took a vow not to take my lengthening measurments until the end of the month. I am now almost 3 cm.
But now, i can feel the difference somewhat. Yesterday, while walking by a mirror ,I took a glance at my self, and for the first time in my life, I felt admiration for myself. That was the first time i ever look in the mirror and admire myself, never had it happen before!
Is that what we call vanity? I don't know, all I know is that it felt so good, suddenly there was a shift to the better with the image i have about myself...

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Posted on Aug 26, 2024, 3:43 am
#20

Greetings, I would like to note concerning  the list of things I suggested to bring, that if you are flying internationally, it would be better not to bring food items, so that you won't have any problems at customs.

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