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Posted on Dec 20, 2024, 6:37 am
#21

Not interested in videos and YouTube as I’m doing it secretly

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Posted on Dec 20, 2024, 8:31 pm
#22

Hey man, did you see my PM? I responded to your message - great to see that you are going ahead with the surgery. While this forum may be less popular than it was in the past, your diary is still super valuable. Just look at Ted68's diary, it got thousands of views. Best of luck with the process! Many of us are interested in hearing about your experience.

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Posted on Dec 21, 2024, 9:05 am
#23

OK, i see theres some people who still on the forum si i will share more and more often..
so i see theres something that is not talked about this surgery, and in my opinion is far harder than the pain of the surgery it self, and its the side effect of spinal anestesia as known as spinal headache, which i suffered from the days after my second leg surgery, and it included nausea, constipation, headaches, weakness, loss of apetite, blurring, and other physical pain which made me feel like im not human anymore.. and the worse one was feeling something between my chest and back expending and made me feel like im chocking.. that was one of the hardest experiences in my whole life and ive been through some  .. i cried but im stronger than all this, actually as of now im not taking any pain killers because my legs are not in pain, i guess sometimes i feel 2/10, but thats max
so im in the hotel, nice staff helps me, still clicking .75 per day, 2 times a day physio alone, the pinsite is the hardest part of the day for me lol, the hands wash and being sterile and scrubbing the open wounds can make u go crazy, takes me almost hour for both legs, but im getting better at it..
havent had normal shower since 4th december, but il probably will try to shower carefully today/tomorrow, because u cant shower before u remove the dressings who cover your stitches..
right now i think im at 6.75 mm at left leg and 3 mm at the right leg, dont feel much, just tingling sometime and small shockwaves but its ok not painfull for me.
if someone have a question please ask, i will be happy to answer, and one advice from me is just search as much as u can and try to ask the right questions, not dumb ones.

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Posted on Dec 21, 2024, 5:05 pm
#24

Oh the pin site care takes me back. I'd always dread doing it because sometimes it would take me about an hour each leg to take off all the old bandages and then wrap the new ones. Fortunately you don't have to do it for a whole year like I did.

Glad that the hotel staff is helpful still. I always thought it made more sense to stay at a hotel than a guesthouse because the hotel takes care of everything you need.

What's your opinion on the level of care by Dr Parihar's team so far?

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Posted on Dec 21, 2024, 6:54 pm
#25

Parihar himself and his close team seem very nice, there’s one lady doctor who was very helpful with me(she was the one doing the right leg with parihar), but other than that I really didn’t saw the team, dr parihar showed up only twice during my stay at the hospital, one of them was inside the OT, and in general the hospital itself looked very bad, outdated and pretty scary for me as I’m coming from western country, and the care takers were bad and reckless and didn’t care about me(not all, just some) but the nurses were fine and took care of me very good, maybe because I’m young they thought I’m just like their little child or something, but overall those 2 weeks were bad,unhygienic and sometimes felt like no one cares about me, but that’s why they tell patient to bring someone with them

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Posted on Dec 26, 2024, 10:33 pm
#26

Hi there! I'm having surgery februari the 6th at the Parihar Hospital in Mumbai. LON Tibia

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Posted on Dec 27, 2024, 9:23 am
#27

Nice man, I will probably see you there!
And if u stay at maharana inn it can be nice as I bought ps5 and fifa so maybe we can play together if I won’t finish until your discharge..
I want to stop lengthening end of February so I can get the frames off early march and fly back to my home, in that time frame if everything goes smoothly as it’s going now, I will be at 5.5 cm which is my goal( that also depends if my proportion would ok and not freaky)
Now I’m at 11.75 mm on left leg and 8 mm on the right, and I’m lengthening at a 1mm pace per day for now, it may change if I will feel pain but I’m ok and I don’t think I will have extraordinary pain or difficulty, sometimes I just take one pain killer at night just to sleep

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Posted on Dec 28, 2024, 3:38 pm
#28

Good going man! Keep updating your LL journey, would like to hear how your life changes after this period. Are you having physiotherapy sessions or the regimen they gave you, everyday? How's your range of motion? Can you use the bathroom and take a bath, all by yourself? Would love to know these stuff... Sorry to sound so demanding, your fullest life is just a 2 years away. Oh btw, do they charge extra for the removal of the nail, from your tibia? How long after the surgery do they remove it?

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Posted on Dec 29, 2024, 4:06 pm
#29

Doing physio by myself right now but I’m planning on taking at least 2-3 weekly sessions with a physiotherapist, my range of motion is good I think, I’m able to extend my knee fully, my ankle is also ok I just have pain in the front pin site on my ankle which is causing me pain so that’s something I need to deal with.
About nail removal it’s a long way until that.. I don’t think that’s included.
Yeah I can go inside the shower, just dragging myself inside and sitting on a small chair and washing myself, it’s a bit hard to put shorts on because the of the frames but I can do it.
Right now I’ve slowed my lengthening to .75 instead of 1 mm because I got so much pain during the night that it was hard for me to sleep even tho I took paracetamol, so I will try to alternate between.75 to 1 mm per day

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Posted on Dec 29, 2024, 4:45 pm
#30

Thanks for answering! And sorry to hear about your discomfort while increasing at 1mm per day, it seems like a nice plan of alternating, but might pose some threat as you'd be pushing yourself to the extreme in alternate days, I'd ask you to reconsider this and talk to the team, if they say it's fine then it's well and good. Good going man! Can't wait to see the newer you. My best wishes.

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