No More Mal-Kahn-Tent - External Tibias - Dr Parihar

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the discomfort from that never goes away, at least for me.... it's the most annoying thing  now for me, other than ballerina

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and as far as pain.... tramadol is the way to go, as it's intended to be taken a while, if you needed to do so

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I just got a reply from Dr Parihar after telling him about the pain issue. He wants me to go back to .75 mm per day each day instead of alternating days between .75 mm and 1 mm. He said if that does not help with the pain then he will consider adding the two pins to the middle ring early to improve stability instead of adding them once distraction is complete. It would mean a scar in the middle that goes the length of how much left I have to distract, but he said the longer scar is probably preferable to the pain I'm experiencing now. I have to update him in a few days and he's going to have someone get in touch with me to deliver a wheelchair here so I don't have to be stuck in bed all day and can at least wheel out to the lounge or something for a change of scenery.

Quote from: crimsontide on July 30, 2014, 07:38:25 AMand as far as pain.... tramadol is the way to go, as it's intended to be taken a while, if you needed to do so

I took that for a bit but they took me off it. I'll ask about taking it again next time I see him.

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the scar will look a bit gnarly... but is worn it if it reduces pain.... i have a bolt that seems to have lengthened along with me

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Can I go back length home ?

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Dr Parihar doesn't allow patients to lengthen away from Mumbai anymore.

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Another night of mind numbing pain and no sleep. It's 3:20 am and I've been trying to ignore the pain in my left leg that just popped out of nowhere since 10 pm. Judging from this to not even being able to stand anymore, I'd say it's clear my body is not responding well to lengthening. Worst constant pain in my life.

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kilo... it was bad for me too... really bad... try to endure the next few days... i thought about quitting the first month.... it was insane how bad the pain was

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Kilo, I totally know how you feel that this point. About 2 months ago, I was in the exact same situation as you. My first two weeks of lengthening was hell. I felt a combination of skin tearing pain, nerve pain, bone pain, muscle pain... You name it, I've had it. I finally cried one day out of desperation that I am in middle of nowhere - I already spent the money and did the surgery, I can't exactly turn back and say screw this, but I am also only two weeks into lengthening, I cannot fast forward to the end as the end of lengthening seems way too far away to even imagine.  One thing I kept doing was I read everybody's dairy, it made me feel better to know that everyone eventually all complete this hard process despite the unique obstacles they have encountered. The good thing is as we dwell on the present, time is always going forward. Lengthening is a very unpredictable process, same as life, except the events happens ten times faster. You will find situations take unexpected turns before you realize. Turning 0.75 should help you a lot with pain. Right after I started turning 0.75, the pain all of the sudden became non existing. In term go sleeping, I think it's not just a matter of taking pain killer or sleeping meds. Sleep can be a mental thing. Once you had several episodes of bad experiences, your mental becomes anxious when you try to sleep. Of course the more anxious you get, the harder it is for you to fall asleep,therefore creates a bad cycle, despite the physical exhaustion. Maybe try to do something to calm your mental? Like eating bananas and drink milk before going to bed as it contains natural potassium, listening to calm music is another way to relax your mental state. Maybe if you do this with a combination of sleeping meds, you will have a easier time to fall asleep? The other thing I do is I try to tell myself that it's OK if I don't fall asleep as I would have nothing to do the next day anyway. When the pressure is off, it's also easier to fall asleep. All of above are just merely my suggestion, you will slowly find what works for you the best 

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Quote from: crimsontide on July 30, 2014, 10:24:36 PMkilo... it was bad for me too... really bad... try to endure the next few days... i thought about quitting the first month.... it was insane how bad the pain was
When the pain hits it definitely does make you think "Why the hell did I do this to myself?" at first.

Quote from: Classical on July 31, 2014, 01:40:04 AMKilo, I totally know how you feel that this point. About 2 months ago, I was in the exact same situation as you. My first two weeks of lengthening was hell. I felt a combination of skin tearing pain, nerve pain, bone pain, muscle pain... You name it, I've had it. I finally cried one day out of desperation that I am in middle of nowhere - I already spent the money and did the surgery, I can't exactly turn back and say screw this, but I am also only two weeks into lengthening, I cannot fast forward to the end as the end of lengthening seems way too far away to even imagine.  One thing I kept doing was I read everybody's dairy, it made me feel better to know that everyone eventually all complete this hard process despite the unique obstacles they have encountered. The good thing is as we dwell on the present, time is always going forward. Lengthening is a very unpredictable process, same as life, except the events happens ten times faster. You will find situations take unexpected turns before you realize. Turning 0.75 should help you a lot with pain. Right after I started turning 0.75, the pain all of the sudden became non existing. In term go sleeping, I think it's not just a matter of taking pain killer or sleeping meds. Sleep can be a mental thing. Once you had several episodes of bad experiences, your mental becomes anxious when you try to sleep. Of course the more anxious you get, the harder it is for you to fall asleep,therefore creates a bad cycle, despite the physical exhaustion. Maybe try to do something to calm your mental? Like eating bananas and drink milk before going to bed as it contains natural potassium, listening to calm music is another way to relax your mental state. Maybe if you do this with a combination of sleeping meds, you will have a easier time to fall asleep? The other thing I do is I try to tell myself that it's OK if I don't fall asleep as I would have nothing to do the next day anyway. When the pressure is off, it's also easier to fall asleep. All of above are just merely my suggestion, you will slowly find what works for you the best 

Thanks, Classical. I think what caused the pain was alternating the distraction between .75 and 1 mm because the pain didn't get that bad until I introduced 1 mm days. I think it's primarily nerve pain because it was almost like a burning sensation. Listening to music helped so thanks for that suggestion.

I was delivered an NSAID called Voveran SR last night along with an antacid called Rantac. It took a while to help because I got this burning on my right leg last night and couldn't sleep no matter what, so I sat down on the edge of the bed and rested my head on my walker. I fell asleep doing that and when I woke up in the morning I didn't have any pain. It still pops up from time to time but it's a lot more manageable now. My stepdad called me and suggested I ask Dr Parihar for some cortisone injections but I'm not sure if it helps with this kind of pain. I have to ask Dr Parihar if he ever uses them on patients for pain relief.