I spent the whole of last night and read your diary carefully. Over a year and half... Has it healed.for the most part? I saw your Instagram pics, it looks to me that you are on speedy way towards recovery.
Has the right leg been consolidated? When will you be able o forget about this and move on with the next chapter of your life?
Quote from: blacksheepwall on January 16, 2018, 03:08:45 PMI spent the whole of last night and read your diary carefully. Over a year and half... Has it healed.for the most part? I saw your Instagram pics, it looks to me that you are on speedy way towards recovery.
Has the right leg been consolidated? When will you be able o forget about this and move on with the next chapter of your life?
Unfortunately, no I am far from healed and have sought a lot of doctors in various countries. Nobody really knows how to heal me :
My right leg ran away to almost 10cm and there is complete NON-UNION. Nothing is growing or consolidating, so all my 'fake' walking on Instagram are short spurts, not my real life.
My left leg is suffering from overly tight/short psoas/quads/IT band/soft tissues which cause daily knee pain (am still on painkillers) and I cannot straighten my left leg, it's bent at the knee.
Because of these soft tissue shortness, I suffer from anterior pelvis tilt, which causes duck ass (hyper lordosis) and my left leg to turn inwards (valgum). It makes it very difficult for me to walk like a normal person.
Aside from all this, yes there is PTSD from all the trauma, being unemployed, very little finances left, and I just don't know how to get back to normal life, in less than 3 months, I would not be able to pay for my mortgages anymore. This is from someone who had ample savings and trading in 2016 but everything flipped for the worst when I got affected emotionally as well.
NHS wants to open my right leg up and change nails, do a biopsy and bone graft when I get back to London. I just don't know how to face another invasive surgery like this. My 2016, 2017 have been ruined, I just cannot imagine losing 2018 as well but something has to be done (I know 
).
I keep praying and praying and praying that my right leg will consolidate miraculously (to the point of going today for a 2hr evangelical sermon and being 'healed' by a dubious preacher) and I'm even spending 2 hours a day every morning in a hyperbaric chamber inhaling pure oxygen in the hopes that it will oxygenate my blood and trigger circulation and bone healing. A friend is taking me to Lourdes as well very soon to try for more 'miracles'.
I think the findings are I've very little live cells left where the lengthened gap is on the right leg (and maybe a bony infection that's resistant to antibiotics) and it's near impossible for it to form sufficient calluses to bridge at this point
I'm relying on the 'weight bearing' abilities of the G nail as I've no bones to support an empty 10cm gap. So I hope the pins won't bend, unscrew or the nails break, like in other cases. That's why I'm using crutches religiously and try not to walk 100% unsupported.
I exercise, swim, walk in water, stretch, do yoga for hours every day, hoping that I can speed up some form of recovery, be it muscular, flexibility, bony or stamina. There is A LONG WAYS to go as confirmed by another osteopath I recently consulted. He is equally stumped at how much my surgeries were messed up.
https://www.instagram.com/unicorn_gets_taller/
Quote from: Unicorn888 on January 21, 2018, 02:39:24 PMMy right leg ran away to almost 10cm and there is complete NON-UNION.
https://www.instagram.com/unicorn_gets_taller/
Hi Unicorn, you said you had a 10cm non-union of your right leg, how much you lengthened on your left leg? Is it because too much lengthening over recommended amount caused non-union?
would removing the gap by going back to your original length help/be possible?
What a nightmare this must be. Glad that you have caring people that are supporting you along the way. I'd listen to NHS' recommendations, as hoping for a miracle is cathartic, but it's not quite immediate action with observable results.
I hope your next surgery goes well. You are in my prayers. Hang in there. You will get through it.
Quote from: Thatdude950 on January 21, 2018, 04:49:35 PMwould removing the gap by going back to your original length help/be possible?
I'm not an expert, but she says she has spoken to many doctors. It might not be as "easy" as that.
However, that is what I would try to do if I was in her situation, despite having to undergo another lengthy process. That might imply using external frames (painful) or using a device such as the precice/fitbone nail. The later might also imply shortening her other leg, as those nails extend only up to 8cm, and I don't remember any (maybe incorrectly) internal nail except the guichet/albizzia nail that can extend up to 10cm.
In any case, I'd like to wish Unicorn the best and I hope that she can recover rather sooner than later.
Quote from: observer on January 21, 2018, 03:05:33 PMHi Unicorn, you said you had a 10cm non-union of your right leg, how much you lengthened on your left leg? Is it because too much lengthening over recommended amount caused non-union?
The right leg was lengthened to 7cm (within 2 months) as recommended by Guichet. But because of non-union and because the G nail cannot be stopped or reversed, it kept accidentally clicking on its own. 1 year later, Guichet measured it finally and said I had reached about 9.7cm, it is still clicking accidentally about 5 times over these 2017 holidays. This is not something I can control.
My left leg was lengthened only to about 8cm because the new NHS doctor didn't want me to risk non-union. I had lengthened to 8cm on my own through about 4-5 months which is much much slower than what Guichet recommended and I am happy to report that my left leg is fully fused and consolidated.
So, the non-union on the right leg can be caused by lengthening too fast without checking for callus bridging, maybe the nail was contaminated causing osteomyelitis, NHS had scanned me for cysts because that can cause non-union (negative), so now the next step is a biopsy. Once that is done, either we change nails, bone graft, shorten or all or none. I don't know
Quote from: Thatdude950 on January 21, 2018, 04:49:35 PMwould removing the gap by going back to your original length help/be possible?
Yes, I can go through another invasive surgery to remove the nail. The G nail cannot be reversed or shortened. So all I can do is remove it from my right leg entirely. If that happens, we can either insert a normal trauma nail and there is no guarantee of how much length I will lose. If I don't, my entire leg will collapse causing the 10cm to compress. This can also have severe effects on my soft tissues as well.
It's not that straight forward at this point. I'm really praying for a miracle but with 2 accidental clicks in the car today, I know for sure that I still have zero bones formed.
Quote from: cobalt on January 22, 2018, 01:05:17 AMI hope your next surgery goes well. You are in my prayers. Hang in there. You will get through it.
Thank you Cobalt. This is going to be my 4th surgery and 18 months from my 1st surgery. So, bear in mind people that this procedure can haunt you for a very long time causing you to lose everything in your life. The chain of events are like a domino effect. One bad thing leads to another and before you know it, you don't know how to get out from the abyss.
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