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Posted on May 21, 2018, 11:32 pm
#941

Quote from: Unicorn888 on May 21, 2018, 02:39:29 PMI was inserted with a 13mm male nail


Quote from: Unicorn888 on May 21, 2018, 02:39:29 PMmy femur bones are very very thin.  Any removal attempt right now might shatter my entire femur completely


How the hell did he think this was good medical practice? I thought Western Europe was the more rigorous, restrictive older brother to the US/Canada.

Even if everything had gone smoothly, you'd still have to get the nails out at some point. Wouldn't the risk be the same, then, too?

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Posted on May 22, 2018, 1:22 am
#942

Quote from: Body Builder on May 21, 2018, 12:01:31 PMNow its time to strike back Unicorn. Dont accept your current situation, even if bone graft dont succeed the next step, bone shortening etc will.
So I believe in one year you will get rid of Guichet's mistakes and continue your life normally.

Keep strong, its time for action now!


X2 !!

Couldn't have said it better.  Time to rise once again and hit back. Easier said than done, but you have it in you.   

I wish you well and hope sincerely that this will work for you.  Blessings to you Unicorn.

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Posted on May 22, 2018, 2:50 am
#943

Good luck, Unicorn!

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Posted on May 22, 2018, 5:12 am
#944

i am sure guichet would still argue that he did the right thing by ramming in 13mm nails in her bones. narcissism or ignorance i do not know. it is hard to tell if a doctor is ignorant when you consult, but narcissism ("i am best", "i taught the other doctors", "my patients recover fastest") is a sure red flag.

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Posted on May 22, 2018, 12:52 pm
#945

Quote from: fokid on May 22, 2018, 05:12:52 AMi am sure guichet would still argue that he did the right thing by ramming in 13mm nails in her bones. narcissism or ignorance i do not know. it is hard to tell if a doctor is ignorant when you consult, but narcissism ("i am best", "i taught the other doctors", "my patients recover fastest") is a sure red flag.


In his re-edited medical notes, he stated that I was overweight, so needed a bigger nail for safety reasons.  I was 58kg before surgery.

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Posted on May 22, 2018, 12:56 pm
#946

Quote from: myloginacct on May 21, 2018, 11:32:25 PMHow the hell did he think this was good medical practice? I thought Western Europe was the more rigorous, restrictive older brother to the US/Canada.

Even if everything had gone smoothly, you'd still have to get the nails out at some point. Wouldn't the risk be the same, then, too?


Correct.  So the further problem I'll have is, I need to remove his nails.  It's stainless steel and not titanium.  It means it can potentially be carcinogenic if left in the body for too long.  It has a higher rate of bacterial adhesion too.  That's why these days, most internal nails are all titanium so that you can leave it in the body forever.  In my case, I have to remove it at some point or suffer further damaging consequences.

And I know a few people now (who wrote me privately) who rebroke their femurs at nail removal.  So that is another risk all on it's own.  Hence, having strong bone consolidation is very important.  Some LL doctors actually remove nails even before full consolidation (ie. 2 out of 3 sides) and claim that it's safe enough.

So, it's important to always double check what your doctor is recommending.  Sometimes, they just want to perform surgeries even when not ready or unnecessary.  It's like harvesting my marrow extract to inject into my 9cm runaway gap.  That was completely unnecessary because no marrow can graft such a big nonunion area.   But I believed everything.

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Posted on May 22, 2018, 1:17 pm
#947

Quote from: notatroll on May 21, 2018, 10:44:42 PMSo horrible. Are antidepressants helpful? How do you feel about the new surgery? When do you think you'll be OK?
Musicmaker's case is similar. Perhaps you can talk to her. She's online now. In her case she trusted Monegal but IMO Monegal didn't handle her case well. She had 10+ surgeries and piling up. Botched legs like Guichet... or worse. You're lucky to have NHS help. Wish you the very best. UNICORN - Dr. Guichet Internal Femurs 8cm - Summer 2016


I don't have a choice regarding the anti-depressants because I cry for no reason, don't have desire for anything and don't feel like I have a future.  So the NHS therapists prescribed anti-depressants and also Diazepam when I have panic attacks. 

So, for example, when I found out I'll have my 4th surgery on June 7th, I had a mini panic / anxiety attack yesterday because it brought back all the post-op trauma from the last surgeries.  The fear of being wheeled into the operating theatre, the trepidation when they start asking you to count backwards... I was shivering and crying the last time.  I didn't have the courage to undergo surgery, but yet, there I was seconds away from unconsciousness.

And what's scary is this time around, I only look forward to one thing...  the few seconds when the cool liquid of the general anaesthesia mixture courses through my veins, and the relaxants give me complete tranquility before I drift off to sleep...  that peaceful bliss, I wish I could have that feeling everyday; to zone out when life gets too hard to face. 

I guess that's why we're seeing opioid addictions at an epidemic proportion today.

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Posted on May 22, 2018, 7:16 pm
#948

Im so sorry to hear about all thats happened to you Unicorn.

Im sure the NHS will do their absolute best to resolve your issues.

Has Dr Guichet been stopped from operating and have the GMC been informed?

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Posted on May 25, 2018, 9:22 pm
#949

Unicorn... if it's not too much, I wanted to ask your personal opinion. I don't recall seeing it asked here before.

When do you think this surgery (CLL) is legitimate? If that question makes any sense to you.

I don't mind it if you'd rather not answer too. Thank you for your all time here.

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Posted on May 26, 2018, 10:32 am
#950

Quote from: myloginacct on May 25, 2018, 09:22:10 PMUnicorn... if it's not too much, I wanted to ask your personal opinion. I don't recall seeing it asked here before.

When do you think this surgery (CLL) is legitimate? If that question makes any sense to you.

I don't mind it if you'd rather not answer too. Thank you for your all time here.


After being a patient of the NHS (free public hospitals) in the UK, I realize that limb lengthening has been around for some time.  It was primarily used for trauma/accidents/deformities when one limb is shorter than the other.  Doctors use the Illizarov method (external frames) to lengthen the femur/tibia and even arms.

So, in the UK for example, the RNOH (Royal National Orthopaedic Hospital) even has a guide to limb lengthening using Precice, which primarily instructs patients not to lengthen more than 1mm per day (https://www.rnoh.nhs.uk/our-services/limb-reconstruction).  So now that I'm a patient there, I realize a lot of people do undergo limb lengthening, just not voluntarily or for cosmetic reasons like we do.

At the same time, if one has been plagued psychologically with short stature neurosis, the NHS and certain medical insurance companies actually approve and pay for cosmetic limb lengthening surgery.  Yes!  I never realized that too!  And many of us would have qualified seeing that short stature is something that would have affected us since our teenage years and would continue to do so for the rest of our lives.  It probably does determine a substantial part of our destiny too.  And hence, we find ourselves in this forum together.

So the only thing I can reply is, it has always been legitimate with the right doctor and monitoring.  I think it helps to follow organizations like the NHS which has nothing to gain by its choices of methods.  They use Precice because not only is it FDA approved but also because it causes less mental anguish/trauma (of clicking/racheting), even if not fully weight bearing until Stryde comes out.

At the end of the day, when you think about the argument that you need to bear weight on your bones for it to fuse or grow, it doesn't make much sense.  Anyone who's ever broken a bone knows that even if you had it in a cast and you're hanging there helplessly in a hospital bed for 2-3 months, your bones would still fuse and heal up.  So the weight bearing part is not a necessity for bone consolidation but a practical optionality for many of us to continue on with our lives including returning back to work.

And while full weight bearing is practical, it actually puts us at a higher risk of accidents/falling etc., which happened to many of my classmates and myself inevitably just because we're crutching/framing/climbing into taxis/up & down stairs/streets to physios, tests and other unnecessary activities on a daily basis without the safety of a wheelchair to lean on when fatigued/chaotic.

So, is it legitimate?  Yes, it has been for a long time.  You just want to know what to look out for, monitor your own progress closely and be accountable for yourself. 
NHS/RNOH showed me how their lengthening process is usually monitored :

  • Many doctors prefer to wait 1-2 weeks post osteotomy/initial surgery before starting to lengthen
  • Be cautious and do not rush (it's not a race!)
  • Lengthen less than 1mm per day
  • Depending on gender and age of patient (and smoking habit), they choose internal or external methods (Internal methods require reaming of your bones, so healing could be slower)
  • Then, bi-weekly xrays need to show callus bridging and the lengthening rate thus changes depending on how fast or slow the bone consolidation is
  • Use a nail that can stop and/or reverse in case of non-union/runaway lengthening
  • And they do not allow too much lengthening if the soft tissues cannot keep up (like IT band, psoas, hamstrings and quads etc). because recovery to normal walking gait might take forever or further surgeries would be required


Does this answer your 'legitimate' question?  My view is all cosmetic doctors are out to maximize profit especially those who manufacture their own brand of nails because they have the biggest profit margin to gain.  Hence, becareful of this conflict of interest, which is not 'legitimate' or legal in most countries.

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