Wait for Stryde or go for PRECICE?

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I have been thinking--how do people operate on their own with PRECISE during consolidation? Is it even possible? Let's say you finish the lengthening phase and return home, and you're alone--How are you suppose to get groceries, for instance? Drive? Go to the hospital?

Do you need to basically set your house up to operate like a disabled person? For instance, if you have only a bath/shower combo with a bath height of 16 inches, are you completely screwed for getting in and out of the tub? I'm having these questions. I don't know if you can do it alone during consolidation and after?

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According to latest news from nuvasive Stryde or whatever it's replacement is called is minimum 2023 release date.

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Quote from: randomperson on December 17, 2021, 08:23:27 PMI have been thinking--how do people operate on their own with PRECISE during consolidation? Is it even possible? Let's say you finish the lengthening phase and return home, and you're alone--How are you suppose to get groceries, for instance? Drive? Go to the hospital?

Do you need to basically set your house up to operate like a disabled person? For instance, if you have only a bath/shower combo with a bath height of 16 inches, are you completely screwed for getting in and out of the tub? I'm having these questions. I don't know if you can do it alone during consolidation and after?

I know some people just stay in the hotel for another 2-3 months until fully consolidated and then go back home.

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Quote from: randomperson on December 17, 2021, 08:23:27 PMI have been thinking--how do people operate on their own with PRECISE during consolidation? Is it even possible? Let's say you finish the lengthening phase and return home, and you're alone--How are you suppose to get groceries, for instance? Drive? Go to the hospital?

Do you need to basically set your house up to operate like a disabled person? For instance, if you have only a bath/shower combo with a bath height of 16 inches, are you completely screwed for getting in and out of the tub? I'm having these questions. I don't know if you can do it alone during consolidation and after?

It's possible as long as you have money -

Stay in a hotel that has a shuttle service to the hospital and offers an accessible unit (at least at Paley).

Hire a caregiver 1-2 hours a day to perform housekeeping activities, clean up, etc.

Uber Eats all of your meals, which can be delivered to your door.

Avoid going anywhere except the hospital PT. Keep your daily schedule as routine as possible.

In general, once you learn how to use toilet independently and move in & out of hotel entrance on a walker (or wheelchair), you can live on your own.

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Quote from: ryand2021 on December 18, 2021, 08:29:29 AMIt's possible as long as you have money -

Stay in a hotel that has a shuttle service to the hospital and offers an accessible unit (at least at Paley).

Hire a caregiver 1-2 hours a day to perform housekeeping activities, clean up, etc.

Uber Eats all of your meals, which can be delivered to your door.

Avoid going anywhere except the hospital PT. Keep your daily schedule as routine as possible.

In general, once you learn how to use toilet independently and move in & out of hotel entrance on a walker (or wheelchair), you can live on your own.

It will work unless something goes wrong. The caregiver doesn't come some day. Your phone gets broken. Your credit card expires or gets blocked for some reason. You get locked out of some online account.

If you have someone you can SOS call to help you then it's all good, but if you are truly by yourself then I dunno, all this detailed planning might not go as expected. At the end of the day you should be able to make some food for yourself and not starve.

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Quote from: world on December 18, 2021, 12:38:01 PMIt will work unless something goes wrong. The caregiver doesn't come some day. Your phone gets broken. Your credit card expires or gets blocked for some reason. You get locked out of some online account.

If you have someone you can SOS call to help you then it's all good, but if you are truly by yourself then I dunno, all this detailed planning might not go as expected. At the end of the day you should be able to make some food for yourself and not starve.

Your mobility is not "that bad". That being said, by week 4 you should have no problem performing easy tasks such as opening a door, microwaving food and taking something light from a fridge, as long as both legs are standing on the ground. You probably can't clean trash, but that's not a time-sensitive task.

I'm not sure about other doctors, but Paley works with a few caregiver companies and they are very professional and communicative. The hotel is also well experienced to host LL patients. Of course some sort of preparation is needed but unless a complete disaster happens (your walker is broken + cell phone is broken + hotel phone is broken + wheelchair is broken + hotel office chair is broken + laptop is broken all at the same time), you should have no problem getting attention.

Plenty of LL patients did P2.2 before 2018 on their own.