I
Verified Member
Posts: 420
Joined: Jun 2026
Hello Forum admin,
I really dislike how the new diary is. My request has been ignored so I will no longer post updates until it is fixed.
I
Verified Member
Posts: 305
Joined: Jun 2026
Really disappointing to see that I’m not given the option to make a diary more factual for patients, I expected better from here.
I
Verified Member
Posts: 419
Joined: Jun 2026
As stated, you could continue writing the diary with all your new perspectives and retrospective missed details , we can link to the new post summarizing all that , but not delete the old diary.
Either way, wish you a smooth & speedy recovery.
As stated, you could continue writing the diary with all your new perspectives and retrospective missed details , we can link to the new post summarizing all that , but not delete the old diary.
Either way, wish you a smooth & speedy recovery.
Hi ForumAdmin,
I understand your perspective. Your goal is to maximise engagement on the LL Forum. However, what if I say that the diary is fake, exaggerated, or has incorrect details? What does this say about the quality of this website for future patients?
I have left a public note on my diary informing people that due to the lack of evidence, the diary must be taken as fictional, exaggerated, or fake. I have made multiple approaches trying to provide a remedy but there is zero flexibility.
I will stand firmly on my decision to provide a higher-quality diary rather than make amendments when user comments and updates in the comments still remain. However, due to prioritising views and engagement over patient safety, I will no longer provide possibly fictional (no evidence, so there is no reason to believe it is true) updates on my diary.
Should you change your mind about collaborating to provide a serious high-quality diary without exaggerations or unchecked claims, feel free to let me know. The people are watching.