Ok now the mental challenge of this surgery is really kicking in. After getting a room at the LiveLifeTaller hotel I caught my reflection in the mirror. I’ve noticeable lost a lot of muscle in my legs and upper body. I also haven’t been able to wash my face in 3 days so I look homeless. Today was a very frustrating day as after I had my catheter removed there was some sort of problem where my urine stream was like a sprinkler. Also it would feel like I was being stabbed with a knife while taking a piss. Luckily this problem sorted itself out after the 5th trip to the washroom. Ive been taking naps throughout the day and every time I wake up I have an uncontrollable urge to pee. Problem is I have two broken legs and can barely move. I have made this dash to the washroom 3 times and the last one I experienced my first clicking pain. I have heard old forum members describe this and at first I thought I broke my leg or something. I am also starting to get really anxious because I have not had a bowel movement in 4 days and feel like I’m impacted. This happened to me last year and I had to lube my fingers and remove the impacted stool by hand. This would be impossible rn as I can’t even stand without the walker let alone perform this task. Hopefully it gets better by tomorrow. Honestly I understand why people say they regret doing this but for me my height made my life unliveable I spent each day in severe depression. Just the hope of getting taller makes me keep going.
Limb Lengthening- Halil Buldu Turkey LON Femurs
Bro,everything will be better and better and you are doing great. I think I will use a week till I can go to the toilet by myself
Best of luck! It's interesting reading your experience so far.
What country did you fly from?
Thanks bro. I’m from the States
Ok guys I won’t be updating as often as I originally planned. I’m now 9 days post op and have been lengthening for 4 day. The team has directed me to lengthen 1.5mm a day which I was kind of shocked by. The normal rate people lengthen is usually 0.75-1.25. I did 1.5mm for 4 days but then began to get nerve pains, I’ve now dialed back to 1.25mm a day. Pain has been non existent during the day but at night is when you remember “fk my legs are broken”. My bending isn’t the best and it’s probably because I’m not doing enough stretches other than the PT w the trainer. Going to the washroom is inconvenient to say the least, I have to take a standing up cause sitting down and getting up is near impossible. I’ve always been a loner so the isolation really doesn’t bother me. I usually never leave my room unless I have to, I’m also scared of getting pin-site infections so I try to be as clean as possible. Overall a week in its not too bad, at 1.25mm a day I should get to my goal in under two months as long as no unforeseen events happen but with this surgery who knows. I want to say this surgery is truly for those that have no other choice in life, sometimes I get depressed but then I remember my life is literally unliveable at my old height and that I had no choice. Had it not been for the years of bullying, physical harassment and depression I would have NEVER gone through with this. So I hope anyone considering this takes everything into account.
Could it be that they have told you to increase your rate of lengthening as your are only 21? That's my guess. I would stick with 1.25mm a day if you're not getting too much trouble from it.
Quote from: thankscience on June 27, 2022, 10:35:33 AMCould it be that they have told you to increase your rate of lengthening as your are only 21? That's my guess. I would stick with 1.25mm a day if you're not getting too much trouble from it.
Yeah probably cause my bone healing should be good at this age so they dont want early union. But I’ll have to wait for X-rays to be sure. Regardless I’m gonna do 1.25 I don’t want any nerve damage just cause I was greedy. My goal is 6-7cm and I should get to that at 1.25 a day no need to risk anything
they told you to do 2mm per day in order to kick you out from the rotation faster as you are taking up resources that could be spent on newer patients.
do not listen to them, you already fked up by going to this doctor so now its important to minimize any possible complications
DO NOT DO MORE THAN 1 MM PER DAY
be extremely careful with your frame and avoid risking infections like the plague. your defecating issue is relatable, i hope you figure a good system to be able to do it every day
eat LOTS of food. when you become regular you will have the urge to defecate daily. get some wet wipes and latex gloves to clean yourself properly and do not sit on the toilet bowl directly over the water to minimize back splash which could go near your frame and increase infection risk
my thoughts and prayers go out to you, lon femur is not for the faint hearted. good luck
Quote from: boklecrt on June 28, 2022, 02:37:30 AMthey told you to do 2mm per day in order to kick you out from the rotation faster as you are taking up resources that could be spent on newer patients.
do not listen to them, you already fked up by going to this doctor so now its important to minimize any possible complications
DO NOT DO MORE THAN 1 MM PER DAY
be extremely careful with your frame and avoid risking infections like the plague. your defecating issue is relatable, i hope you figure a good system to be able to do it every day
eat LOTS of food. when you become regular you will have the urge to defecate daily. get some wet wipes and latex gloves to clean yourself properly and do not sit on the toilet bowl directly over the water to minimize back splash which could go near your frame and increase infection risk
my thoughts and prayers go out to you, lon femur is not for the faint hearted. good luck
Thanks brother for the concern. I’m not going to lie them trying to get patients done with fast was my initial thought too. I’m sticking to 1.25mm and if I experience any discomfort back to 1mm. But even if I reach my goal early I’m staying here for the entirety of my contract so I’d still be using the room, pt etc.
As for the washroom thing. I go 2 times a day I squat over the toilet and only use wipes to make sure I’m 99% clean. LON femurs are tough but as long as you avoid infection they aren’t that bad. I try to avoid any shared spaces. I never go to the lobby area or use lounge chairs.
I’ve recently started to walk without any support. Would you say the LON is actually weight bearing as advertised or should I avoid testing my luck for context I’m light af 120lbs
Quote from: KingsRule on June 28, 2022, 03:19:12 AMThanks brother for the concern. I’m not going to lie them trying to get patients done with fast was my initial thought too. I’m sticking to 1.25mm and if I experience any discomfort back to 1mm. But even if I reach my goal early I’m staying here for the entirety of my contract so I’d still be using the room, pt etc.
As for the washroom thing. I go 2 times a day I squat over the toilet and only use wipes to make sure I’m 99% clean. LON femurs are tough but as long as you avoid infection they aren’t that bad. I try to avoid any shared spaces. I never go to the lobby area or use lounge chairs.
I’ve recently started to walk without any support. Would you say the LON is actually weight bearing as advertised or should I avoid testing my luck for context I’m light af 120lbs
You should stick to 1mm per day. Do not spend a single nanosecond listening to the assistants babbling about "preconsolidation risk". The scientific literature says 0.25mm per day is when the risk becomes apparent. Preconsolidation doesnt happen overnight. It takes weeks of slow lengthening. Furthermore the more you go into the process the softer the callus is the more leeway you got with the speed of turns. So if youre already 6 cm and you stop for like 2 weeks and then turn again you most likely will be able to continue uninterrupted
Read the next carefully: at any time during the process if you start getting overwhelmed from the turns you can take rest days. You can take 2-3-5 days of rest if turning becomes excruciating later in the process. Do not push through excruciating pain due to "preconsolidation risk". Do not fight your body. If you start getting nerve tingles, and general feeling of not being well take rest days. Alternatively you could slow down for a few days to 0.5mm per day and then resume 1mm when rested a bit. But this is for later in the process
Anyway
For walking without support - Do not do it. It is not worth it to risk and tempt fate
From what I have researched about the turkish doctors they all use these sturdy looking walkers with wheels(its actually called rollator) which for example they dont use in the Vietnamese place I had my surgery, we use here normal non wheel walkers
So with the Rollator walkers you are able to have natural movement of one step following the other instead of having to put 2 feet together and move the walker forward like I have to do
Use your rollator for everything and make sure you keep your body straight and not hunched over. This will become increasingly difficult as the lengthening goes as youre stretching the entire posterior chain beyond its equilibrium which will force you to hunch over like a grandpa
also, youre very light, EAT EAT EAT
Dont worry about gaining unwanted weight, it will be quite hard to. All extra calories will mainly go to the bone break.
If you dont wake up in the morning energized youre not eating enough. Try to calculate how much calories you eat. At your pigeon tier weight you must shoot for 3000 at the bare minimum.
eat 3-4-5 times a day, protein should be your main food then vegetables(for good digestion) and carbs. These 3 in all meals. If you ask to get 5 whole eggs a day would help tremendously too as the fat in egg yolk is necessary to produce hormones in your body. I dont know how much you can change the food they give you. Eggs every day and some nuts are extremely important.
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