7/30/23
As of today I have reached 8.0cm on my femurs, leaving me with only 10 days left of lengthening before I reach my goal. I can’t believe I’ve made it this far, but the process has truly been hell. The night time is still significantly more painful than the daytime, but with wise management of painkillers I’m still surviving. I’m grateful I chose not to use the painkillers until the end of this process so at least in my last ten days they should continue to work for me. I’ve seen a lot of patients here abuse these painkillers and eat them like candy even as early on as 3cm in. Right now, I’m not really able to walk at all anymore, so I can only move around using my wheelchair. I stay in bed for 22 hours of the day and only get up to do physical therapy or to go to the bathroom.
For those considering aiming for the full 8cm or further, you really have to be committed to this process and also have good flexibility. As of right now, I’ve only met one other patient at the clinic who managed to get the full 8cm. It’s not impossible to do, but I think almost everyone else couldn’t handle the intensity of the pain past a certain point. For me, the pain became significantly worse after 6.5cm. Furthermore, many patients’ ligaments and/or muscles get too short and they are forced to stop for their health.
I’ll upload my x-rays next week to see where my consolidation is at and any final measurements before my removal surgery on the tenth of August. I really can’t wait for this all to be over.
LON on Femur - 9cm goal height
Good stuff King 👑
8/1/23
Here are the images of my X-Ray taken yesterday morning. According to these, I should be at 8.3cm by this evening. Just one week left to go.
8/7/2023
As of today I am at 8.9cm and will have my removal surgery on the 9th. I can’t tell you how relieved I am to finally be done with this. I’m very grateful that my knee flexion has remained relatively good and healthy throughout this process, so hopefully my recovery will not be so bad. For people considering going past 8cm, just know you’ll be in a whole different world of pain, which is crazy considering LON on your femurs is already torture. I’m not saying not to do it, but just to be aware of how bad it will be for you.
Also, I’m aware there have been a lot of criticisms of the company I chose to do this procedure with as of late, and I don’t wish to weigh in on it. There is plenty of information out there at this point and I feel like you guys can do your research and use your best judgement.
The positive aspects of this company are definitely the doctor, who is knowledgeable and well skilled in what he does. I also appreciated working with the physical therapy staff who had good attitudes and for the most part knew how to help throughout this entire process. I admit I had some issues with the accommodations here. For prospective patients looking to come here, perhaps find a different place to stay nearby until the company can sort these issues out.
Bonus note: if you can arrange to have a friend or family member stay with you through this process, I HIGHLY recommend it. It is extremely difficult to take care of yourself during this process, especially once you really lose mobility after 6-7cm.
I will make an update post after my removal surgery.
Congrats King 👑 I will be waiting on the other side
sounds like success. I'm happy for you.
congrats! Get those fixators off. 
8/9/2023
I’m in the hospital right now, it’s been a few hours since I’ve woken up after the removal surgery. All I can say is, everyone was right: the pain was exponentially worse than the first surgery. The first hour and half was the most painful hour and half of my life and it really was unfathomable levels of pain. All I can say is I’m glad that part is over.
Onto the positives. Everything seems to have gone well. The doctor did a minor IT band release on both my legs, which I definitely needed. He helped fix the huge craters in my legs from the pin sites, and he said the stem cells went well and he had more than enough to cover the entire gap in both legs adequately. The doctor also straightened out the rod in my legs more than how they were prior to the surgery and they definitely look much straighter now. Moreover, he confirmed that I did get 9cm of height increase right on the dot. I haven’t lost any feeling in my feet and I’m not bleeding excessively or anything.
I will continue to make more posts as I rehabilitate but I’m very grateful that everything went as well as it could’ve and the worst is behind me. I want to thank everyone in my life and in this thread who have been so supportive of me throughout this process. Your kindness means a lot to me!
Proud of you bro, wishing for a healthy rehabilitation, keep us updated on how your feeling🤞🏽
Awesome, let's recover and enjoy life!
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