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Posted on May 13, 2023, 6:15 pm
#1

I’m 100 going to Paley institute been reading a lot of diaries and just wondering home come the patients at the institute are not able to reach the full lengths. Like 8cm or even 5 tibia.


Can someone explain how live life taller will get people like 10cm, with their physical therapy, while it's considered rare or impressive to grow even 8cm at the paley? I know they say you shouldn't go past 8cm in the femora bone, but that's not the main question. I'm curious about what kind of physical therapy LLT uses to achieve such big growth being able to plow through pain at the 5cm mark, as it seems like a normal thing for them. It has something to do with the PT.

10 cm PT VS less than 8cm PT. HOW DIFFERENT IS THIS OTHER PLACES PT VS PALEYS PT.

My theory is that Paley's physical therapists work with a lot of kids, so they may not push as hard during therapy sessions. Compared to other places that do only adults and push harder. That could be the the actual reason paleys patients don’t reach the full length but the non American places blow past 8cm all the way to 10cm.

Just looking at programdudes diary and he even commands the nurses to push harder. And the nurses responses is “that not what we usually get.” That’s at paley instutute’s PT.

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Posted on May 13, 2023, 6:26 pm
#2

10cm is still quite rare even outside America. I suspect Paley restricts to 8cm because he wants to avoid any complications and preserve his reputation as the number 1 surgeon in the field.

Turkish clinics etc don't care as much and have much higher complication rates as a result, but of course you can roll the dice and get lucky. The difference is Paley will probably stop you from screwing yourself up, whereas in Turkey and other non-western places, the one who pays the piper calls the tune - basically it's up to the patient. Which isn't necessarily a 'bad' thing - I certainly don't think doctors are always right - but it does mean if you go to one of those places you need your head screwed on and be honest with yourself about your limits.

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Posted on May 13, 2023, 6:29 pm
#3

That is the best option to keep it around 8cm max for femor. The thing is most people a paley do t even make it to 8cm.

Yet at other places the patients make it to 10cm. It’s the PT that’s making the difference in this situation.

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Posted on May 13, 2023, 6:36 pm
#4

Quote from: Limbmail89 on May 13, 2023, 06:29:55 PMThat is the best option to keep it around 8cm max for femor. The thing is most people a paley do t even make it to 8cm.

Yet at other places the patients make it to 10cm. It’s the PT that’s making the difference in this situation.


The other thing is I do believe Paley uses precise nails, which have a limit of 8cm in the nail itself.

Using LON or some of the weight bearing albizzia nails (gnail, betzbone) there is no 8cm limit so it can be pushed a bit harder.

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Posted on May 13, 2023, 6:41 pm
#5

1. How do you know how many people reach 8cm with Paley? Did they share this info with you?
2. How do you know how many people reach 10cm with LiveLifeTaller? Did they share this info with you?
3. If you already know so much and confident it's because of PT, why are you asking us?

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Posted on May 13, 2023, 8:15 pm
#6

Quote from: p00293 on May 13, 2023, 06:36:37 PMThe other thing is I do believe Paley uses precise nails, which have a limit of 8cm in the nail itself.

Using LON or some of the weight bearing albizzia nails (gnail, betzbone) there is no 8cm limit so it can be pushed a bit harder.


Bingo.

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Posted on May 15, 2023, 9:21 pm
#7

Quote from: p00293 on May 13, 2023, 06:26:40 PMI suspect Paley restricts to 8cm because he wants to avoid any complications and preserve his reputation as the number 1 surgeon in the field.


There's a bit of truth to this. Furthermore the Nuvasive peeps have some hard limits at their nails and 8cm is pretty much around that limit. And this is the technology he's currently implementing.

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Posted on May 21, 2023, 6:54 am
#8

paley only offers precice for cll, which has a maximum stroke length of 80mm.

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Posted on May 21, 2023, 2:19 pm
#9

Quote from: junior006 on May 21, 2023, 06:54:46 AMpaley only offers precice for cll, which has a maximum stroke length of 80mm.


You would notice that the Precice 2.2 can actually be pushed past this upper limit; soft tissues permitting.

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Posted on May 21, 2023, 10:25 pm
#10

The Precice 2.2 itself cannot physically be lengthened past 8cm,  you could remove the screws, shorten the rod 2cm(i.e wind the rod backwards using the ERC)  then re-attach screws and lengthen a further 2cm.

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