i want to know too. it seems this patient was just doing his normal routine, walking a lot and going to PT and suddenly died?
what could he have done to prevent it? was he showing any symptoms at all but thought it was just because of his "flu" ?
honestly, im still very concerned about this and makes me want to reconsider doing Gnail in 2022..
Quote from: canterk on December 17, 2021, 04:59:09 PMi want to know too. it seems this patient was just doing his normal routine, walking a lot and going to PT and suddenly died?
what could he have done to prevent it? was he showing any symptoms at all but thought it was just because of his "flu" ?
honestly, im still very concerned about this and makes me want to reconsider doing Gnail in 2022..
Well, there is always risk in any surgery.
There was also thrombosis happened in Stryde nail after 2 months operation.
However, this patient was cautious and went for a check after finding his leg was swollen and painful.
Always check with the Doc or go for examination if the pain and swelling did not improve, do not assume it is normal for LL.
Generally speaking in life: If your fears or concern about something overshadow your hopes.
You should consider changing/postponing/cancelling your LL Plan.
Quote from: leoth2 on December 18, 2021, 09:19:33 AMWell, there is always risk in any surgery.
There was also thrombosis happened in Stryde nail after 2 months operation.
However, this patient was cautious and went for a check after finding his leg was swollen and painful.
Always check with the Doc or go for examination if the pain and swelling did not improve, do not assume it is normal for LL.
Generally speaking in life: If your fears or concern about something overshadow your hopes.
You should consider changing/postponing/cancelling your LL Plan.
We know that a surgery carries risks but what they (and me too) are wondering its :what could be been done and what will be done in case this happens to someone else .
Someone will have an embolism and we don't know who ,therefore knowing a way to detect/prevent it asap is key and that is what we are asking .
Maybe make it scans frequently?
Ll is panifull and it's like normal flu and covid , how can you 100% know what u are experiencing?
No one after such a trauma want to think at all the stuff we have to PLUS try to see any sign of embolism here or there because it's just unfair after all ..so we get it surgery has risks but what can we and the surgeon do to prevent those things from happening?
Sure that xeralto from day 1 till end of distraction and walking as much as possible are 2 factors, but what else to be more sure ?
Quote from: Masteryourlife on December 18, 2021, 10:57:25 PMWe know that a surgery carries risks but what they (and me too) are wondering its :what could be been done and what will be done in case this happens to someone else .
Someone will have an embolism and we don't know who ,therefore knowing a way to detect/prevent it asap is key and that is what we are asking .
Maybe make it scans frequently?
Ll is panifull and it's like normal flu and covid , how can you 100% know what u are experiencing?
No one after such a trauma want to think at all the stuff we have to PLUS try to see any sign of embolism here or there because it's just unfair after all ..so we get it surgery has risks but what can we and the surgeon do to prevent those things from happening?
Sure that xeralto from day 1 till end of distraction and walking as much as possible are 2 factors, but what else to be more sure ?
Self awareness of underlining illness or family blood clot history, daily sure of swelling or abnormal pain, breathing or chest pain.
Always tell Doc or go for examination if needed
Periodic Ultrasound scan for blood Clot helps for detection but again not 100% as the Clot can form within days.
We cannot be doing the scan daily.
There is no 100% protection net - what we can do is to minimize that hitrate of 1%
Quote from: overandover on November 09, 2021, 02:04:02 PMThey are brain dead. It happened in the 6th week of lengthening and he was only given 2 weeks of Xeralto (blood thinner). So far I've seen maybe 4 deaths from LL and all of them were from DVT/PE. One this, another that indian guy whose sister wrote the blog about it and another 2 were in India (1 African girl and 1 indian girl). Maybe there are more that are not public.
Were they all doing internal femur lengthening? I've always believed that internal femur is more dangerous and that more things can easily go wrong.
And to add, Dr. Catagni and Dr. Solomin have reported 1 death each from anesthesia complications the last time I talked to them. Maybe the number has increased since but I certainly hope not.
Quote from: LLSouthAmerica on November 18, 2021, 06:06:42 PMI find it tiring how a lot of people here try to justify all bad outcomes with "rare conditions" or "bad doctors"... this is a high-risk surgery, even when doing everything correctly there is a TRUE chance you may die. You have to make peace with it...
I'm not sure about that. It shouldn't be so dangerous especially for the tibias. It's far from internal organs like heart, lungs or brain. I don't think we should say there is a true chance of dying. But again, there is also a true chance that we may die on the airplane on the way to Athens.
Quote from: Resiliency on March 24, 2022, 06:14:07 AMWere they all doing internal femur lengthening? I've always believed that internal femur is more dangerous and that more things can easily go wrong.
And to add, Dr. Catagni and Dr. Solomin have reported 1 death each from anesthesia complications the last time I talked to them. Maybe the number has increased since but I certainly hope not.
I'm not sure about that. It shouldn't be so dangerous especially for the tibias. It's far from internal organs like heart, lungs or brain. I don't think we should say there is a true chance of dying. But again, there is also a true chance that we may die on the airplane on the way to Athens.
Hi dude
Forum Folks and you are not doctor, stop making your own assumptions.
Take the opinions or feedback as a guide not rule or yardstick for your decision.
The best option is to consult a few LL doctors and do full detailed body check up in your country hospital.
Every surgery will have risk, it is matter of quantify risk level and an individual Physical body conditions
You can classify the risk level of 3 out 10 is high, other may view it as low.
My Gnail pain level was low (2 or 3 out 10) since day one and my clicking was easy.
My Journey in LL was uneventful which was totally different what others Gnail patients feedback here.
You are smart guy and should determine what is amplification, dramatization and overstatement in this Forum.
In life, if your fears overshadow your hopes, you should cancel or change your plan.
Take Care!
Quote from: Bagga on March 27, 2022, 02:01:57 AMHi dude
Forum Folks and you are not doctor, stop making your own assumptions.
Take the opinions or feedback as a guide not rule or yardstick for your decision.
The best option is to consult a few LL doctors and do full detailed body check up in your country hospital.
Every surgery will have risk, it is matter of quantify risk level and an individual Physical body conditions
You can classify the risk level of 3 out 10 is high, other may view it as low.
My Gnail pain level was low (2 or 3 out 10) since day one and my clicking was easy.
My Journey in LL was uneventful which was totally different what others Gnail patients feedback here.
You are smart guy and should determine what is amplification, dramatization and overstatement in this Forum.
In life, if your fears overshadow your hopes, you should cancel or change your plan.
Take Care!
I'm not a doctor and I'm just pointing out the fact that most (if not all) of the cases that ended up real bad like this dead patient and Unicorn are from doing internal femur lengthening. And this consistency is too strong to be just a coincidence.
Low pain level doesn't mean safer.
Quote from: Resiliency on March 27, 2022, 03:26:14 PMI'm not a doctor and I'm just pointing out the fact that most (if not all) of the cases that ended up real bad like this dead patient and Unicorn are from doing internal femur lengthening. And this consistency is too strong to be just a coincidence.
Low pain level doesn't mean safer.
dun do it then
Bagga are there no new patients there right now? How come nobody is writing diaries or even updating them?
I would also like to know if there are any new patients after this unfortunate event happened?
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