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Posted on Oct 7, 2016, 4:02 pm
#221

My pleasure forum keeps me busy:). And btw for anyone wondering Sweden is right that just because my heel can touch the ground sitting with my foot on my flip flops doesn't mean I won't have ballerina while standing. I'm not allowed to stand so I listen to what they say so far they haven't steered me wrong and everything has gone smoothly so I will keep doing what they say. The reason I can't stand is the fixator can only hold about 60kg and I was about 68kg before surgery idk how much weight I lost and I don't wanna risk it. People under 60kg could stand but standing doesn't mean you won't get ballerina to avoid ballerina you have to stretch ALOT every single day even after you stop lengthening up until you start walking frequently so your muscles don't tighten up again from immobility. After I stop lengthening I have a month too keep stretching before I start walking with crutches so hopefully I won't have ballerina by that point or it won't be that bad.

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Posted on Oct 7, 2016, 5:14 pm
#222

The frames could stand 60kg when I was there too. Just as the IMnails.

Every day that goes and your not standing up is a day that makes your ballerina worse.

Trust me when I say that ballerina is a serious condition. It takes years to combat.

Your ankles will get used to this motionless statement and adapt to it and then stay like that. It is a complete war to get the ROM back in them.

You will regret it after 2-3 months when you feel the tightness all the time you stand up.

Remember, after frame removal you will get hard casts on your legs and then your ankles won't move AT ALL. It is absolutely devastating for them.

I lost 6 months just bc I didn't stand up. I trusted the physios in India.
There were guys that stood up and made it much better. I was afraid to break the pins if I stood up.

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Posted on Oct 7, 2016, 5:26 pm
#223

I believe you but I can't go against what the doctor has told me. I'm very aware at the seriousness of ballerina and I'm doing all I can to avoid/lessen it and the ankle thing is also true but I never expected this journey to be a breeze. They used to recommend standing but noticed ballerina still happened and lack of mobility in ankles for the moment is due to the pins in my ankles. I will be sure to excerise the hell out of them frames should be off October 26th. I don't think they put casts on your legs anymore but I will confirm that tomorrow

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Posted on Oct 7, 2016, 5:26 pm
#224

Agree with Sweden stand as much as you can, try each day just to stand as this will loosen off the tightened tissue. Try not to walk too much as imo this doesnt help. The reason is you arent really walking you are dragging your legs other than actually walking its pointless imo. You wont be able to walk until the frames are off anyway just work on getting that muscle tissue to being used to being on the ground.

Would be interested in knowing how exactly you work on your dorsiflexion, this is the biggest problem you will have with lengthening. If you overdo it on tibias you will completely lose dorsiflexion, once you lose that walking normally and being able to run or play sports will be a thing of the past. Id advise not going past 4-5cms if you are concerned for any of those things

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Posted on Oct 7, 2016, 5:37 pm
#225

As of right now for my Doris flexion I use a resistance band pretty much all day long. I also sit on the edge of my bed and place 10kg weights on my knees put the front of my foot on stacked flip flops (2" off the ground) and let the weight bring it down once my heel touches the ground I lift myself off the bed and lean my legs forward as if I was in a squatting position. I'm not an athlete I can't remember the last time I played sports I do like going to the gym. I doubt I will loose my dorsiflexio I would need some serious nerve damage for that to happen, it'll definitely need to be worked on but that's just one of the many things that needs to be done if you chose to do this surgery.

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Posted on Oct 7, 2016, 11:00 pm
#226

Quote from: Morissette on October 07, 2016, 05:37:39 PMAs of right now for my Doris flexion I use a resistance band pretty much all day long. I also sit on the edge of my bed and place 10kg weights on my knees put the front of my foot on stacked flip flops (2" off the ground) and let the weight bring it down once my heel touches the ground I lift myself off the bed and lean my legs forward as if I was in a squatting position. I'm not an athlete I can't remember the last time I played sports I do like going to the gym. I doubt I will loose my dorsiflexio I would need some serious nerve damage for that to happen, it'll definitely need to be worked on but that's just one of the many things that needs to be done if you chose to do this surgery.

take Sweden's words into consideration. its make a sense you have to walk (carefully) for blood flow. but am not sure what Precise patients should do, they can walk for 4-5 months so?

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Posted on Oct 8, 2016, 3:27 am
#227

Work your arms in the gym so you can bear most of the weight there while you stand.

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Posted on Oct 10, 2016, 3:41 pm
#228

Lengthening is still going well moving along. Little bit of pain in my tibias from time to time but nothing I can handle. Still clear of ballerina tho I'm sure I'll start getting a little soon. I'm doing my second surgery to get the frames removed on oct 26th my time was cut short due to a family member going ill. Physio is still tolerable but I've started to get ankle pains in the front of my left ankle my physio says it's due to the pin it's only nerve damage if I start having problems moving my toes or if the pain moves into my feet and toes. Can't wait to get this off my legs.

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Posted on Oct 10, 2016, 5:05 pm
#229

Oh I also got interviewed by a Spanish journalist today so I'm gunna famous. In Spain... lol

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Posted on Oct 10, 2016, 7:17 pm
#230

How much have you gained.

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