Yesterday was a rest day for me. Have reached 5.5cm today, just 2cm more to go.
Hope the path ahead stays a smooth one only.
Hope all other LLers are also doing well. 
My pain at the pin site is still the same. Though now that I have completed 5.5 cm and as planned the speed of traction has been reduced to 0.5mm per day, therefore, I am hopeful that the pain issue will also be resolved soon.
The republic day celebrations here in India were great just like our Malaysia and Singapore. This week there is a festival in India, so Harry has organized a party for all of us at his home. I am excited to be finally out for a formal gathering. I will also get to meet his beloved friend(his pet dog). Also, some of his friends are returning from Italy, so would be a really great occasion to meet so many new people. Just wish that I could have had this surgery done at least a month or two before so that I could have attended the party without my frames. Never the less with the frames or without them, I am planning to have a lot of fun.
Hope you people are also doing well. Winter is coming.....sooooon..haha
Keep going Adward!
Just wondering, did you go to Sarin for consult, did you even bother other doctors?
Also, I have always wondered, what kind of doctor are you 
!?
Quote from: Adward on August 23, 2018, 02:31:46 PMMy pain at the pin site is still the same. Though now that I have completed 5.5 cm and as planned the speed of traction has been reduced to 0.5mm per day, therefore, I am hopeful that the pain issue will also be resolved soon.
The republic day celebrations here in India were great just like our Malaysia and Singapore. This week there is a festival in India, so Harry has organized a party for all of us at his home. I am excited to be finally out for a formal gathering. I will also get to meet his beloved friend(his pet dog). Also, some of his friends are returning from Italy, so would be a really great occasion to meet so many new people. Just wish that I could have had this surgery done at least a month or two before so that I could have attended the party without my frames. Never the less with the frames or without them, I am planning to have a lot of fun.
Hope you people are also doing well. Winter is coming.....sooooon..haha
I wonder if you can do me a favour.
There was a LL patient on old forum called Crazy+6. He lengthened ALOT and last thing he wrote, he was still in a wheelchair. "Harry" knows him, was his caretaker.
Whats the status on Crazy+6? is he permanantly cripple?
Quote from: Arch on August 23, 2018, 04:21:15 PMKeep going Adward!
Just wondering, did you go to Sarin for consult, did you even bother other doctors?
Also, I have always wondered, what kind of doctor are you !?
As per US system of medical hierarchy: I am training to be a cardiothoracic surgeon but am right now a general surgeon. I wouldn't imagine myself consulting Sarin or any other doctor who wasn't listed in my relatives' list. Again I would repeat that my relatives are quite influential people and they had referred me to Dr. Sharma only after a thorough background check.
They also consulted doctors in the US where they were against the idea of CLL. They just said that it would hurt their reputation to do such a surgery on a healthy patient who isn't a dwarf and citing ethical reasons doctors in the US negated the idea of performing CLL. Then they contacted Dr. Paley's team as well but he just performed IM Nailing, something I was against of for Tibias.
I also did meet Dr. Pili's patients from Italy and I would say though patients from non-medical background wouldn't understand, his patients were some of the most unlucky ones. I would do it in US or India rather than going to Italy for LL. The medical system in Italy is really bad, even worse than Greece. Also, accountability of doctors seems to be a really low factor in Italy. You might find it hard to digest but Russia has a better system in place than Italy.
Hope this answers your question,
Quote from: tlannister on August 23, 2018, 08:50:54 PMI wonder if you can do me a favour.
There was a LL patient on old forum called Crazy+6. He lengthened ALOT and last thing he wrote, he was still in a wheelchair. "Harry" knows him, was his caretaker.
Whats the status on Crazy+6? is he permanantly cripple?
Sorry, no idea. You may forward your query to Harry himself. His contact info has been shared before. After being on this forum, I have been really amazed at the fact that how adamant and stupid some patients can be. Though from my experience a lot means years in rehabilitation. One might recover but never completely.
hey, was wondering if you are expereincing stiffness around AT?
hey adward, i will be going for external tibias with the ilazarov standard frames just like yours (although the build could differ).
But i wont be using the LON but only the external ilazarov fixators as i cant afford to travel out for surgery with higher costs. also im doing it locally here in pakistan from an orthopedic surgeon who has some experience with cll and this is what he offers.
wat would u advice me most in this circumstances, i know there are different pros and cons to different types of ll procedures and equipments used. i need to know wat i should be most careful about and also consider the most importance during this type of ll (external fixator only).
also wat would be the advantages for going this (oldschool) method if any.
p.s i hav no other options! 
Thanks!
Quote from: fivetenneeded2016 on August 24, 2018, 09:47:14 AMhey, was wondering if you are expereincing stiffness around AT?
If you mean anterior tibialis muscle, then no.
Quote from: Sanity on August 24, 2018, 12:47:41 PMhey adward, i will be going for external tibias with the ilazarov standard frames just like yours (although the build could differ).
But i wont be using the LON but only the external ilazarov fixators as i cant afford to travel out for surgery with higher costs. also im doing it locally here in pakistan from an orthopedic surgeon who has some experience with cll and this is what he offers.
wat would u advice me most in this circumstances, i know there are different pros and cons to different types of ll procedures and equipments used. i need to know wat i should be most careful about and also consider the most importance during this type of ll (external fixator only).
also wat would be the advantages for going this (oldschool) method if any.
p.s i hav no other options!
Thanks!
See if I have to say just off the top of my head, then one of the advantages would be that no nailing will be done, which means out of all procedures performed for CLL, it is considered as the minimally invasive one.
I don't want to discourage you by saying all the disadvantages, some of them might be hard to digest, but if you want I can still list out. Let me know
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