Am I guinea pig lol..? Tibia with Precice 2 in Oct 2021 after femur with Stryde

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i think over 5cm is pretty dangerous.

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Quote from: hello321 on December 29, 2021, 02:28:33 AMcongrats on the 5 cm. 5 cm are great; nail damage and complications are dangerous.

So far I don’t have any complications expect numbness which is very common and not a concern. I have no pain at all and I’m still flexible enough to continue lengthening, so it’s disappointing if I have to stop because of the nail… But you are right 5 cm is great and I should stay positive. Thanks!

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nail clicking is not pre-consolidation. The sign of pre-consolidation is severe pain when lengthening with the ERC device according to my surgeon.

Also congrats on reaching 5 cm!

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Dec 29, 2021. Lengthening day 72:
I took xrays today and both nails had the same length. The right nail was supposed to be longer than the left by 3mm, but they didn’t see the 3mm difference from xrays, which meant the right nail was lengthening less. The good news is at least it’s still lengthening. Today I saw Dr Miller because Dr Robbins was on a honeymoon. My physiotherapist never heard of Dr Miller either. She’s probably new because she’s not even listed on Paley’s website. She examined my ankles and said they were too tight and she couldn’t even get them to neutral. I felt she only gave a gentle push to my feet so I showed her I could easily get to 10 degrees by pulling my feet using strap. She still wanted me to slow down from 0.75 mm to 0.5 mm, and said I was not at risk of pre consolidation now. I knew it didn’t hurt to slow down but I wasn’t convinced because I could easily get my ankles to 10 degrees with strap, and could even do better if I had time to stretch my legs for 1-2 mins. (Unfortunately I didn’t stretch before seeing doctor today). Later she asked opinion from Dr Paley and he agreed with slowing down. I was already at 5.3 cm so they probably just wanted me to do it as safely as possible. I will slow down to 0.5 mm until next appointment.

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did he mention the risks of developing complications, ballerina foot, or other stuff over 5cm? I am thinking of doing it but am not willing to trade off my health; will make a consultation with him to address these concerns.

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Quote from: hello321 on December 31, 2021, 08:12:55 PMdid he mention the risks of developing complications, ballerina foot, or other stuff over 5cm? I am thinking of doing it but am not willing to trade off my health; will make a consultation with him to address these concerns.

I’m not worried about complications since they already examined my legs and allowed me to keep lengthening. They are monitoring my legs weekly. It’s true most people were stopped at 5 cm or even 4 cm at Paley’s institute, but everyone is different. I agree it’s best to speak to the doctor to address any concerns.

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Hi SuchLL thank you very much for doing this detailed diary of your lengthening, as someone hoping to do two segment lengthening with Dr Paley in the near future this is very helpful. I can't wait to read your future posts 

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Jan 5, 2022. Lengthening day 79:
I’m at 5.7 cm today. Dr Robbins examined my legs and wanted me to stop lengthening for a week. Unfortunately my lower legs were getting tight exponentially. Getting to 6.5 cm isn’t as easy as I thought with the precice nails. (should be easier with stryde nails since stryde patients can just stand all day to stretch). He also stopped another femur patient who was at 5 cm for a week. I think they are extra cautious right now since they just operated on two patients who lengthened too much to fix complications. My initial goal was only 5 cm so 5.7 cm is already great.

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Quote from: SuchLL on January 05, 2022, 06:28:52 PMJan 5, 2022. Lengthening day 79:
I’m at 5.7 cm today. Dr Robbins examined my legs and wanted me to stop lengthening for a week. Unfortunately my lower legs were getting tight exponentially. Getting to 6.5 cm isn’t as easy as I thought with the precice nails. (should be easier with stryde nails since stryde patients can just stand all day to stretch). He also stopped another femur patient who was at 5 cm for a week. I think they are extra cautious right now since they just operated on two patients who lengthened too much to fix complications. My initial goal was only 5 cm so 5.7 cm is already great.

Sorry to hear you are getting so tight, but in the grand scheme of things a week off might not be the worst thing and you have time to improve flexibility and heal a little. Do you know if they offer Botox as a treatment to temporarily weaken the muscle, so you can get a little more stretch?

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Quote from: 6CMFemurs on January 05, 2022, 06:43:04 PMSorry to hear you are getting so tight, but in the grand scheme of things a week off might not be the worst thing and you have time to improve flexibility and heal a little. Do you know if they offer Botox as a treatment to temporarily weaken the muscle, so you can get a little more stretch?

I’ve never heard of Botox as treatment so I didn’t ask. Another reason I got tight so quickly was that I overstretched and hurt both legs. It became more painful to stretch so I couldn’t stretch that hard.