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Posted on Mar 20, 2016, 5:59 pm
#1
Hi everyone,

      So I have left Barcelona after staying there for 70 days post operation, and I will continue to lengthen for 2 more weeks. At first I was unwilling to do a diary as it could be time-consuming and prone to privacy issues, but the dairies on this forum had always been an inspiration for me before and post op, so now I would like to give some recount of what I've been through with this surgery and with Dr. Monegal.

Basic info: Starting height, 168.5 cm. Goal. 6.5 cm. Weight, 60 kg. Age, early 20s.

1-7 days post op: I didn't encounter any severe pains that many people described in their diaries. The nurse gave me painkillers, but I never had them, except for the analgesic that went through the tube in the first 4 days. The main issue for me was the inability to constantly move around my legs, which I always do for all these years, and even as I'm typing this post. The uncomfortabiltiy with this almost went to 4-5 out of 10 at night, but I still generally had good sleeps averaging 7 hours. I had CPM sessions three days post op, and before I left the hospital, my leg was at 105 and right leg 90, which contrasts sharply considering that I cannot bend my both legs more than 70 degrees now, which let me wonder whether the cpm machine was at a different scale or my bending got worse after that.

8-70 days post op: The reason I group these days together was that there weren't a lot things to write about. On day 8, the day I left hospital, I had huge bruising appearing on the right side of my right leg. That night my pain level reached 6 and was the highest pain level I've experienced so far. The bruising was followed by a bleeding incident three weeks later after intense stretching due to hematoma, but there was no pain at all, and a week later it was gone and I started heading to the pool for the first time. I will post pictures later. Every week I would do pt sessions three times with pt Claudio and went to the pool once or twice. He was very caring. I had a good time with him. At my apartment (at MIC) I bought a little bicycle that's like 50 euros and I usually do it for 30-60 minutes every day. Since I'm lightweight, Dr. Monegal said I can stand. On day 68, I bought a pair of forearm crutches and took a walk on the street for 30 minutes, there was no pain or tension. After that, I totally ditched my wheelchair and only go out with crutches. I lengthen my femurs at a rate of 0.81 mm per day. I've never gone to 1 mm because I'm comfortable with 0.81 and I do have some time for this surgery.

Pain level: 0 except for the bruising incident night and 30-40 days post op for an hour after the last distraction. I thought that I should do three distractions within 8 hours, but it turned out that it is 7-8 hours apart, so after it clarified, no pain after the last distraction anymore. Pain level was sometimes 1 or 2 on my left knee (more like the tendon connecting the kneecap and quadriceps) after exercise, but will generally calm down within 30-60 minutes. As a result, I have never taken any painkiller except for the anti-inflammatory Enantyum after the bruising incident.

Sleep: since I don't usually have pain, My sleep is no different from usual, averaging 8 hours every night.

The biggest concern: knee bending is my biggest concern. I'm now at 70 degrees for both legs. It's not the muscle tension that's preventing me from bending, but rather the outer sides of the legs next to the quad tendons (immediately higher than the knees). When I bend, I can feel (touch) a strip of hardness protruding from underneath at that sites. Another possible cause is my bad knee positioning even before the surgery. Basically, when I bend, my knees will rotate outwards, so when I'm wearing pants and bending my knees, they will appear to align with the outer sides of the legs instead of being in the middle. As a result, if I run a lot my knees usually hurt badly, and I have to wear knee-straps for that matter.

Dr. Monegal: Dr. Monegal is usually quick in response, which I think is a pros over other more famous doctors. He would come to MIC to check his patients regularly and would take me to do x-ray every three weeks. Most time he would resolve my concerns and problems, but there were a few times where I felt that some of concerns were left resolved. But based on the dairies I've read, I think he does better than many other doctors.

I may have left out some other aspects. If you have questions, feel free to post them.
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Posted on Mar 20, 2016, 6:32 pm
#2
how many days after surgery did you begin the lengthening? You still need to install the second rod? How many cm did you achieve already? Is the gain noticable when walking around since you came back home?
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Posted on Mar 21, 2016, 7:03 am
#3
TIBIKE200,

7 days after surgery. There is no need for the second rod. I'm now at 5.7. Yes, people say I'm taller. Most seem to attribute it to natural growth, but one person did come to me and said, "You didn't break your knees [sic] and got leg lengthening, uhh?." I was like, shoot, have it become so widely known already? Of course I said no, no. Awkward, awkward. For me subjectively, I do feel like I'm on high-heels. You get a better FOV (does it apply to settings beside games?) and everyone seems shorter somewhat.
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Posted on Mar 21, 2016, 7:17 am
#4
Quote from: SnD on March 21, 2016, 07:03:58 AMTIBIKE200,

7 days after surgery. There is no need for the second rod. I'm now at 5.7. Yes, people say I'm taller. Most seem to attribute it to natural growth, but one person did come to me and said, "You didn't break your knees [sic] and got leg lengthening, uhh?." I was like, shoot, have it become so widely known already? Of course I said no, no. Awkward, awkward. For me subjectively, I do feel like I'm on high-heels. You get a better FOV (does it apply to settings beside games?) and everyone seems shorter somewhat.

Why you dont need the other rod? Monegal doesnt only do 1 leg at a time?
  Are you satisfied with your new height?
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Posted on Mar 21, 2016, 8:04 am
#5
Hey there,

thanks for sharing you experience, much appreciated! Bilateral Femur Lengthening with Dr. Monegal

may i ask how is your flexibility before doing CLL?
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Posted on Mar 21, 2016, 9:14 am
#6
The first and second pictures show the extent of bruising that occurred 8 days post op.

Bilateral Femur Lengthening with Dr. Monegal
Bilateral Femur Lengthening with Dr. Monegal

The third picture shows the bleeding from hematoma as a result of bruising three weeks after the episode. It healed in a week.

Bilateral Femur Lengthening with Dr. Monegal

The blue circle of the fourth picture shows the area where it gets hard when I bend my knees. I don't know if it relates to my bad knee bending. The same for right leg. In the red circle, where the bruise can be seen (always there since 7 days post op when I first noticed it), in the place where pain goes to 1 or 2 after exercise involving knee bending, but will generally calm down quickly. The right knee has no such problem.

Bilateral Femur Lengthening with Dr. Monegal
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Posted on Mar 21, 2016, 9:20 am
#7
Images are very large. Please right click on them and open on another window.

Hyong,

Before the surgery, I can touch the floor with both my palms, keeping my legs straight. My hands can reach over my toes a little bit when I sit and keeping my legs straight. But I cannot open my legs very wide, maybe 120 degrees.
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Posted on Mar 21, 2016, 9:25 am
#8
TIBIKE200,

He prefers doing it that way, but he has no problem doing two legs at the same time (bilateral).

Yeah I'm pretty satisfied. If the nails were to stop distracting now, I will have no complain.
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Posted on Mar 21, 2016, 9:27 am
#9
Quote from: SnD on March 21, 2016, 09:25:20 AMTIBIKE200,

He prefers doing it that way, but he has no problem doing two legs at the same time (bilateral).

Yeah I'm pretty satisfied. If the nails were to stop distracting now, I will have no complain.

Which country are you from?
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Posted on Mar 21, 2016, 9:30 am
#10
Quote from: TIBIKE200 on March 21, 2016, 09:27:45 AMWhich country are you from?
China
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