Bilateral Internal Tib/Fib and Bilateral Internal Femurs with Dr. Mahboubian.

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MirinHeight,

My insurance does not cover any of the hospital bill.

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Hi Everyone,

I flew into Burbank today for my Tib/Fib second post-op and femur pre-op. I'm ready for my femur procedure. I had my second x-ray at Dr. M's office and was informed that my bone growth is not so good. He measured my distraction at 1.5 cm but I measured it at 1.35 cm. He said there's little or no bone growth in my fibula bone. Therefore, I'm reducing my lengthening to 2x a day at .25 mm each for 5 days then resume to my usual routine. I don't know how this is going to work as I will be having my femur procedure in 2 days. I'll lengthen 2x a day tomorrow then resume 3x a day on Monday. The days (Thursday, Friday, Saturday, and Sunday) that I don't lengthen due to my femur procedure I'll just consider them as I'm lengthening 2x a day.

Dr. M prescribed the same thing for my femur procedure: Norco and Xarelto. I called 6 different pharmacies and none of them has the amount for Xarelto that I need. The most I can get is 12 pills which I filled. I'll ask Dr. M to send the RX to the same pharmacy in my hometown for the rest.

Dr. M. also prescribed me Silica to aid with the bone growth in my Tib/Fib. I'll update everyone about the femur procedure soon.

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Sorry to hear about your bone growth Optimistic1  Hopefully that rest period while you have your femur surgery will allow for some bone to start forming. I'm sure it will all work out. Great luck with your 2nd surgery!

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Success with the femurs... did the doc gave you possible reasons for the non-growth? And can I ask you about whether you smoked a lot in your pre-cll life or had a bad diet or something else maybe related  to not forming new bone? Or is it just genetics?

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short2fall,

Thank you and I'm hoping for the same thing too. I'll keep everyone posted and provide suggestions I might have in improving my situation.

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Hi Honore,

Dr. M didn't tell me the cause of the slow or non-growth of my bone. He said it looks better in the Tibia bone than the Fibula bone. My concern was fast consolidation so even though this is a problem it's not as problematic. I have already rearranged everything at my company to allow me to be away for 8 months. So far, most of my employees are very cooperative and I just gave everyone a bonus before I left yesterday. This gives me the peace of mind to continue on with my journey. I prefer a slower lengthening rate to prevent any possible complication. I read somewhere that the ideal rate for lengthening is .66 mm a day. I could be wrong.

I don't smoke or drink. My diet is average but I've been taking a lot of supplements (7 different supplements ) every day. I used to work a lot so sometimes I'd skip lunch or have a very late lunch or just 1meal a day. It's tough growing a business at where I live, let alone growing a successful one. Breakfast is not part of my diet. However, I used to juice everyday and used to drink 2 large glasses of 6 different fruits daily.

It could be genetics and that could be the explanation as to why I wasn't able to grow as tall as my dad (6 feet) or my brother (5'10). Lol. I will everyone posted of my femur procedure.

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Hi Optimistic1,

Hope you're well overall.  Wishing you all the best with your femur procedure, is that tomorrow or next week ?  Please reach out if you need anything while in town.

I'm sorry to hear about your current bone growth. One of Dr. Ms other patients who happens to also be a physician recommended a supplement called bone builder which I want to look into and take when I'm about to finish lengthening.  You might want to check it out.

Here is one I saw:https://www.vitaminshoppe.com/p/garden-of-life-grow-bone-system-algaecal-240-capsules/gu-1128?mr:trackingCode=152E5D84-C9E0-E511-80ED-00505694403D&mr:referralID=NA&sourceType=sc&source=SHOP&acqsource=adlucent&utm_source=Shopping&utm_medium=CSE&utm_campaign=Garden%20of%20Life&utm_content=GU-1128&gclid=EAIaIQobChMI_fLnours2QIVBp7ACh35qAPcEAQYCyABEgKLsvD_BwE

Wishing you all the best!

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Hi LAGrowin,

Thank you for the recommendation. I’ll definitely look into it. My surgery is this week. Hopefully, it won’t be too bad.

Optimistic1

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Quote from: Optimistic1 on March 15, 2018, 12:24:27 PMHi LAGrowin,

Thank you for the recommendation. I’ll definitely look into it. My surgery is this week. Hopefully, it won’t be too bad.

Optimistic1

Sincerely hope that surgery went well for you Optimistic1.  My thoughts with you for a smooth recovery.

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Hi Everyone,

I had my femur surgery on Thursday (3.15.18). Dr M. almost cancelled my surgery because I was not supposed to be taking Ibuprofen but I did for 3 weeks straight every day for 3 pills a day or even more. Basically, Ibuprofen causes one's blood to be thin and the body will bleed excessively during and after surgery. It will also slow down the healing process. He told me to come back in a month. I was already on the surgery table. I felt so bad. My primary care doctor told me to take Ibuprofen to help with the pain while keeping the Norco at 1 every 4-6 hours. I told him I couldn't afford any down time and I'd sign a waiver. He finally agreed and called in a blood transfusion tech just in case.

During the surgery, he lowered by blood pressure and everything went well. I didn't bleed as expected and had my blood drawn the next day. The results came back great. Dr. M is very good in this field. My tib/fib procedure was tough but oh boy, the femur procedure was at least 3-4 times worst. Whatever LAGrowin went through, I went through almost the exact same thing. The pain was so bad that 4 shots of dilaudid right after the surgery didn't help. I was still in so much pain. My pain was very bad for another 4 hours. However, Dr. M took me off the dilaudid the very next day to transition me to Norco. The pain was so bad that I had a fever a least 3 times. The only positive thing this time around is that I was able to pee after about 2-3 hours whereas I wasn't able to for 1-2 days last time.

I was immobile on Thursday and Friday. I had no control of my legs and getting to the edge of the bed to pee was a challenge. I'd be sweating like a pig every time I attempted to get to the edge of the bed to pee. Most of the nurses recognize me and call me brave for doing 2 procedures just one month apart. I know this is not a good idea but I can't afford anymore downtime. I need to get back to work as soon as possible.

I improved a little bit on the second day. I trained myself to pee in the urinal while waiting for my femur procedure and being able to pee in the urinal is extremely helpful. The driver from Affinity came pick me up today. I'm now at the hotel with my mom and sister. I can finally get on and off the bed by myself. The process takes a lot of time and effort. My pain is currently manageable with Norco. The pain in my femurs is so intense that I don't even notice the pain in my Tib/Fib anymore. Hopefully, the pain will continue to be manageable for days to come. I forgot to mention I had a really good nurse for both surgeries and she truly made the process less painful.