Bilateral Internal Tib/Fib and Bilateral Internal Femurs with Dr. Mahboubian.

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Great result. Sounds like you have a great outlook and life anyway and this can make it even better

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Hi Everyone,

Just a quick update for everyone. Things are getting better in my professional life. Everyone at the firm is up and running. I enjoy working with the new crew a lot. They work hard and respect me a lot more than my old employees did and not rolling into the office in a wheelchair helps.

I went to True Religion and bought some new jeans last night. They only have 1 inseam and that is 34 in the entire store and it fits me so I don’t need to alter it. It is such a great feeling that only short guys like us can testify to. In the past, whenever I bought a pair of pants I would have to shorten the length or it won’t fit.

I gained about 20 lbs so I went from 145 to 165. I know a lot of CLL patients lose weight during the distraction phase. I didn’t eat a lot but I was taking Ensure protein every night and drinking 3 different types of milk daily. Plus, I was drinking the silk chicken soup mixed with herbal medicine every other night for 4 months straight.  This type of chicken soup requires a lot of work that takes about 4-6 hours each day and my mom was nice enough to do that for me. She bought the highest grade herbal medicine to cook with the silk chickens. I think that’s why I was gaining weight instead of losing it. I’d recommend this to future CLL if you want to maintain your weight. I went to the DMV this morning to change my weight and height on my ID. I listed myself as 165 lbs and rounded up my height to 6’0. It is an amazing feeling.

To recap, I started using a cane on November 5 and got rid of it by November 20 (roughly 2 weeks). My gait was horrible at first but it’s getting better every day. I think I might be able to have a normal gait by the end of December. I started having pain in the inner part of my lower right tibia where the screws are. I think it is because I’ve been walking a lot and over exercising. I do about 20 minutes of stationary bike in the morning and afternoon plus 5 minutes of treadmill in the morning and 22 minutes in the afternoon. I walk around my building and to lunch during the day at work. I walk to other places like restaurants and malls on the weekend. If I don’t walk or walk less, I don’t have any pain. If I walk a lot then the pain kicks in at around 4:00 pm until I fall sleep at around 11:30 pm. The pain is about 1-2 out of 10. If I put my right leg down on its side then the pain goes away. Not bad, just bothersome. For the CLL veterans, did you experience the same thing? If so, how long did it last? What did you do to avoid exacerbating it? Thank you very much.

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Good that the risk you took turned out well for you Optimistic..I will be going for internal femur sometime..May be with Dr M,Paley or Dr R...I am starting at 166 cm and I am aiming 173..(I am realistic and not optimistic )But I will have to give it some time before I take the plunge due to other career/personal issues that are plaguing me right now..

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that's so cool bro, glad everything turned out in your favor

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any updates Optimistic? been a while ! how are you man? PM me I have some questions for you regarding Mr. Mahboubin just quickly lol! thanks

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Bumping an old thread. Optimistic1, you are truly amazing. Somehow you were in the depths of hell and even with non weight bearing nails precice 2 you still did quadrilaterals (at the same time!), got more than 5.5 inches, went to fk.ing work during distraction, ran your business, and didn't quit. My god this is an exemplar diary. Also shows how difficult quadrilaterals are, I could tell that you are a way above average PT and stretcher yet quadrilaterals was still too overwhelming for you. With this knowledge, im definitely not going to do simultaneous quads.

Bumping the golden threads.

If you want to update us Optimistic1, feel free. But I know you're living the life now- you probably shouldn't come back here, like many successful LL patients dont either. Amazing!