Hey Sunshine! How is it going, buddy? Any news? It would be extremely helpful if you could give us a quick update on your status. Stay strong, brother!
Sky
Quote from: Skyisthelimit on September 27, 2020, 07:56:57 PMHey Sunshine! How is it going, buddy? Any news? It would be extremely helpful if you could give us a quick update on your status. Stay strong, brother!
Sky
Hey Sky,
here are some updates since my last post.
09/14/2020 - 3.3cm
I'm starting hitting the wall!! My quadriceps get tighter and stiffer with each day passing by especially when waking up in the morning. They keep pulling even at rest after distraction. The tension on the thighs appears after each distraction and the pain is almost unbearable at night! It takes a toll on my sleep, I keep tossing in my bed trying to find the least painful sleeping position, alternating between back and stomach positon the whole night. And I can't slow down lengthening to relieve my soft tissues cuz my Doctor says my callus formation is good and urges me to keep distracting 1mm/day. I'm not even half way of my target and my thighs are already stiff like a rock lol. If my soft tissues are just stretching instead of effectively growing then I wonder how I'm gonna reach my target which seems so far away, I still have 4.7cm-47 days to go and that looks like an eternity!
10/01/2020 - 5cm
I somehow survived the last 15 days and reached 5cm! Each day of distraction is now a bonus and it's just a matter of time before my quads lock up and won't take any more distraction! How the hell did all these people make it to 8cm 😂 I'm entering my last month, the last stretch of my journey, 30 days to go and I'm now in an unknown territory! Each coming distraction of 0.33mm could be my last one ever! The pain, the pull on the thighs at night especially after the last distraction before going to bed is horrible! This is gonna be the longest and most fascinating October of my life!
Talk to buldu about doing .75mm a day and stretch the fk outta your thighs... Push maybe 10 more days or15, you will love it... It's all bonus anyways...
Thank you sunshine ☀️☀️☀️☀️☀️
I think 6cm is a good middle ground for you wanting to keep athleticism and getting some good height, you will be 178-179cm which is guuddddd ☺️👍
Yeah ghkid2019,
that 0.75mm slow down crossed my mind since I started struggling at 3.3cm 2 weeks ago. Unfortunately Dr. Buldu already said that day that my callus was unbelievable lol and going lower than 1mm was not fit for my case! He repeated again today that my callus is excellent so slowing down distraction is definitely not an option for me 😞 I stretch my thighs the whole day even on my bed while watching my phone lol. The weird thing is the tension on the quads during daytime is somewhat bearable. But it turns into a throbbing pain after the last distraction of the day before I settle for bed and it keeps pulling on the front and side of my thighs the whole night. I can feel my thighs are under tension and hard at the touch! Note: I don't take that much pain painkillers at my disposition. I may now start relying on them for this last stretch.
I would settle for 179cm but it would be cool to hit that symbolic 180 lol
Hey Sunshine! Your callus formation looks incredible, like Dr. Buldu said. The alignment also looks very nice. 5cm is already a nice gain, but I’m sure you have some fight left in you. Keep pushing, bro. Apply some warm compression to your thighs to try and relax the muscles. Maybe after each PT session you or someone else can massage your thighs for like 20 minutes. Try to look for ways to relax your soft tissue. Stay strong!
Sky
Thanks Sky!
I will try all tricks to survive these last 30 days! How did these people reach 8cm even 10cm with some doctors ?! That's insane lol. I just woke up, it's 5am and my thighs are hard like a rock. I have to start my first distraction of the day in 2 hours and it already freaks me out lol
Hey Sunshine,
Were you flexible before you started surgery? Anyways hope everything turns out okay and please try to be safe with distraction.
-brondo
Hey brondo,
I was uber flexible pre- surgery lol. But that doesn't mean post-surgery. It's up to me to keep up PT with distraction. Each coming distraction is now a challenge for me, trying to survive every .33mm gained lol
Quote from: Skyisthelimit on October 02, 2020, 12:11:40 PMThe alignment also looks very nice.
I think Dr. Buldu cut my bones very nicely lol
Quote from: Sunshine on October 02, 2020, 01:33:29 PMHey brondo,
I was uber flexible pre- surgery lol. But that doesn't mean post-surgery. It's up to me to keep up PT with distraction. Each coming distraction is now a challenge for me, trying to survive every .33mm gained lol
I know you and I are very much alike. You will go all the way to 8cm my brother. Please don't hesitate. If necessary, do extreme stretching, that even you (in addition to your muscles) get a big surprise each time! focus on stretching. Don't mess up too much with your quads, but the rest, please go extreme as much as you can. But know your limits. If you feel like any stretch is slowing you down, cause it's creating more pain, then take it easy on that, and do extreme on those that do not create lasting pain. You've got this. We will do this together.
Don't fight the pain. Have your painkillers. This is tough even with painkillers, but for a typical CLL'er in pain, it seems impossible to do this without painkillers.
Please check my diary, on some suggestions I had to relieve pain. E.g., sit in a hot jet/hot bathtub for at least an hour, after every distraction session or two! Please double check with your doctor first, on every suggestion I have or others have made.
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