Chatted with my USA doctor who did my CLL. I sent in an x-ray I took on 5/30 (60mm) and he just got a chance to look at it today. Office said something is slightly wrong and the nail is cracked. Told me it will need to be replaced but it is insured. On the x-ray I didnt see much other than the fact my right nail seems to be lengthened a bit shorter than the left one?
I'm so confused, doctor will call me in 3 days, but the suspense on whats going on is killing me. Never had a fall or any issues, I always use my walker. This is Precise 2.2 on my femur.
They even told me to continue to lengthen as normal, "but the rotation will get worse."
I have no idea what this means, if anyone knows what to expect or has something similar happen please let me know. This was not a complication I expected. I'll have more info Saturday but for now I don't seem to have much more access. It doesn't seem urgent enough and want me to continue to lengthen normally, yet the nail needs to be replaced?? will I need another friggen surgery
Quote from: Yau on June 01, 2023, 01:17:14 AMSorry to hear that your nail is cracked. Would u mind to show your X ray pic here? Therefore maybe someone can give u some suggestions. I think u should stop lengthening now. Or u consults one more doctor as soon as possible.
Hope everything is going well! Best Wishes!
They told me to keep lengthening as normal and I can keep putting partial weight (50%) on it, and doctor will speak with me in 3 days. Likely he will need to replace the nail (for free).
I think none of you had the surgery because you're supposed to put weight on it and use a walker unless youre over 180 pounds. Even at paley or any other US institute (at least with the 12.5mm nail)
Quote from: slowed & reverb on June 01, 2023, 04:26:25 AMi mean if you think a walker can take up 50% of his weight during every motion 
theres a reason why most people with precise were bound to wheelchair 24/7 during the lengthening phase. personally i will never get off my wheels when im gonna get the surgery done.
this is false lol
Quote from: hippo60 on June 01, 2023, 02:53:54 PMWhat's your weight and how many steps (roughly) you were taking each day / were told is ok?
Started at 155 but pretty much 147 ish post surgery and maintained that. Taking maybe 0.1 miles of walking a day on average, I didn't have a limit. The nails can bear my weight so walk as much as I want as long as i'm off loading half my weight per leg. You've done surgery, you know how we walk on the walker so the weight bearing part was not the issue. There's gonna be a bad apple in the bunch and I happened to get the bad nail.
Quote from: hippo60 on June 01, 2023, 05:17:23 PMHonestly I'm not so sure about it. Personally I'm heavier (170-180ish) so despite having the largest nails I'm still over, and didn't use the walker much (just a few steps to transfer).
I think some doctors are just more conservative than others. I'm pretty sure Rozbruch wouldn't let you walk as much. I know he's ok with walking maybe 100 steps a day for lighter patients. And yes, I'm sure some people got away with walking more, but it doesn't mean it's worth taking the risk.
Thats how your bone heals better..with added pressure down. Thats why there's much more non unions in stryde than precise 2. Yeah at 180ish it's too heavy to bear the risk. 150 and lower you're supposed to walk. Also whats the difference between 100 steps and 500 steps for the nails. It's not like more steps means your nails will break, it's only if when it hits the threshold of what it can hold that it breaks. The nails advertise as 75 but we all know thats a conservative limit when the nail is extended to 8cm. And only your weight above the ostetomy counts as the weight that is added on the nail. Your 2 legs weigh like 30 pounds too
I'm just saying I highly doubt a couple walks on the walker at 147 pounds contributed to the crack. I just want top know what to expect next tbh, i dont get a phone call with the doc for another 2 days.
Quote from: hippo60 on June 01, 2023, 06:31:00 PMI know it encourages bone growth but it doesn't mean you should do it. One of the best doctors in the field (if not the best) thinks it matters but I guess you know better. There is a difference between 100 and 500 steps, it's more pressure on the nail, which can cause the nail to bend.
Yeah well my nail is not at all bent, it's as straight as Andrew Tate. There's a small crack on the bottom that wouldnt be caused by putting too much weight on it lol. And it's only in 1 nail.
yeah cause most doctors will tell you to do some walking if youre 155 or under (on the largest diameter nail). This is an extension of your PT. You need muscle and you need semi pressure on the bone for it to grow stronger.
Quote from: Hagane on June 01, 2023, 09:03:26 PMi did tibias so i think my nail was the second largest diameter. any ways the point i was trying to make was even with tibs and a smaller nail, my nails are still perfectly fine. its unfortunate that your nail has cracked. but like you said, it might not be from weight bearing. it might just be a defect of that particular nail.
but yeah im 100% in agreeance, early mobilization has been imo such a big contributor to the ease of lenghtening
it blows my mind that some people end up spending essentially their entire lengthening period wasting away in a wheelchair. Then when its time to consolidate they have to spend so much more time retraining their gait
Some people have to if they're 200 pounds. But the ignorance of people who have NOT done limb lengthening and are just perspective patients that sees on the website that they only bear 75 pounds of weight so if you put 76 pounds of weight on it, the nail breaks, is just plain stupid. Passing false information and not helpful to the question I asked.
Anyways - I'll update on the situation. I think the curious part is WHAT happens when the nail breaks because of a non patient error. I did not fall or walk without a walker so if I do need a nail replacement, I should not be liable for it. But we'll see what they do.
If this was in Turkey, 100% I'm out of luck and Halil Buldu will blame it on me. But this is a large USA clinic (amongst one of the popular 6, so we'll see). They bet there will be legal consequences if they handle it poorly.
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