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Posted on Jan 23, 2018, 3:25 am
#61

Quote from: Tiger9898 on January 21, 2018, 09:06:29 PMI am thinking about external femur. What do you think how much experience does Dr Kulesh have on that? By the way, are you doing LON on your femur or LATN?
He has plenty of experience which is why i trusted him and ended up going thru with this surgery. Dr soloman is the one who does the nailing tho and hes has alot of experience also. Together i think they make a great team of surgeons. I am doing LON on the femur.

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Posted on Jan 23, 2018, 3:34 am
#62

I arrived to St petersburg Russia yesterday morning at around 10:30am. My surgeons assistant Roman was there to assist me and help me with my stuff from hospital to hotel. Plane ride was really exhausting. Its a nightmare to fly for 12+ hours and not be able to fully extend your legs with these frames on. I think i got like 2 hours of sleep the whole time so as soon as i got to the hotel i slept for id say atleast 15 hours. Best sleep ive had this whole ll journey haha.
Anyways in a couple hours Roman will be here to take me to the hospital where i will have consultation then xrays and then dr kulesh will set the hexapods for correction and then xrays again. I will be staying at the hospital after that. Again guys sorry for not keeping up with this diary on a daily basis from the beginning but if theres any questions you guys have ill be glad to answer them!

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Posted on Jan 23, 2018, 7:16 am
#63

Thanks for updating your diary)  I talk to Dr Kulesh and Dr Solomin via mail. And it seems their both prices are the same. I want to do external femur and dr Kules said me thay it is better to do each leg separately  othetwise it will be difficult.  And  I have question to you in terms of accommodation.  What do You think should I stay in hospital during lengthening (it is very expensive)  or I can rent room? If i rent room, I don't know who will change my bandage or come for phototherapy.  I should go to hospital every time for those?

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Posted on Jan 23, 2018, 8:28 am
#64

Quote from: Tiger9898 on January 23, 2018, 07:16:10 AMThanks for updating your diary)  I talk to Dr Kulesh and Dr Solomin via mail. And it seems their both prices are the same. I want to do external femur and dr Kules said me thay it is better to do each leg separately  othetwise it will be difficult.  And  I have question to you in terms of accommodation.  What do You think should I stay in hospital during lengthening (it is very expensive)  or I can rent room? If i rent room, I don't know who will change my bandage or come for phototherapy.  I should go to hospital every time for those?
Yes i would suggest 1 femur + LON or LATN. After distraction lock in the nail and start the process with the second femur right after. Obviously itll take longer than you want but doing 2 femurs at a time will be rather umcomfortable honestly probably not doable since the frames are rather bulky and not comfortable. May i ask how much do you plan on lengthening on femur?
If i were you i would deffinately stay in hospital. They help you with using the restroom, cleaning yourself, and provide you with food. If you rent a room you will be all by yourself and it will be really hard. Who will bring you food or cook for you? I came home for dristraction but always had either my wife or sister prepare my food for the day and i would be alone and just use my wheelchair to move around and take the food out the refrigerator and heat it up and eat. You have to think about all those things. Saving money is good but at the end of the day you have to really plan how you will go about your day to day tasks is not easy well for me atleast it wasnt. You will be doing 1 femur at a time so it might be easier for you. I would suggest try to go about your day with 1 crutch on one side to get the feeling and see if your able to care for yourself.

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Posted on Jan 23, 2018, 9:20 am
#65

Staying in hospital really going to be expensive as they advise me to rent a house.  But as u said,there should be someone to take care of me. I am thinking about 6,5 cm. I was thinking that dr Kulesh will be less  expensive than dr Solomin. But I am surprised that prices are same.  And I have one more question to you, is your ilizarov Apparatus full ring size? Or it doesn't have back side? Because Dr Kulesh told me that it is conventional

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Posted on Jan 23, 2018, 2:55 pm
#66

Quote from: Tiger9898 on January 23, 2018, 09:20:03 AMStaying in hospital really going to be expensive as they advise me to rent a house.  But as u said,there should be someone to take care of me. I am thinking about 6,5 cm. I was thinking that dr Kulesh will be less  expensive than dr Solomin. But I am surprised that prices are same.  And I have one more question to you, is your ilizarov Apparatus full ring size? Or it doesn't have back side? Because Dr Kulesh told me that it is conventional
6.5 is very doable but yes staying that long will be extremely expensive! Dr solomin had gave me a price for surgery at medem and visa help around 3 years ago and when i contacted dr kulesh last year he gave me a more reasonable price but surgery would be at st elizabeth hospital which is cheaper and i found my own visa company in my hometown. My apparatus is 2 full ring size at the lower part where distraction takes place and modified pieces at the top of my femur. Your able to sit but you have to sit either on the edge of chair or on a really squishy surface. Laying down on your back will be no problem as the frame doesnt get in the way.

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Posted on Jan 23, 2018, 3:01 pm
#67

Where St Elizabhet is located? I haven't heard about that and u mean staying in hospital can be cheaper in st Elizabeth or I can bargain price a little bit? I want to stay under the control of doctor during distraction period and after that I will rent house.  And thing that makes me frustrated is not being able to seat comfortably or not being able to bend down for 9 month( if I choose external femur only)

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Posted on Jan 23, 2018, 3:50 pm
#68

Quote from: Tiger9898 on January 23, 2018, 03:01:07 PMWhere St Elizabhet is located? I haven't heard about that and u mean staying in hospital can be cheaper in st Elizabeth or I can bargain price a little bit? I want to stay under the control of doctor during distraction period and after that I will rent house.  And thing that makes me frustrated is not being able to seat comfortably or not being able to bend down for 9 month( if I choose external femur only)

Ulitsa Vavilovykh, д. 14, Sankt-Peterburg, Russia, 195257
eliz.spb.ru

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Posted on Jan 23, 2018, 4:21 pm
#69

Quote from: Tiny on January 23, 2018, 03:50:51 PMUlitsa Vavilovykh, д. 14, Sankt-Peterburg, Russia, 195257
eliz.spb.ru
Thank you, I guess it was the one for local people, medem is designed mostly for foreigners,but price is affordable in elizabeth)

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Posted on Jan 23, 2018, 7:34 pm
#70

Quote from: Tiger9898 on January 23, 2018, 03:01:07 PMI haven't heard about that and u mean staying in hospital can be cheaper in st Elizabeth or I can bargain price a little bit? I want to stay under the control of doctor during distraction period and after that I will rent house.  And thing that makes me frustrated is not being able to seat comfortably or not being able to bend down for 9 month( if I choose external femur only)

I don't think Jim was suggesting bartering, but that staying at St. Elizabeth is cheaper compared to MEDEM.

You could stay at an apartment close to St. Elizabeth, which would be cheaper than either hospital. And if you ever have problems, just contact Dr. Kulesh as he'll be local. You'd be getting regular x-rays every week or two anyway.

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