Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.

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But he doesnt use it in every patient?

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Quote from: wannagrowtaller on February 02, 2019, 08:52:40 PMBut he doesnt use it in every patient?
''

That's a good question.  He might have during my surgery.  He said that my bone growth was good.  I'll ask him during my next visit and let you know. 

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Can you send me links about this stem cell treatment for faster consolidation?

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Hey fullstryde, how are you doing ?

I just watched this video of Dr Mahboubian's channel:

It's Alex's story, which one i appreciate. He went from 5'3'' (1,61) to 5'6.5'' (1,69), with Dr Mahboubian's accompaniment...

When i was watching it, i remembered of your story. So more and more curious i have got

I got some questions:

1. Does Dr. Mahboubian just operates people (in this case, i mean men) who are really short, like under 5'3'' only ?

2. I have done some researchs about Vitamin K, So i figured out this Vitamin makes the calcium go directly to the bones and teeths, vitamin D just regulates the calcium absorption, but it does not send the calcium necessarily to the bones and teeths, is this true ?

3. How about your tibia ? Do you consider do a lenghtening again, but this time on tibias ?

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Quote from: Jubartt169 on February 04, 2019, 01:24:21 AMHey fullstryde, how are you doing ?

I just watched this video of Dr Mahboubian's channel:

It's Alex's story, which one i appreciate. He went from 5'3'' (1,61) to 5'6.5'' (1,69), with Dr Mahboubian's accompaniment...

When i was watching it, i remembered of your story. So more and more curious i have got

I got some questions:

1. Does Dr. Mahboubian just operates people (in this case, i mean men) who are really short, like under 5'3'' only ?

2. I have done some research about Vitamin K, So i figured out this Vitamin makes the calcium go directly to the bones and teeths, vitamin D just regulates the calcium absorption, but it does not send the calcium necessarily to the bones and teeths, is this true ?

3. How about your tibia ? Do you consider do a lenghtening again, but this time on tibias ?

Hi Jubartt169,

1.  I'm happy to answer your questions Jubartt and I hope you're doing well!  Dr. M will operate on most heights. He identify's a mans desire for height as an indication of his height dysphoria and is trying to provide support to resolve that.  Doesn't appear that he has a restriction as to the height he will operate on.

2. I'm not sure on your second question.  If you find out; please PM your answer.

3.  I may lengthen tibias after some time.   My current surgery will increase me to 5'3+ or 5'4+...which is a big difference from 5'1. One more surgery may bring me to 5'6 or 5'7.  I will consider it.

Best regards to you! Feel free to ask more questions or provide feedback.

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Day 31 - One Month Post Op - What a special experience this is - [2.112 Centimeters Taller]

Well, today marks the conclusion of the 1st month for me with the CLL process.  It's been a special month.   

I'll be very direct to begin my post:

Pain: When resting and not applying movement and pressure to legs Pain is  1 - 2.  Barely any pain while not using the legs.  When placing weight on legs and being more active/mobile such as during stretching or really testing the legs.  I'm at a 3-4.   Sometimes, If I'm not being careful, I can experience a 5+ pain when I am applying undue pressure in a manner that my body isn't quite ready to deal with yet.  Toughest movement at this time is rotational movement and/or circular type movement of the legs.  Forward and back, as well as side to side is fair or better.   I believe the healing process of the IT bands especially, create the sensitivity here. Will take some more days to resolve.

Walking: Today, i tested walking without a walker for the first time and of course I had people there to support me and prevent any falls.  I was able to take fully weight bearing baby steps.  My balance and leg strength is not in a place to start take authoritative steps; but the Stryde nail will support you unassisted. On the walker, I'm taking big lunging steps and getting around very easily.  Another advantage of Stryde nail... I am only using the walker to balance me.  I am using 100% of my body weight which allows me to better recovery my legs.   Overall my legs still need to build strength. I predict that the coming weeks will bring that strength. 

Physical Therapy: 1 Week Self PT, 3 Weeks Home PT, and now I'm doing a progressive outpatient PT at a clinic.   So far, the experience has been great.    Do the stretches all day and show up to every PT session with the Pro.

My Height Progress:  As of today I am 2.112 centimeters taller by my count.  Interestingly enough based on my Stadiometer, I'm right at 1 inch taller; so maybe I'm actually taller than I thought I was; or my count is off. Either way, Ill be officially "1 GIANT inch" taller in 4 days.   What I feel?  Okay from them mental stand point; 1 inch is a huge difference; especially when you haven't grown since age 13.   I can feel a big difference as I stand next to my sister who was about 1.5 inches taller then me. Once I reach and advanced beyond her height it will be fun to experience. She is rooting me on.  As mentioned before, my Mom passed away in 2015 and my Dad passed way just this pass December. My Dad wanted to be here to support me through this... but he didn't make it.  My Sister has been my rock and my supporter; so guys...its a great help to have someone by your side through this tough process.   Now, physically, I feel stretched...lol.  It's not to tough yet; but at 2cm, at least for me, you can feel the rubber started to go "boing, boing".  I have 120 degree range of motion when flexing my knee at this time and I can straighten my leg; but the tightness can be felt when I stand and walk.  I will be working as hard as I can to maintain an honest flexibility to get through this.   

Dr. M Review so far: Great Doctor. Answers my emails within 24 hours or  less.   Friendly man, smart, and keeps a cool head.  He knows this process is tough and he'll encourage you to get through it.  He wants whats best for your body and for your height dreams too.    Really, the "Surgery" is the most important part of the process with CLL.  If the surgery is done right; you're just time and PT, some effort away from your dreams.  I had no swelling, my legs were clean and all bruising was gone and I can just say that I feel like the surgery was done properly.   Now, it's on me.  I have to stretch and withstand the pressure.  I'll do my best!

This experience has been something special.   I want to emphasize that Styrde nail is the way to go.   I would be in much worse shape right now if I was confined to my wheel chair and not able to stand full weight bearing.   With this nail you can at least stand, full weight, up and down to do things like shower, brush your teeth, etc.  After some weeks; you should be able to walk unassisted.   Make sure you have a care giver during the first few weeks to help and before you go forward, think through all the supplies you will need so that they are ready to go from day 1.  I will begin working on a master list for future LL'ers; so that they can check off as they go. 

Thank you guys. AND do you have any questions? Please feel free to take advantage of my experience.  When I was on the other side looking in; I just wanted to know so  much about what I was getting my self into. I'm willing to answer anything you guys ask...I want to help you. I know how important this is to you.

Best Regards, and I'll be back with more updates.

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Interesting, i think doing on tibias is not a bad idea, as long as you do not exceed your limits. If my opnion has some worth for you, I would not go above 5cm on tibia in myself, i have seen some stories of patients who did above 6cm on tibias and some of them have complications later: nerve pain, permanent damages..etc. I think 4cm on tibia would be great and safe, but thats just my opnion.

About the vitamin K, i think it's important you do your own research about it and do your own conclusion. Especially the Vitamin K2. But here are some links below so you can have a summary. If you have a free time, i recommend you check it.

https://www.healthline.com/nutrition/vitamin-k2#functions

https://www.drstevenlin.com/vitamin-k2-benefits/

https://www.todaysdietitian.com/newarchives/060113p54.crapml

https://www.lifeextension.com/magazine/2008/3/Protecting-Bone-And-Arterial-Health-With-Vitamin-K2/Page-01


As you doing the lengthening process, which consists in breaking your leg bones, Vitamin K2 would be good, once you have a good vitamin D and calcium levels. Basically, the vitamin K2 is the ''GPS'' of calcium. It grabs the calcium of soft tissue and takes it to the teeths and the bones. According some studies of the calcium, it has no ''GPS'', he goes to the valve of the heart, he goes to the coronary, he goes to the kidneys, he may does renal complications, he goes to the liver that causes calcification hepatic, he goes to the brain... he does not necessary go to the bones. So the Vitamin K2 is recommended if you want strong teeths and bones, that's what medicine says.

Otherwise, our body is too very complex, and maybe, when your brain ''know'' you have broken bones, it grabs the calcium (which is in your supplementation or even in those part of the organs) of the calcium stock and takes it to bones, which in your case is broken and need to be healed. So, maybe Vitamin K2 is not that worth once your brain do this work... I have been studying a lot of medicine and nutrition, but i cannot claim what can happen in this case. So, before you try anything, do have a chat with your Doctor. Ask him about the vitamin K2 and if is it necessary in your case. But i can do claim that you can do supplementation of vitamin K2 after the consolidation of the bones. Most people have no vitamin K1 deficiency, which one helps blood, but most part of people have Vitamin K2 deficiency, this vitamin is a very important one to your bones and teeths.

I didn't PM you because i think it's important people know that. The vitamin K is not as that known as it should be nowadays..

Send me a me a message whenever you want..

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@Jubartt169 - Thank you for taking the time to present this! Excellent information. I will definitely ask my doctor for his thoughts.

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Quote from: InFullStryde on February 04, 2019, 10:28:53 PM@Jubartt169 - Thank you for taking the time to present this! Excellent information. I will definitely ask my doctor for his thoughts.

There we go. Hope to receive an answer as well.

Good luck in your journey.

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Day 32 - Journey Continues - [2.178 Centimeters Taller]

Greetings LL'ers,

Well not much to report as I am now in a full fledged LL routine.  I'm over 2 cm and just a few days from my first inch.  I'm starting to feel some tightening; but still have good range of motion.  Physical Therapy does a good job with massage as well as stretching me out.  One thing about PT is they see pain as an opportunity and not something to avoid.  Case and point... I have some rotational pain with my right leg; so my  PT goes and rotates that baby! Lol. Slowly; but he wants me to push through it. It's important to stretch it out and begin to push through soreness.   I'd say I'm still getting stronger every day.   There is always something going on with one leg or the other; but so far, I can report that each day; an overall improvement can be seen in leg strength and flexibility.   Guys, I'll report back again tomorrow. So far so good on this journey.