Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.

Edit Post

Hello man
Are you thinking do 7 cms? Plis if you could see my pm that will be wonderful!

Edit Post

Quote from: zlRadamanthys on March 11, 2019, 07:52:08 PMHello man
Are you thinking do 7 cms? Plis if you could see my pm that will be wonderful!

Hi Rada, I answered your PM. Have a look when you can.

Right now, I am not sure how far I will go.  I am taking it day by day right now.  My Doctor says I am doing well right now and suggests I keep going.  I will monitor myself closely in the coming days.

Edit Post

Day 67 Post Op - Journey Continues [5.4 cm or 2.126 inches Taller!]

Greetings LL'ers,

Today was pretty good.  Oddly enough, I slept pretty well through the night and I did not experience any tightness pain.  I was tight; but it wasn't the awful tightness pain that I had been experiencing in the mornings.  I was able to sleep a good 5-6 hours without waking up so that is a nice rest which I needed.  I'm hoping that tonight is the same for me.  I am approaching the finality of the distraction phase.  Taking it one day at a time. Each day that I make it past at this point is a bonus millimeter.  I'm observing my body closely and keeping close mind of what could be my limit.  At this point, I see 6.5 cm or more as a real possibility but you just never know.  Future CLL'ers ...know this...during phase 1 you will wake up with brand new surprises each day...Your left leg will hurt on Monday and great on Tuesday.  Random Hip tightness...then it goes away...Knee hurts at night..then it disappears....its all very random. You just need to keep it going, stay strong and not give in. Go after your goal.  I honestly, wasn't sure I was going to get much past 5cm; but I can see now that all the hard work of PT pays off.  PT and practicing your walk (with crutches, walker, or unassisted), really goes along way to ensure that you reach your height lengthening goal.  I'll be completely honest...I'm about ready to be done with this phase..lol. It's already been over 2 months and I'm ready to focus on consolidation and rehab...but I have a little ways to go before I settle and I will not quit before it's time! Wish me luck, guys.

Pain: No pain at all really; other then muscle stiffness discomfort.

Flexibility and movement: As mentioned before, I'm very mobile on crutches, I can walk short distances unassisted  (Frankenstein looking walk). For all intents and purposes, I could live my life normally; but just on crutches. I'm at the 2 month point and I could, with confidence, resume my life.  I haven't tried driving yet; but I feel like I could do it easily.  I'm going to hold off however, until my bone is consolidated.  I do have one additional note on movement...My upper left hip is very tight. I believe it is actually  my quad; but it's where the quad and hip meet.  My goodness its tight... PT is working on it with stretching and a massage device. We'll get that back under control here.   Once again, just another random CLL thing that you have to deal with on your journey.

Today's' Activities: 1 Pro PT Session, 1 Self PT Session, 1 bow flex workout

CLL Symptoms:
 
- Very tight muscles such as hamstrings, quads, glutes, hips, etc.
- Slight 2-4 degree bend of right leg (difficulty straitening) I am able to straighten when flexing
- Slight 1 degree bend of left leg (difficulty straitening). I am able to straighten when flexing
- Slight Duck Ass. I am able to straighten back when flexing

We keep it going strong, guys.  1 mm at a time.

Talk soon and Best Regards,

Edit Post

What's your height now?

Edit Post

Quote from: Canon on March 12, 2019, 04:40:39 AMWhat's your height now?

I started my journey at a little over 5'1".  I'm 5'3.5" now.

Edit Post

Quote from: InFullStryde on March 12, 2019, 03:03:47 AMDay 67 Post Op - Journey Continues [5.4 cm or 2.126 inches Taller!]

Greetings LL'ers,

Today was pretty good.  Oddly enough, I slept pretty well through the night and I did not experience any tightness pain.  I was tight; but it wasn't the awful tightness pain that I had been experiencing in the mornings.  I was able to sleep a good 5-6 hours without waking up so that is a nice rest which I needed.  I'm hoping that tonight is the same for me.  I am approaching the finality of the distraction phase.  Taking it one day at a time. Each day that I make it past at this point is a bonus millimeter.  I'm observing my body closely and keeping close mind of what could be my limit.  At this point, I see 6.5 cm or more as a real possibility but you just never know.  Future CLL'ers ...know this...during phase 1 you will wake up with brand new surprises each day...Your left leg will hurt on Monday and great on Tuesday.  Random Hip tightness...then it goes away...Knee hurts at night..then it disappears....its all very random. You just need to keep it going, stay strong and not give in. Go after your goal.  I honestly, wasn't sure I was going to get much past 5cm; but I can see now that all the hard work of PT pays off.  PT and practicing your walk (with crutches, walker, or unassisted), really goes along way to ensure that you reach your height lengthening goal.  I'll be completely honest...I'm about ready to be done with this phase..lol. It's already been over 2 months and I'm ready to focus on consolidation and rehab...but I have a little ways to go before I settle and I will not quit before it's time! Wish me luck, guys.

Pain: No pain at all really; other then muscle stiffness discomfort.

Flexibility and movement: As mentioned before, I'm very mobile on crutches, I can walk short distances unassisted  (Frankenstein looking walk). For all intents and purposes, I could live my life normally; but just on crutches. I'm at the 2 month point and I could, with confidence, resume my life.  I haven't tried driving yet; but I feel like I could do it easily.  I'm going to hold off however, until my bone is consolidated.  I do have one additional note on movement...My upper left hip is very tight. I believe it is actually  my quad; but it's where the quad and hip meet.  My goodness its tight... PT is working on it with stretching and a massage device. We'll get that back under control here.   Once again, just another random CLL thing that you have to deal with on your journey.

Today's' Activities: 1 Pro PT Session, 1 Self PT Session, 1 bow flex workout

CLL Symptoms:
 
- Very tight muscles such as hamstrings, quads, glutes, hips, etc.
- Slight 2-4 degree bend of right leg (difficulty straitening) I am able to straighten when flexing
- Slight 1 degree bend of left leg (difficulty straitening). I am able to straighten when flexing
- Slight Duck Ass. I am able to straighten back when flexing

We keep it going strong, guys.  1 mm at a time.

Talk soon and Best Regards,

Good to hear you had a good sleep session. Good sleep is truly heaven even for those that are not doing LL; did you buy the latex foam?

Reading from your post it seems like your head is in the right direction but do allow me to give you some suggestion. It's good that you're intent on adding to the bonus but I really don't think 6.5cm is the absolute limit for you. I strongly think you should aim higher, a lot higher, perhaps 7.5cm-8cm

I say this because what you are going through right now, the pain, the discomfort, the psychological anxiousness on getting to the day when you no longer have to lengthen and have a hint that things will be far better in the near future. Well better than all those is a stronger height, if 5'3.5 was a huge change for you I am sure that being almost 5'5 will be even greater. I think you should aim that high because
1) you already put loads of effort into it
2) you had your IT bands released
3) its expensive af and you're able to work remotely anyways so you're not exactly losing on finances by staying home and lengthening
4) you're not bored

Like look at me. I'm a pure external patient, I had no release done and my goal is 7cm on my tibia alone which is a shorter bone than femurs. I fully believe I'll be able to achieve it and with ease. 6.5cm for your femurs is an entirely realistic goal, mine is a higher goal and of course the higher you go the higher the complications you get but you're doing so well right now, you have a great doctor and state of the art nail inside you, I don't think you'll regret it; Dr.M is right by your side.

Props to you for doing internals by the way. Me personally can't stand the thought of having an internal nail flown through my bone canal so I respect those that muster the courage to do it. And also lengthening on the femurs is much harder than tibias

Edit Post

Quote from: makeme6ft on March 12, 2019, 11:09:54 PMGood to hear you had a good sleep session. Good sleep is truly heaven even for those that are not doing LL; did you buy the latex foam?

Reading from your post it seems like your head is in the right direction but do allow me to give you some suggestion. It's good that you're intent on adding to the bonus but I really don't think 6.5cm is the absolute limit for you. I strongly think you should aim higher, a lot higher, perhaps 7.5cm-8cm

I say this because what you are going through right now, the pain, the discomfort, the psychological anxiousness on getting to the day when you no longer have to lengthen and have a hint that things will be far better in the near future. Well better than all those is a stronger height, if 5'3.5 was a huge change for you I am sure that being almost 5'5 will be even greater. I think you should aim that high because
1) you already put loads of effort into it
2) you had your IT bands released
3) its expensive af and you're able to work remotely anyways so you're not exactly losing on finances by staying home and lengthening
4) you're not bored

Like look at me. I'm a pure external patient, I had no release done and my goal is 7cm on my tibia alone which is a shorter bone than femurs. I fully believe I'll be able to achieve it and with ease. 6.5cm for your femurs is an entirely realistic goal, mine is a higher goal and of course the higher you go the higher the complications you get but you're doing so well right now, you have a great doctor and state of the art nail inside you, I don't think you'll regret it; Dr.M is right by your side.

Props to you for doing internals by the way. Me personally can't stand the thought of having an internal nail flown through my bone canal so I respect those that muster the courage to do it. And also lengthening on the femurs is much harder than tibias

Love this post, MakeMe6ft.  A true motivating push in late innings can go along away.  I appreciate it and thank you.  You are right on every point. I'm going to push this as far as I can go.

Edit Post

Day 68 Post Op - Journey Continues [5.5 cm or 2.165 inches Taller!]

Greetings LL'ers,

Another day in another way. Woke up with a bit more pain and stiffness than last night.  Most of the pain was actually felt in the areas at which the bone gap exists. As you extend past the 5cm mark, you can really feel the sensitivity in the weaker zone of your bone.  It was a bit prohibitive for me as it related to moving around.  After a good morning warm up, I was fine; but nevertheless...its another thing to expect with CLL.  I continue on.  I'll be at 6cm by the end of the weekend.   What a journey this is.

Pain: No pain while resting; however when walking and turning in bed, I can feel soreness pain in the areas where the bone gap is.

Flexibility and movement: Very tight and flexibility is not good. I need to continue to work in every area in order to manage the affects of lengthening.  With about 1-2.5 cm left depending on how far I decide to go; Ill need to continue to stretch, stay loose as possible, and walk/strengthen if I want to make it to the end with  my goal in tact. I backed off unassisted walking today.  Will allow the soreness to settled in.

Today's' Activities: 2 Self PT Session, 15 minutes walking session,  8 hours of remote working

CLL Symptoms:
 
- Very tight muscles such as hamstrings, quads, glutes, hips, etc.
- Slight 2-4 degree bend of right leg (difficulty straitening) I am able to straighten when flexing
- While sitting, my legs are bending at about 95 degrees. I need to get this back below 90.
- Slight 1 degree bend of left leg (difficulty straitening). I am able to straighten when flexing
- Slight Duck Ass. I am able to straighten back when flexing

We keep it going strong, guys.  1 mm at a time.

Talk soon and Best Regards,

Edit Post

Day 69 Post Op - Journey Continues [5.6 cm or 2.2 inches Taller!]

Greetings LL'ers,

Once again another day has passed.  Today was a productive one for me.  Worked, Worked Out, PT'd, etc,etc. I will say though that at this phase of the lengthening I'm really feeling it.  The muscles are soooo stretched, wayyyyyyy tight, and they are sore.  I contacted Dr. M's office and requested a refill on my Tramadol because I can tell I'm going to need pain medication If I plan to eclipse the 7cm mark.  I have settled my mind on making it to at least 6.5cm (2 1/2 inches), however, I will push toward 7cm+ (2.75"), which would officially put me at 5'4...A BIG change from 5'1".  Ultimately however, it is one millimeter at a time.  Send your positive thoughts guys. If anyone could use a couple of these inches, it's me! Ha ha!

Pain: Remember all those days in a row when I reported no pain? Well it's baaaaaaaaack.   Its not the type of pain that existed back when I first started this procedure; but it's more of a weakness pain that comes when your muscles are being stretched. Remember, when a muscle is stretched it is similar to a rubber band..it loses strength.   Also, I have sensitivity in the bone zones where the gap currently is; so I'm not able to freely walk around. Legs tire easily...keep in mind however that this too subsides quickly as the soft tissue adjusts in the coming days.  What I'm going through is just the true reality of CLL when you get to the higher inches.     I'm keeping a close eye on my ROM right now and other symptoms.  As long as my symptoms are "manageable" and not severe, I will continue to lengthen, so long that it's not against doctors advice.

Flexibility and Movement: Very tight overall, however I did feel improvement in the leg straightening, as well as quad tightness.  The PT has been working hard on my hips and glutes. They know that is my weakness right now.  I am able to walk unassisted, meaning, I can take Frankenstein duck looking steps.  I prefer to weight bear with crutches.

Today's' Activities: 1 Self PT Session, 1 Pro PT Session 15 minutes walking session,  8 hours of remote working

CLL Symptoms:
 
- Very tight muscles such as hamstrings, quads, glutes, hips, etc.
- Slight 2 degree bend of right leg (difficulty straitening) I am able to straighten when flexing
- While sitting, my legs are bending at about 95 degrees. I need to get this back below 90.
- Slight 1 degree bend of left leg (difficulty straitening). I am able to straighten when flexing
- Slight Duck Ass. I am able to straighten back when flexing

We keep it going strong, guys.  1 mm at a time.

Talk soon and Best Regards,

Edit Post

Can you slow down your rate of lengthening to .75 mm a day instead of 1 mm a day? That might ease the pain a bit.

Is there a way you can work less and devote more time to PT? It really makes a huge difference.

Do you ride a stationary bike before doing PT? 10 minutes on a bike makes a HUGE difference for your muscles. Muscles should be warmed up before stretching.