Diary - January 2019 - In Full Stryde with Dr. Mahboubian of North Hollywood.

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That's so awesome man! comes to show how big of a game changer Stryde is. excited for my turn

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Quote from: Movie on April 28, 2019, 01:48:51 AMThat's so awesome man! comes to show how big of a game changer Stryde is. excited for my turn

You might even be walking sooner than me, Movie! I'll keep you posted on how everything goes!   

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Haven't been here in a while but just stopped by specifically to check your progress. Wow. Amazing.

First, congratulations. You definitely deserve this.

A couple questions:
Did they say when you're expected to walk normally/if you'll ever walk normal like before surgery?

Does your butt look different nked? I always imagines it would stretch the bottom part of your glutes and look abnormal. Am I wrong?

Thank you for posting your journey!

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IFS-

I've expressed my opinions & concerns about Dr. Mahboubian, but the forum needs more videos, particularly now with STRYDE and its weight bearing capabilities, so thank you for posting this video. I hope you continue to post videos and other STRYDE patients post videos during the entire lengthening & recovery process.

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Quote from: psilocybe on April 28, 2019, 08:53:38 AMHaven't been here in a while but just stopped by specifically to check your progress. Wow. Amazing.

First, congratulations. You definitely deserve this.

A couple questions:
Did they say when you're expected to walk normally/if you'll ever walk normal like before surgery?

Does your butt look different nked? I always imagines it would stretch the bottom part of your glutes and look abnormal. Am I wrong?

Thank you for posting your journey!

Good morning psilocybe and thank you for checking in on my status.    The day of "normal walking" is always a big mystery and very unique to each individual so it appears.  Based on my conversations with the CLL doctors; the consensus is at around 6 months.  I tend to believe them since my walk is starting to improve each day.  My official 6 month point will be July 1st; so this leaves me about 2 months to smooth out my current walk.  I'll continue to update on status and post more videos as a progression milestone is reached.

Thank you again man and talk soon,

-IFS

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Quote from: Leggs on April 28, 2019, 01:14:51 PM


IFS-

I've expressed my opinions & concerns about Dr. Mahboubian, but the forum needs more videos, particularly now with STRYDE and its weight bearing capabilities, so thank you for posting this video. I hope you continue to post videos and other STRYDE patients post videos during the entire lengthening & recovery process.

Glad to be able to assist the community with actual visual data!  I will definitely continue to keep the community posted on how I'm doing and will upload additional videos as I continue to grind through the recovery phase. 

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Fantastic diary dude. You're an inspiration to us all

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(Sunday) Day 114 Post Op - Day 22 Consolidation/Recovery Phase - DISTRACTION COMPLETED....[7.5 cm Achieved / 3 inches Taller!]

Greetings CLL'er's,

Not much different to report today.  I'll mention that the trend of "continuing to feel better each day", continues.  It's a literal thing. Once you stop lengthening and you continue to stretch and walk; your muscles start to adjust and you begin to feel more flexible each day. I'm still tight and I still have soft tissue soreness; but each day it gets better.  I'm not uncomfortable at this point.   I'm 100% unassisted walking at this time. This includes walking at home, at work, and at the gym.  I can't walk too far or very quickly yet; since I'm still a bit tight, my muscles tire out a bit early and my APT is causing some lower back fatigue. Nonetheless, each condition is getting better, bit by bit.  I am walking 6000+ Steps her day at this point.  As I type this I'm at 6275 steps.  I'll keep pushing this number as time wears on. 

My Regiment at this time:

Stretch and Strengthen 2 X per day at home (Morning and Evening)
3 Formal PT Sessions at the Professional Clinic per Week, Monday, Wednesday and Friday
Walk 6000+ Steps per day
Walk around, 5-10 minutes every 30 minutes, during the day

====

Thank you again for all your kind words and support.  Honestly, this journey would be more difficult without the LL Community here to report to.   I'll keep everyone posted.

All the best,

IFS

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Hey IFS,

you're diary is really motivating for us future CLLers.


I want to ask you about your diet.

supplements vitamin or just daily eating regimen so far?

maybe you mentioned it earlier and I just missed it.


What's your water intake like ?

Anything special because man you're bone healing is spectacular. Textbook surgery right here.

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Quote from: Bosnian2018 on April 29, 2019, 07:40:27 AMHey IFS,

you're diary is really motivating for us future CLLers.


I want to ask you about your diet.

supplements vitamin or just daily eating regimen so far?

maybe you mentioned it earlier and I just missed it.


What's your water intake like ?

Anything special because man you're bone healing is spectacular. Textbook surgery right here.

Hi Bosnian,

I appreciate the good thoughts and comment.  I will say that I have been very strict and committed to my supplements and eating habits.  Here is what I have been doing every day since surgery:

Supplements:

Vit C, Vit D, Silica, Vitamin K and Calcium and drinking lots of Milk.
2-3 Protein shakes per day mixed with Milk 
I used a meal delivery service called Freshly.com.  It's not cheap, but it kept healthy meals coming in throughout the process without me thinking about. I didn't have the energy or interest to cook during this process.

This isn't related to digestion, but I created a fairly seamless experience for myself which was key to mental health. Worked from home, lived close (45 minutes) to the Doctors office, worked out on a home gym machine to help maintain the upper body, continued to see family and friends fairly regularly.  In the event that you are traveling to your Doctor, I advise creating a simulated and virtual situation where you can stay in touch with career, friendship, health, and wellness. I know that each of these things impacts the body over a 12 to 24+ week term.   Another thing that was helpful is that I created another 6-month goal that was not related to CLL but ran concurrently alongside CLL.  In this way; CLL didn't become too overwhelming as a focal point of my life. 

Anything I would have done differently?

I'll go into detail on that very soon, but I advise that you go outside and take walks (crutches, walker, wheelchair, whatever you can tolerate at the time)  in the sunshine and fresh air at least once a day. I didn't do this so much at the start, but my quality of CLL life and my healing actually improved quite a bit when I started to do this around month 2. 

I hope this helps.  Thanks again,

IFS