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Posted on May 3, 2019, 4:21 pm
#21

If you truly have a spinal headache, it is caused by spinal fluid leaking from your spinal tap site--not necessarily outside your body--you may not see the leak.  The leak results in low cerebral-spinal fluid which presents with symptoms of a headache, especially when upright.  Spinal headaches usually go away on their own but can last a couple weeks.

Hydration (drinking lots of fluids or taking fluids via IV) and consuming caffeine can help.

If hydration and caffeine do not improve things; then, you may need drugs or even a blood patch.  A blood patch is injection of your own blood into the spinal tap site--your blood clots to form a patch that prevents fluid from leaking and gives your body an opportunity to close the leak and build-up fluid.

Best of luck to push through this unfortunate development.

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Posted on May 3, 2019, 10:25 pm
#22

Thanks for that really helpful.
Ive been on iv liquids, caffeine and so much water. I cant sit longer than 30-40 mins and then it begins. Ive alrdy left the hospital and now in clinic, but if it lingers for another week im pushing for the blood patch idc.

This is just ruining everything. I cant focus on legs and my turning will begin soon and stil stuck with this  t headache.

Doctor says i need to walk for hours. Yea right with this   headache i can only stay in bed 24/7. If i develop some complication of leg it will be this anesthetist and stupid headache to blame. Still hoping it goes away in a few more days.

I dont know why da fck body cant even seal 1 little tiny hole for 8 days. Fml

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Posted on May 3, 2019, 10:50 pm
#23

Remember that you are also probably on blood thinners so clotting is more difficult.

Also, I totally understand you want to get started but please believe that you will have plenty of time to turn nuts and bolts.

In my experience, things change on a daily basis during this process so try to think of your headache as nothing more than your "thing" for a few days rather than that you hit a big setback--you didn't--just dealing with a thing for a few days.

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Posted on May 4, 2019, 8:08 pm
#24

Thanks for that really. Do u think it can seal the hole in 2-3 more days? Im not even on any blood thinners. I mean how big is that hole even. Just a needle sized hole it shuld be. Shouldnt take much longer. I cant understand the science behind it. How can it keep leaking. Really beyond me is the science.

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Posted on May 5, 2019, 4:29 pm
#25

Please understand that I do not know whether you have a spinal headache--if your MD diagnosed a spinal headache; then, you should discuss treatment and time frames with him or her.

But for the fact that you reported a spinal headache, I would have first wondered whether you are having an allergic reaction that presents with a headache.  If you self-diagnosed a spinal headache, have you also considered a potential allergic reaction to any of the new things to which you have been introduced?  These factors can include not only the obvious such as different foods and medications but also less obvious factors such as the laundry soap or air freshener used by the hospital or clinic.

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Posted on May 5, 2019, 4:37 pm
#26

Sanity, this is very unfortunate.
First of all you should not have gone to Russia to do this. All russian patients have long lasting nerve damages, dropfoot and other complications.

If the headache lasts for another 5 days i suggest you take off the frame and return to your home country for medical support.
Nothing is more important your life. Dont put it in such risk.

You can always do LL later if you still want to.

PS dont take advice from nutjobs like the guy over me. close to age of 60 with hip replacement, he did 9cm LL in russia because no sane doctors would perform it.

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Posted on May 6, 2019, 2:32 pm
#27

It gets bad when i sit up and better to non existant when lying down. Also all other symptoms match to a spinal headache (literally everything) and doctors agreed it was a spinal headache.

Btw its gotten a bit better in the last couple of days. Improved a bit. And everyday the headache when i sit is reducing a little amount. For example I couldnt sit for longer than 30 mins in start now i can sit for 2-3 hours until it begins and i can start feeling pressure up there. And everyday i can sit little longer than before. So finally good signs.

Legs are doing good. I walk for long time and dont feel tired or painful. Seems good as far.

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Posted on May 6, 2019, 3:42 pm
#28

Good.  Seems like you are moving in the right direction.

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Posted on May 7, 2019, 8:01 am
#29

Quote from: California2 on May 06, 2019, 03:42:21 PMGood.  Seems like you are moving in the right direction.
Yes for now and hopefully in future. All seems good.

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Posted on May 9, 2019, 12:02 pm
#30

Distracting everyday at aproximately 1mm. Dont feel any pain. Only slight pulses of pain at night for a little time. Walking as often as i can. Feeling the normal tightness in soft tissue that comes with distracting.

Everything on track!

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