Hello, my daugther Lili (10y.old) had femoral lengthening on November 2016 (7cm), now she is in the consolidation stage (about 2 weeks), the thing is that from the first day she got out of the hospital until now she had a very pronunced hyperlordosis (duck ass), every day she has her physical therapy (streching and strengthening) but no improvment, she still cant walk by her own (walker). Can some one tell me what to do with my daugther please?
682,
My family really appreciate your advice, Lili (hipoacondroplasia) had her tibias lengthening 2.5 years with very few complications (achilles), now with her femurs she had early consolidation on both legs (osteotomy), genu varum and valgum, and the hyperlordosis, our doctor in Mexico says that the varum and valgum eventually will correct with her growing, but for the hiperlordosis he did not told us how an when and we could not find answers, so thank you again, very best for you!
Hi Bigfaker,
Answering to your questions:
-Lili had her tibias lengthened 2.5 years ago (6cm) then she was 7 years old, on August she will be 10, and yes she had ballerina foot, aside of that she did ok.
-Yes her bones were very short, i think they grew up between 30-35 % of their original size.
-She shows the Hyperlordosis since the first day out of hospital (22 Nov) very pronunced when standing and walking, mild when lying on a bed, and nothing when we lift her legs when lying on a bed. Almost 3 weeks in the consolidation stage, she is starting to walk alone (few steps).
-As for the PT, our doctor only told us that her only therapy was to bend her knee and to walk, so in the first 20 days after her surgery she only did that, when i saw her not getting progress, i call doctor Paley asistence (Lili was her patient but our insurance company did not cover the surgery cost) and she gave us the PT information.
-She is doing a little better every day, but definitely much more difficult than when her tibias, she is sad and cries because she can not do the things that her twin sister and her friends do, and that is hard for us. But we have faith she will be just fine.
Really really help us
GOD bless you
We still live in Mexico, we will call the doctors you told me for second opinion as soon as possible.
Thank you Bigfaker, yes doctor Paley assistant gave us the PT for Lili and she had great improvement, but as i told you Lili grew up 7 cm with her femoral lengthening but when messure stand it seems like she is only 1 cm taller because her severe duck ass, by the way she does walk like a duck and also complains for her lower back, the pain appears only when walking with out the walker.
Thank you again Bigfaker, have a nice day!!
We will consider the hydrotherapy.
You must be logged in to post a reply.