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Posted on Feb 17, 2014, 1:46 am
#31

I saw some pics of her and I thought she looked ok for doing as much as she did.  Do you think her legs looked ok when you saw her in person?  Did she really do 12cms?

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Posted on Feb 17, 2014, 3:16 am
#32

Yep, that's how much she lengthened and she looked fine.

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Posted on Feb 17, 2014, 9:40 am
#33

Hey Falcos!

Thanks a lot for starting a diary here.
I'm sorry things are bad with you.

I was myself considering surgery with Dr. Salameh because it is cheap and no internal nail is involved.
What you to describe seems to be very careless of him.
Do you recommend him to someone else?

Are there other patients of Salameh there with you in Frankfurt?
And what do you think of Dr. Shmidt? He seems like the right hand man of Salameh. But is he any good?

Thanks again. I'm really looking forward to hear from you.

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Posted on Feb 17, 2014, 2:33 pm
#34

hmmm. it seems that bad bone grwoth is a common result by lengthening more than 7 cm.... may it be?
just my 2 cents...

i paid 25.000 Euro.. including the physiotherapists...surgery und xrays and medicines. but the physiotherapists started in may (nearly 6 months after surgery) only....
so this was a bad part of my journey....

i do not recommend dr. salameh or say that he is the not the first choice. everybody has to decide it on their own.... i would never tell anyone to do such a big surgery with this or this doctor....
i can only say that i will never do this again.... with salamehfix. the fixateur is good.... but for such an amount of cm you have to take it such a long time... you cant wear normal clothes... you cant swim.... you have open wounds.... it is not so good....
and a big negative thing is the availability of the dr.... he isnt there when you need him... he is only available by email.... and not in time... he cant give you prescribtion for medicine you need.

on the other side.... the treatment is affordable.... and the hospital in germany is great. and dr. schmidt is a great surgeon and he is there for you. i can reach him whenever i need him... i have his private number and i get an appointment in his office immedieately. there is nothing negative to say about him.
i think i would have given up without his support and his well knowledge.

my proportions are looking great... after lengthening the look is more "normal" than before...  because my tibias before were very very short and thick.

so please feel free to ask questions.
and hopefully someone can give to me some useful cheats for walking as soon as possible without crutches!!!

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Posted on Feb 17, 2014, 2:53 pm
#35

Here are my proportions....

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Posted on Feb 18, 2014, 8:24 pm
#36

Thanks for the pic Jeanny, it's really unfortunate to see what you're going through :\

I think if you had been under guidance and instead lengthened 6 cm, your outcome would have been much better.  I'm wishing you all the best!  Keep us updated on any progress/complications you experience.

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Posted on Feb 20, 2014, 9:53 am
#37

The most concern is about my fibula bone!
will it ever be consolidated or not?? what do you think?

Dr. Schmidt and Dr. Salemeh are both saying that it is not necessary that the fibula will be union.... but i can´t imagin that this is a good thing if it will be forever non union!!

Why does the body has a fibula bone when it is not necessary??

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Posted on Feb 20, 2014, 1:31 pm
#38

Hello FalcosJeanny,

Thank you very much to share your experience with us. I am planing my surgery with doctor salameh this year with another boy from

NYC, I had two appoinments with doctor Schmidt and salameh and now i am concerned about your situation.

cheers and stay strong with your family and friends.

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Posted on Feb 20, 2014, 5:27 pm
#39

Quote from: FalcosJeanny on February 20, 2014, 09:53:45 AMThe most concern is about my fibula bone!
will it ever be consolidated or not?? what do you think?

Dr. Schmidt and Dr. Salemeh are both saying that it is not necessary that the fibula will be union.... but i can´t imagin that this is a good thing if it will be forever non union!!

Why does the body has a fibula bone when it is not necessary??

It's just a vestige of evolution.  Why does the body have an appendix if it's not necessary?

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Posted on Feb 20, 2014, 7:21 pm
#40



Hello Jeanny..


Dr. Salameh seems to be like other Indian dr by repeating "everything thing is fine"

But you're so strong for being able to wear the fixator for total 14months, it is not an easy thing for sure, but saying that you may need another one year to be able to remove it, is something beyond my imagination..

did you try stem cell? they claim it helps for nonunion bone but I don't know if it's better/faster than Forteo  injection ..

I'm considering taking Forteo injection, I wont bother myself by asking my Dr about it, cuz it seems safe, and my dr will say no anyway..
But I read the Forteo injection is given for women who have passed the menopause.. and since your still in your 30 I don't think you passed the menopause, so did you experienced any side effect regarding that? did your dr tell you it may cause some problem in future?
 
I think I may have some more questions, but right now I cant think about anything but Forteo injection.. it sounds like a magical solution for me.


 
 

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