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Posted on Feb 12, 2014, 11:17 am
#1

Hello everybody...

I am a patient of Dr. Salameh. i am from germany...  please feel free to ask me your questions... hopefully you can understand my bad english *g*

I did have my operation dated 23.11.2012... but i am still on crutches. and my fixateur is on my legs... i cannot walk or stand without crutches.
my bone growth is veeeery very bad and i will have to take the fixateur on my legs for about another year :O(((
i am so sad..... i have no power anymore....

nearly EVERYTHING went wrong with me and my surgery... i did have many infections and weak muscles etc.

greetings
jeanny

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Posted on Feb 13, 2014, 11:13 am
#2

Hello again :O)

i dont want to spread bad mood in this forum.....
but i have to be honest.... and after all i cannot tell you that the ll journey went good for me...

i still cannot walk.. not even stand without crutches... and i have terrible ballerina foot.... 6cm.. even if i do exercises very hard every day and going to the gym.

my age is 31... i was 1,56 m and did 10 cm lengthening. but i did the lengthing in ONE year.... i started lengthing at 01.12.2012 and stopped in the end of september 2013. my bone growth is very bad... i have to take needles (with bone growth hormones = Forsteo) every day in the stomach. it seems to work...
but it take very long................. it seems to take one more year to get rid off the fixateur....

i only know goodfootballer who did surgery with dr. salameh.... but he described his ll journey like a walk in the park...
i dont know if he told the truth... but the fact is: goodfootballer can walk .... and i cant!

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Posted on Feb 13, 2014, 1:36 pm
#3

ok... thats sounds clear to me....

do you know how long it will take to be recovered (means for me at least walking without crutches!) from now on?

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Posted on Feb 14, 2014, 11:32 am
#4

that is my main issue.... dr. salameh is not available for me... he is only 2-3 times a year in germany and when he look at my legs and my xrays he tells me everything is fine.... and i should do shortening.... this is his only advise....
that botheres me a lot...

i dont want to write a diary because i dont wont to blame the doctor.. surely he does the surgery and he did his best....
but my first physio session started in may 2013! from december 2012 till then i did not have any gymnastic sessions by a professional....
nobody told me what to do or what to eat..... every time i asked for help or advises the same answer was "everything is ok"... but it was not!

i did have painfully infections because he told me not to clean my pinsites to often.... and this is really the worst pain i ever had....
i did have it for month till the antibiotics works....

i can post my last xrays from january....

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Posted on Feb 14, 2014, 11:34 am
#5

Here are my latest xrays.

iam awaiting your opinions FalcosJeanny Salamehfix - Dr. Ghassan Salameh)

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Posted on Feb 14, 2014, 11:41 am
#6

i do walking every day with crutches for several hours...
and i am working since january 2013 again.. in the office.

hopefully i can get rid off the crutches as soon as possible!
thats no life.... such a long time with crutches.... 

the fixateur is weight bearing... so my idea is: can i excersise my muscles in the legs a lot every day so that they will be strong enough to take my whole weight?
and can i THEN walk even with broken bones?
goodfootballer did this.... but after a few monthes.... i stopped lengthening in september 2013... so perhaps can it work for me too?

dr. salameh did not give me an answer of this question.... he only told me that a few patients did walking without crutches.... a few not.....
so what is that answer good for?? is it possible for me or not??

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Posted on Feb 14, 2014, 3:12 pm
#7

thank you so much for your answers!
Yes.... i am a little desperate right now..... because at first i only knew goodfootballer (in real life too!) and all what he told me and what i did see was so perfect and easy....

and from the start i asked dr. salameh how many cm i can make and he said as much as i want! he told me from his patients and showed me videos who lengthened 12-16 cm! and this was my goal too... 13cm... but... dr. salameh did surgery on me... and then... there was not a really plan to go... or what i have to do... what exercises i have to do... even not how i do crutch walking in the right way.... everything i learned by myself and asking other people who once had crutches in their lives.

goodfootballer wrote emails to me about his ll and his process... but his ll life was much better than mine?! and i couldnt imagine to do all things wrong!

i needed even a second surgery on monday after the first surgery dated on friday for removing 4 screws in both legs because of nerve pain... the screws has been set imminent to nerves in the knees.... the second surgery was not good for me.. after that the legs has been swollen sooo much and i puke a lot....

so... after 11 days in the hospital i went home... and started lengthening for the next monthes...  first i started with 4 times lengthening a day. every 6 hours even in the night. this i made until march 2012.. the xrays showed nearly NO callus.... NOTHING... it was all black... i can post the xrays later.
dr. salameh told me to do 1 lengthening event a day... instead of 4 times.... so i lengthened not 0,08mm but 0,02mm a day...
but this helped not to increase the bone growth.... so he shortened me about 1 cm in april and july .... for stimulating the bone growth he said.... but it works not for me....

i use physiostim and exogen 4000 machines.... but the didnt seem to work for me at all... i take calcium, vitamin d and magnesium.. and a protein shakes. the bone stays very weak.

the explanation of dr. salameh is that i have a fail in the genes from birth..... and there is nothing to do than wait or shorten again....

BUT the process of shortening is VERY painful and a full weak after he set me back from 1cm in one piece my legs are so swollen and the knees are hurting so much, that i cannot even walk with crutches... AND i did not help at all....

in all this time i am soooo gladful to have dr. schmidt in frankfurt (at his place the surgery was performed) ... he gave me a prescription for injections (every day) with forsteo (hormonal treatment).. and this seems to work now... the bone does increase in callus producing in the last 2 monthes rapidly.

i am little bit depressed.... and if i knew now what i didnt knew then... i would never do it again........................

I post first xrays now

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Posted on Feb 14, 2014, 3:14 pm
#8

Here are xrays from the middle process of lenghtening.... at this time both doctors were not happy with the bone... but did nothing against it!

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Posted on Feb 14, 2014, 8:50 pm
#9

Dr.schmidt started to give me the injections in the middle of december. The injections are covered by insurance...
Perhaps you can get it to Emanuel? It Speeds up the Bone growth rapidly.

Thank you for supporting me Emanuel... Now i have the Mood to go in public With my experience in the Forum...

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Posted on Feb 15, 2014, 5:25 pm
#10

Thanks a lot for your help!

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