Quote from: BelowTheMean on September 06, 2020, 05:55:00 PMHaha good strategy. I’m doing my procedure this winter, so ski accident it is!
Damn - met a med student last night and she nearly called me out! "I didn't know you could get hip fractures from soccer".
Hahahaha
Hey m7liam, how are you doing with your wide legs? Is it improving as the days go by? Have you talked to Dr.Giotikas or anyone from his team about this?
Quote from: AppleFanBoy on September 12, 2020, 02:03:19 PMHey m7liam, how are you doing with your wide legs? Is it improving as the days go by? Have you talked to Dr.Giotikas or anyone from his team about this?
Hi. I got wide legs at 2.3cms and now I am at 5,2cms. The wide legs hasn’t got worse or better during this period. Hence I suspect it must have improved since I have lengthened more.
Dr just says it’s common and I’ll get use to it over time
Quote from: m7liam on September 13, 2020, 06:04:12 AMHi. I got wide legs at 2.3cms and now I am at 5,2cms. The wide legs hasn’t got worse or better during this period. Hence I suspect it must have improved since I have lengthened more.
Dr just says it’s common and I’ll get use to it over time
Hi guys - I am at 5.2cms and ~60 days post surgery. Things are starting to get tight. I notice that walking isn't as easy as before due to the tightness. Right now I can only walk unassisted about 250m before I need to sit for a rest.
As mentioned before, wide legs is still the same width (say 30-40 cm's apart) and I am getting some bent leg of 10-15% reduction in extension in the right leg that I am working on. This is severely affecting my ability to stand up and hence I have to sit down after 2 minutes as I get tired easily.
Also in the last few days while lying down my butt is starting to get sore which didn't occur before. I haven't got nerve pain yet but would be expecting it soon.
Am constantly catching up with friends and I have to say it feels amazing to now be as tall or nearly as tall as them. However, I hope I can get through this last stretch quickly and start post-distraction recovery as things are feeling like it will go downhill before going uphill.
Quote from: m7liam on September 13, 2020, 01:39:06 PMHi guys - I am at 5.2cms and ~60 days post surgery. Things are starting to get tight. I notice that walking isn't as easy as before due to the tightness. Right now I can only walk unassisted about 250m before I need to sit for a rest.
As mentioned before, wide legs is still the same width (say 30-40 cm's apart) and I am getting some bent leg of 10-15% reduction in extension in the right leg that I am working on. This is severely affecting my ability to stand up and hence I have to sit down after 2 minutes as I get tired easily.
Also in the last few days while lying down my butt is starting to get sore which didn't occur before. I haven't got nerve pain yet but would be expecting it soon.
Am constantly catching up with friends and I have to say it feels amazing to now be as tall or nearly as tall as them. However, I hope I can get through this last stretch quickly and start post-distraction recovery as things are feeling like it will go downhill before going uphill.
Good luck.
You aiming for the full 8cm lenghtening?
Sir, you should probably get a personal PT and actually rehab way more. You make think I am joking but if you don't fix these issues right now when you are still distracting then once you distract your goal it is over and you will take a long time to recover. Please sir. No longer will I be politically correct. You need to get your as* to PT asap. Not just "muh one stretch a day", that's nothing .This is super super concerning.
Quote from: ghkid2019 on September 13, 2020, 01:59:46 PMSir, you should probably get a personal PT and actually rehab way more. You make think I am joking but if you don't fix these issues right now when you are still distracting then once you distract your goal it is over and you will take a long time to recover. Please sir. No longer will I be politically correct. You need to get your as* to PT asap. Not just "muh one stretch a day", that's nothing .This is super super concerning.
Hi Ghkid, can you please clarify what is very concerning to you? As far as I am aware, my progress is pretty similar to most people (except the issue of wide legs which fortunately hasn't gotten worse and is similar to some people but not all).
Re: exercise - I do try to allocate time to it everyday to go beyond just the one stretch per day. Where there have been issues (wide legs, bent right leg) I have been spending significant time to try to fix.
Quote from: O_99 on September 13, 2020, 01:50:11 PMGood luck.
You aiming for the full 8cm lenghtening?
Yes - that's right. Still aiming for 8cm. God willing
Quote from: m7liam on September 13, 2020, 02:12:40 PMHi Ghkid, can you please clarify what is very concerning to you? As far as I am aware, my progress is pretty similar to most people (except the issue of wide legs which fortunately hasn't gotten worse and is similar to some people but not all).
Re: exercise - I do try to allocate time to it everyday to go beyond just the one stretch per day. Where there have been issues (wide legs, bent right leg) I have been spending significant time to try to fix.
Hi m7liam,
Glad things all look promising 
I believe you'll be able to successfully lengthen to 8cm.
I think what mainly concerns ghkid2019, is the widening legs. I think what he meant was that if you spent some PT time on it while distracting, it would save you a lot of time trying to fix it post distraction. I tend to agree with him. Why not trying to fix it while distracting? If the PT is good, he/she should be able to work with you on that, without aggravating nerve pain.
Quote from: m7liam on September 13, 2020, 01:39:06 PMHi guys - I am at 5.2cms and ~60 days post surgery. Things are starting to get tight. I notice that walking isn't as easy as before due to the tightness. Right now I can only walk unassisted about 250m before I need to sit for a rest.
As mentioned before, wide legs is still the same width (say 30-40 cm's apart) and I am getting some bent leg of 10-15% reduction in extension in the right leg that I am working on. This is severely affecting my ability to stand up and hence I have to sit down after 2 minutes as I get tired easily.
Also in the last few days while lying down my butt is starting to get sore which didn't occur before. I haven't got nerve pain yet but would be expecting it soon.
Am constantly catching up with friends and I have to say it feels amazing to now be as tall or nearly as tall as them. However, I hope I can get through this last stretch quickly and start post-distraction recovery as things are feeling like it will go downhill before going uphill.
I started taking Gabapentin (two 300mg pills per day) prescribed by Dr. M. I am on day 2. I can't tell if it lowered the pain level. Online info and the experience of our CLL folks here show that it may take a week or two, before it starts suppressing the nerve pain. Please talk to your Dr. about Gabapentin and see if you should start taking it now, so the remaining mm's to 8cm would be easier to achieve.
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