Alright guys so since i’ve been super transparent with you guys this whole journey i gotta let u guys know how this meeting went; terrible
Apparently my right leg has NOT been lengthening in a month. There’s too much bone in my right leg it has stopped at 4.5cm while my left leg is at 6.5cm
This is crazy rediculous cant believe two weeks ago they didnt notice. I didnt have robbins 2 weeks ago i had some new dr shannon i’ve very devestated right now thinking i was ready to leave her in 3 weeks, this is a big punch in the face because not only do i have to wait now for my right leg to catch up, my left leg will NOT be at 8cm on the 30th anymore cause i gotta wait
Idk whats the next move. Robbins says hes gonna email paley, he said either I shorten my left (YA RIGHT) or re break my right (sadly probably gonna have to do that 
Ughhhhhhh i feel so bad rn looks like the road ahead just got a lot longer. This is really testing me in ways i didnt want to be tested right now
FML
Femurs & Tibias with Dr Paley
This is so unfortunate to hear. We all have been inspired by your drive to do what others thought wasn't possible by being consistent and putting in effort. I know you got this. We are all here for you!
Keep fighting!
Unbelievable man. So sorry to hear this. You've inspired us all and if there's anyone who can fight through this obstacle it's you.
So Sorry to hear this, man. You'll power through this.
Guys idk what to do i need help
My options are to keep my left leg at 6.5 right at 4.5 difference of 2cm and just enjoy life. Will a 2cm discrepency lead to problems? I am doing research but can’t find anything conclusive
My other option is to shorten my left so that it’s 4.5cm but there’s no way i’d ever consider that situation i simply can’t handle that
Any advice is appreciated
Im sorry I couldn’t make it to 8
I really gave this everything i possibly could
This is all I could do
Lowkey im gonna lengthen my left till its 7cm so difference will be 2.5cm and either come re break in a year or just accept 2.5cm and move on w life
Hi MyEvolution,
First off, I would like to say you have been an absolute inspiration to the broader LL community, as we have followed your journey since 2018 as the 1st documented world-wide patient diary with STRYDE. Thank you for being honest and transparent in your journey with us.
Although your setback is unfortunate, I do see a silver lining. Even had you not experienced pre-mature consolidation in the right tibia, you still needed 2 additional surgeries before you fully recovered, one in ~6 months to remove rods from your femurs, and another in ~1-1.5 years to remove rods from your tibias.
It shouldn’t be as significant a setback if you re-break your right tibia at the same time you remove your femur rods in under a year. Since you only need to distract 2-2.5cm on your right tibia, the procedure should take ~1 month and it would be quite realistic to distract at home like bgreeneee’s dairy in late 2019. It would be far easier than your last two procedures, and you are the best prepared of anyone on this forum (and likely the world) to do it. You could then just remove the rods on both your tibias around the same time. As you already exhibited above-average bone growth due to pre-consolidation, you shouldn’t have to wait the full year to remove rods on both tibias.
I might have missed something, but if the above scenario is indeed possible, you shouldn’t need any additional surgeries relative to the 2 you would have required for the rod removal.
Hope my thinking helps, and PM me if you have any questions on my line of thinking. Thanks again for your pioneering diaries for both Styde Femurs and Tibias.
Hi i am very sorry to hear that this happened!
The option that Stryde4success mentioned sounds like a very good one.
I read that you also considered Dr. Betz but in the end decided against. With the mechanical clicking of his nail it is much more unlikely for something like this to happen. Also his nail is weightbearing since a long time. So I do not understand why Stryde is so much hyped here and Dr. Betz nail is seen as crap.
Anyway wish you the best of luck of course! And thank you for sharing your story with us.
Probably the best way to go is as Stryde4success mentioned...
Were you not monitoring your own xrays? I dont see how you didnt notice.
This is why i stressed so much on my diary about not relying so much on your doctors but to always watch and measure your own xrays, doctors arent perfect nomatter how good you think they are.
Anyways, i strongly suggest you to rebreak and keep lengthening or back the long one back. Either way DONT stay with a 2.5cm discrepancy, thats totally ridiculous! You broke your perfect legs to end up with a deformity? Could you really live with that? I doubt it! Even them out man. In my opinion i would just shorten the long one. Stop being greedy.
Its up to you honestly, wish you the best man.
You may be able to use insurance for the fix! I figure because of the difference you may stand with your weight more on the shorter leg, might lead to something with your hips or back.
You would have to wear a small 1 inch lift in one of your shoes. I don't think it is the end of the world, ask your doctor on this one. Either way you look great man, stay positive. Let us know what Paley recommends, maybe the best LL doctor in the world will figure something out here. Keep going strong.
You must be logged in to post a reply.