Femurs & Tibias with Dr Paley

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MyEvo. You still alive bro? Would love to see them pics 🙂

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Hey guys been a while time for a meaningful update:

Ive always been transparent with you guys and theres something I need to tell you guys
You remember when I did that re break surgery in january? For those who dont know, i did tibs in september 2019, then in january 2020 i re broke my right tibia
When I did this, my leg got an infection
At the time i didnt think it was worth reporting because I thought it was only temporary
Anyway, for the last 6 months i’ve had an infection at one of my wound sites that hasnt gone away
I was told to take antibiotics to keep it at bay
It ruined my life honestly
I havnt been able to make much progress because of it
It used to keep me up at night, big red bump, drainage, and this entire summer was an L because I could not go swimming at all since I had an infection i cant get wet

Ive had nurses come see me every 2-3 days in Canada to take care of me thank god for the canadian health system

fast forward to 3 weeks ago, I had a flush surgery in canada where they removed the rod in the infected area & have been putting me on Vancomycin ever since
For some reason at the paley institute they were never able to identify the culture bacteria? But in Canada they identified it as CONS (coagulase negative staphylococcus). This infection is something that only usually happens from having a surgery specifically because the bacteria attached to the hardware. Now that the hardware has been removed i have 0 pain and am finally starting to make recovery progress again. I cant believe this infection has persisted till now. I am currently reaquired to have an IV picc line attached to my arm till october first maybe they can switch me to pill form?

Anyway just thought id give you guys a meaningful update. Even if you go to the best of the best there is still a risk, like an infection. Do not take ANY risks and go somewhere sketchy, this could have gone VERY bad if I took a chance and went somewhere sketch. At least at the Paley institute they managed to keep it under control until It was OK for the rod to be removed.

Tomorrow I have a meeting with the medical team in Canada and we will discuss further plans to remove the other rods & evaluate my condition

Hopefully I get cleared to return to the gym tomorrow so I can continue working out legs because I was making decent progress before I had this rod removed

Will keep you guys updated!! If you guys have any experience in this matter leave a comment!

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That's tough luck MyEvolution. Canadian healthcare is indeed amazing and you're blessed to be eligible to receive it. I'm glad you're getting through this. You seem to have qualities of a good patient: optimism, hard work and listening to the doctors.

About Paley: He is a great doc no doubt, but in my humble opinion we should all refrain from calling anyone THE BEST. It goes against the principles of science. I also dislike how Paley repeatedly asserts his greatness every chance he gets. That's just odd. Most surgeries, most Precice nails implanted, yada yada yada. Father of LL. Taught everyone else LL. I guess it's true after all, but why state that so often?

The initial complication that required a rebreak was entirely their fault. And then there was an infection and they didn't detect it all through the distraction phase? Daily PT, weekly visits to Paley, x-rays taken and no one recognized it? Doesn't look good on them man. Doctors should spend more time with patients.

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How did you break your right tibia?
Keep your chin up, the rest will get better.

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What happened was my left tibia reached 6cm
And my right only made it to 4.8cm
So they told me listen either u shorten and be done
Or re break right
So obvs i re broke the right
And i continued to lengthen the left
I hit 8cm on my left
And then my right got stuck AGAIN at 6.2cm
So then i was forced pretty much to shorten my left by 1cm so they are almost the same length. I came in with my right a little longer actually didnt even know so it all worked out but thats why I re broke! There was no way i was giving up 3cm in gains lmao

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Quote from: MyEvolution on September 02, 2020, 01:32:26 PMWhat happened was my left tibia reached 6cm
And my right only made it to 4.8cm
So they told me listen either u shorten and be done
Or re break right
So obvs i re broke the right
And i continued to lengthen the left
I hit 8cm on my left
And then my right got stuck AGAIN at 6.2cm
So then i was forced pretty much to shorten my left by 1cm so they are almost the same length. I came in with my right a little longer actually didnt even know so it all worked out but thats why I re broke! There was no way i was giving up 3cm in gains lmao

So how much did you lenghtened on both sides now?
There seemed to be many complications

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MyEvolution,

I wish you a good recovery.
Mind If you tell me what your wingspan/sitting height was?

Best Regards

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Quote from: MyEvolution on September 02, 2020, 03:49:22 AMHey guys been a while time for a meaningful update:

Ive always been transparent with you guys and theres something I need to tell you guys
You remember when I did that re break surgery in january? For those who dont know, i did tibs in september 2019, then in january 2020 i re broke my right tibia
When I did this, my leg got an infection
At the time i didnt think it was worth reporting because I thought it was only temporary
Anyway, for the last 6 months i’ve had an infection at one of my wound sites that hasnt gone away
I was told to take antibiotics to keep it at bay
It ruined my life honestly
I havnt been able to make much progress because of it
It used to keep me up at night, big red bump, drainage, and this entire summer was an L because I could not go swimming at all since I had an infection i cant get wet

Ive had nurses come see me every 2-3 days in Canada to take care of me thank god for the canadian health system

fast forward to 3 weeks ago, I had a flush surgery in canada where they removed the rod in the infected area & have been putting me on Vancomycin ever since
For some reason at the paley institute they were never able to identify the culture bacteria? But in Canada they identified it as CONS (coagulase negative staphylococcus). This infection is something that only usually happens from having a surgery specifically because the bacteria attached to the hardware. Now that the hardware has been removed i have 0 pain and am finally starting to make recovery progress again. I cant believe this infection has persisted till now. I am currently reaquired to have an IV picc line attached to my arm till october first maybe they can switch me to pill form?

Anyway just thought id give you guys a meaningful update. Even if you go to the best of the best there is still a risk, like an infection. Do not take ANY risks and go somewhere sketchy, this could have gone VERY bad if I took a chance and went somewhere sketch. At least at the Paley institute they managed to keep it under control until It was OK for the rod to be removed.

Tomorrow I have a meeting with the medical team in Canada and we will discuss further plans to remove the other rods & evaluate my condition

Hopefully I get cleared to return to the gym tomorrow so I can continue working out legs because I was making decent progress before I had this rod removed

Will keep you guys updated!! If you guys have any experience in this matter leave a comment!

sorry to hear that man
hope you have a speedy recovery

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Quote from: MyEvolution on September 02, 2020, 03:49:22 AMHey guys been a while time for a meaningful update:

Ive always been transparent with you guys and theres something I need to tell you guys
You remember when I did that re break surgery in january? For those who dont know, i did tibs in september 2019, then in january 2020 i re broke my right tibia
When I did this, my leg got an infection
At the time i didnt think it was worth reporting because I thought it was only temporary
Anyway, for the last 6 months i’ve had an infection at one of my wound sites that hasnt gone away
I was told to take antibiotics to keep it at bay
It ruined my life honestly
I havnt been able to make much progress because of it
It used to keep me up at night, big red bump, drainage, and this entire summer was an L because I could not go swimming at all since I had an infection i cant get wet

Ive had nurses come see me every 2-3 days in Canada to take care of me thank god for the canadian health system

fast forward to 3 weeks ago, I had a flush surgery in canada where they removed the rod in the infected area & have been putting me on Vancomycin ever since
For some reason at the paley institute they were never able to identify the culture bacteria? But in Canada they identified it as CONS (coagulase negative staphylococcus). This infection is something that only usually happens from having a surgery specifically because the bacteria attached to the hardware. Now that the hardware has been removed i have 0 pain and am finally starting to make recovery progress again. I cant believe this infection has persisted till now. I am currently reaquired to have an IV picc line attached to my arm till october first maybe they can switch me to pill form?

Anyway just thought id give you guys a meaningful update. Even if you go to the best of the best there is still a risk, like an infection. Do not take ANY risks and go somewhere sketchy, this could have gone VERY bad if I took a chance and went somewhere sketch. At least at the Paley institute they managed to keep it under control until It was OK for the rod to be removed.

Tomorrow I have a meeting with the medical team in Canada and we will discuss further plans to remove the other rods & evaluate my condition

Hopefully I get cleared to return to the gym tomorrow so I can continue working out legs because I was making decent progress before I had this rod removed

Will keep you guys updated!! If you guys have any experience in this matter leave a comment!

Hi MyEvolution,

I'm new to this site and to the world of limb lengthening. I have enjoyed reading your diary and want to thank you for being transparent. However, this incident of yours has me getting cold feet about limb lengthening. Was the re break due coming from yourself or the doctor? What is the likelihood of getting an infection through this procedure? Me personally, I just want to do femurs for 5cm with Stryde under Dr. Mahboubian. I want to be as safe as possible. I realize there will always be a risk, but from what I know people who do femurs make it through pretty easily. Do tibias cause more complications? This is also disappointing that this happened under Doctor Paley who is known as the godfather of this whole procedure. Should I be having second thoughts about this procedure even though I want to go the safest route possible?

Thanks
-brondo

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Hi Evolution, can I ask when they remove your rod 3 weeks ago, have they put in another new rod or they just remove it 100%, hope you recover soon