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Posted on Oct 13, 2020, 5:53 am
#281

Congrats on hitting 8cm! I would definitely not be surprised if you have the record for lengthening speed, and I'm glad your soft tissue was able to handle the pace of lengthening. On to consolidation!

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Posted on Oct 13, 2020, 6:01 am
#282

Quote from: Sunshine on October 13, 2020, 03:51:33 AMCongratulations Bro!
I'm amazed at your pain management during your journey. You reached your 8cm target relatively easy. Enjoy your new height and new life!

Thanks bro, it was relatively to what many CLL'ers experience, easy; yet it was one of the hardest challenges I have faced and certainly the hardest physical challenge I have had whole my life.

 I have put all the remedies and ideas already here. Next I am going to add all the details of my stretching exercises; hoping it would help other CLL'ers check mine and adjust theirs if necessary.

Sunshin bro, I have no doubt you'll get to 8cm, but I wish you a quick back-to-normal or back-to-new-normal-that-would-amaze-you Femurs with Dr. Shahab Mahboubian - July 2020

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Posted on Oct 13, 2020, 6:03 am
#283

Quote from: readyprecisestryde on October 13, 2020, 03:59:59 AMWow...You are beating everyone's record to reach 8cm the fastest and congrats!!!  Thank you and enjoy your new height. Wishing you a quick recovery Femurs with Dr. Shahab Mahboubian - July 2020

Thanks readprecisestryde,  your advice on nerve pain management was very helpful. I owe it to you, my bro. I hope you also enjoy your new height and new life up there Femurs with Dr. Shahab Mahboubian - July 2020

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Posted on Oct 13, 2020, 6:04 am
#284

Quote from: wannabeidol on October 13, 2020, 04:17:23 AMcongrats dude!

Thanks wannabeidol bro, wish you the best,
SNC

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Posted on Oct 13, 2020, 6:05 am
#285

Quote from: BelowTheMean on October 13, 2020, 05:53:15 AMCongrats on hitting 8cm! I would definitely not be surprised if you have the record for lengthening speed, and I'm glad your soft tissue was able to handle the pace of lengthening. On to consolidation!

Thanks BelowTheMean brother,    On to consolidation!
Best Wishes bro,
SNC

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Posted on Oct 13, 2020, 1:12 pm
#286

Congrats bro! You're amazing! Your diary will definitely help future CLLers!

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Posted on Oct 16, 2020, 5:55 am
#287

Day 82 Post-op (Mon., Oct. 12) and Consolidation Day 1

My next appointment with Dr. M. had been set to be on Oct. 20th, but considering I already hit 8cm, I preponed the meeting to Oct 13th (tomorrow) to get x-rays and make sure everything is okay.

Meanwhile, I have stopped using the device, even if Dr. M., said that using it a couple times after hitting 8cm, would be okay. Since I am not sure if I hit 8cm yesterday, or even earlier, I have decided to not use the device before meeting Dr. M.

I decided to cut down my painkiller (from two Gabapentin and two Tramadol pills per day) to one Gabapentin and one Tramadol per day starting today.

I was a bit disappointed that the pain did not start to exponentially get better today, but I guess that's the way it is. I hope in a week or two, I see substantial improvement in terms of pain, and flexibility.


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Posted on Oct 16, 2020, 8:11 am
#288

For me pain started going down 3-4 days after distraction, give it some time. Happy to see you're done with distraction, time flies

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Posted on Oct 16, 2020, 2:27 pm
#289

Day 83 Post-op (Tue., Oct. 12) - Consolidation Day 2

I was planning to run a distraction session when I meet Dr. M.; to show him exactly how the devices sounds and see whether he is sure that I have hit 8cm. Based on today's x-rays, Dr. M., measured my left at 8cm and my right at 7.8.

Right is 3mm taller than what we had planned for. Dr. M. said I had two options: 1) flipping the device and try to shorten by as much as 3mm, 2) keep as is, cause 3mm would not make much of a difference.   He was more inclined towards option 2 and I also thought I should just leave things as they are.

I asked Dr. M., whether I should go for another x-ray I got before I started the surgery where they measure the hip level, etc. accurately. He said, there is no reason and he is confident on the accuracy of his measurements (80mm on left and 78mm on right).

My next appointment with him would in three months (Jan. 2021). Meanwhile he said I should focus on fixing the quad issues (cannot bend knees as flexibly as I used to before the 14 day quick distraction schedule I had to go through a few weeks ago.

He is impressed by how tall I have become and took pictures with me (for before/after comparisons), but also mentioned that I have not realized my full height, cause my knees are not completely straight and I should generally see improvement in my body, which make me stand taller as well. 

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Posted on Oct 16, 2020, 7:30 pm
#290

Day 84 Post-op (Wed., Oct. 14) - Consolidation Day 3
Day 85 Post-op (Thurs., Oct. 15) - Consolidation Day 4
Day 86 Post-op (Fri., Oct. 16) - Consolidation Day 5



Pain gradually gets better but at a slow rate, slow enough to not not allow me to completely stop the painkillers. So far I have cut down the painkillers by 50% starting consolidation day 1.  I plan to stop Gabapentin in about 5 days or so, which means I would then be on one Tramadol pill per day.


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