Femurs with Dr. Shahab Mahboubian - July 2020

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Quote from: Jackieeechan on December 01, 2020, 06:47:13 AMWhat's your armspan??

I measured my height and wingspan today at 1pm. My height is sharp at 180cm and my wingspan a surprise 175cm. I thought last time when I measured (back in mid July 2020, a week before my surgery), it was 177, but perhaps I had measured it incorrectly.  In the video I'll post, you might be able to tell that my arms are rather short for my height, but I hope not

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Quote from: StrydeNailChallenge on December 01, 2020, 10:07:07 PMThanks Movie,

I had asked a couple times what Dr. M. thought the fastest time to recovery could be. He always mentioned this patient of his who could be back to normal in 6 months. I never asked exactly what normal meant. I just assumed whatever it was, for a crazy person like me, I have to beat that!  Dr. M. keeps telling me it's not a race or competition, but for me, the whole life is about making records. I makes me feel good when I do something exceptional. I don't get devastated when I lose, but I will try my best to be the best. For this CLL challenge, I have almost put all my attention and energy and I wanna see if I could convince Dr. M. that I recovered better than that patient. I know you and others may laugh at me! I know what I say may sound stupid


No I totally understand, I'm not laughing at you lol! I think all of us are very ambitious and competitive by nature, hence probably why we were able to afford such cosmetic surgery, go through with it, and come out okay... the keyword here is "Normal" as it's very subjective, specially since you didn't ask what he meant by normal lol because I felt normal at around 4.5-5 months post op, nobody would be able to suspect I had done CLL or any surgery for that matter really.. I could walk with a nice normal gait for miles, stand up sit down good, go up stairs no issues etc, but! Could I have jogged a mile or two? probably not, or maybe not definitely not "normal" to my standards, So maybe next time you see him ask him what he means by normal, I'd like to know too ;p ask if he's talking about "Movie" in the forums, he knows who I am hahaha 

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Hi snc, did you feel the pain so much different while walking compared to standing ?

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Quote from: StrydeNailChallenge on August 04, 2020, 12:27:30 AMDay 9 (Friday, July 31) - 0.33 taller


.....
After the shower I got ready and we went to the doctor. Doctor M. was happy with my healing and said I am doing great. He knows my personality, so he said I have some tough competition. Apparently a patient from Hawaii was able to back to normal at month 6, and in one year did the Ironman Triathlon. Also he said he had a military personnel who was very tough and determined and a 16 year old who recovered very well.

He wanted me to be careful to not break the nails just because I wanted to break the record of recovery 😊


....

Hi Movie, I am quoting this from my Day 9 as a reminder on who Dr. M. referred to as the fastest in recovery.  I wanna beat you and this guy and anyone else in this CLL game, haha.

But as you said, all of us, CLL'ers should be very proud for what we did. We came out not only taller, but more importantly wiser, stronger and more patient in hardships. 

IFS said the same thing so nicely. I am just quoting him from page 31 of his diary: 
"... I'm not only 3 inches taller as a result of CLL; but I am also a much smarter, stronger, and grateful person, having gotten through this journey..."

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Quote from: StrydeNailChallenge on December 01, 2020, 10:46:34 PMHi Movie, I am quoting this from my Day 9 as a reminder on who Dr. M. referred to as the fastest in recovery.  I wanna beat you and this guy and anyone else in this CLL game, haha.

But as you said, all of us, CLL'ers should be very proud for what we did. We came out not only taller, but more importantly wiser, stronger and more patient in hardships. 

IFS said the same thing so nicely. I am just quoting him from page 31 of his diary: 
"... I'm not only 3 inches taller as a result of CLL; but I am also a much smarter, stronger, and grateful person, having gotten through this journey..."


Future CLL'ers and those who are following this forum. I would like to put a reminder in BOLD here that matters a lot to me. I don't want anyone to be motivated or encouraged to go for this surgery because of my diary.
My goal in writing this is NOT to encourage people. This diary is only for those who did their research and finally decided to go for the highly risky CLL surgery, NOT for those who have not done the surgery and by reading this get motivated and tell themselves, I wanna do this too!!   
I say this, because I hate for someone to follow our footsteps and then find out he/she has to deal with all the problems, complications, etc. that may be attached to CLL.
I would like to compare the CLL to climbing Mount Everest. Both need a lot of preparation, planning, equipment, good team, etc. You don't wanna go for them, just because someone else wrote some nice words about the experience! CLL is no fun game! I look at it as one of the most challenging experience I have ever done.  I have mentioned in my diary before about my view of climbing Mount Everest. I am a very good hiker and I believe I can do very tough hikes, but my body cannot handle low temperatures. I therefore know climbing Mount Everest means death for me. I had done my research and I am sure of that. I would therefore never go for that experience, even if the whole world encourages me to do so.
Please do your research and think very carefully about the CLL process before going for it.

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Quote from: Tartar on December 01, 2020, 10:31:24 PMHi snc, did you feel the pain so much different while walking compared to standing ?

Hi Tartar,
I never had pain standing, as far as I remember. In fact in early post-op days, I remember I used to stand just because pain would diminish (as compared to sitting or lying positions).
However walking is different. During the recovery phase I experience some discomfort and pain in the evening times. I also have always had this unnatural feeling on my legs, I guess cause of the combination of nails and the bone gap. When I walk I that feeling of unnatural aggravates.
I hope that feeling would be over by month 6, but it seems a lot of CLL'ers believe here that it's impossible. Some tell me to expect a year or 1.5 years to feel normal.

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Quote from: StrydeNailChallenge on November 23, 2020, 02:41:19 PM......I try to fix my walking, gait, running, stair climbing, swimming, etc. by Day 180.  I hope I can make it, but even that does not look that great I'll try to post a video by the end of the week so you guys judge for yourself how my gait looks these days.

This is the video I had promised to some of you (in two parts, cause imgur does not allow videos of more than a minute).
It's my first time posting a video, and on imgur. I am not sure if I am doing something wrong, but makes the video frame so small! let me know if there is a better way:

https://imgur.com/xW8mUgI
https://imgur.com/rxRD7W7

A few notes about this video:
1) It was taken on the 29th. On the 28th I almost fell off of a pedestrian curb side, and injured my hip [left leg, close to where nails are]. I therefore am not at my best gait.
2) For privacy reasons the clothes don't belong to me, haha!  the shoes were too tight, so I could not really put them on properly also pants are short; and very tight which may give the impression of parenthesis legs a bit, but my legs are fairly straight, most likely better than an average person.   

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Quote from: StrydeNailChallenge on December 01, 2020, 11:33:05 PMThis the video (in two parts, cause imgur does not allow videos of more than a minute).
It's my first time posting a video on imgur. I am not sure if I am doing something wrong, but makes the video frame so small!

https://imgur.com/xW8mUgI
https://imgur.com/rxRD7W7

A few notes about this video:
It was taken on the 29th. On the 28th I almost fell from a pedestrian curb side, and injured my hip [left leg, close to where nails are]. I therefore am not at my best gait.
For privacy reasons the clothes don't belong to me, haha!  the shoes were too tight, so I could not really wear them properly also pants are short; and very tight which may give the impression of parenthesis legs a bit, but my legs are fairly straight, most likely better than an average person.

Looks pretty clean to me, especially from the distance filmed. (Then again I'm still walking like a penguin so I may not be the best judge.)
Good solution on the clothing. I plan to only record myself in only one outfit, which no one has seen me wear IRL before, and I will dispose of it after my last video

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Looks good , no hip swaying anymore it just looks a bit " mechanical" but that will correct itself in no time!, nice little jogging in place there too, agility and strength coming back. 

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Quote from: BelowTheMean on December 02, 2020, 01:32:09 AMLooks pretty clean to me, especially from the distance filmed. (Then again I'm still walking like a penguin so I may not be the best judge.)
Good solution on the clothing. I plan to only record myself in only one outfit, which no one has seen me wear IRL before, and I will dispose of it after my last video

Thanks BTM. I take you as a good judge, based on your posts.

I donated a lot of stuff this year (going for minimalism :p) including a lot of clothes    Yours is a nice plan. I choose a set  of clothes that I have never tried before and keep recording with those and then donate them