Amazing display! Your walk looks totally normal to me. Very inspiring and makes me want to start my journey ASAP, like tomorrow...lol; Thanks for posting and happy holidays!
Although I already watched the original videos you posted on Imgur, seeing it again gives me hope!! I'm still 90 days away from day 130, but seeing you walk around like that really gives me some optimism that I'm sorely lacking right now.
Quote from: L8GrowthSpurt on December 26, 2020, 01:14:27 AMAmazing display! Your walk looks totally normal to me. Very inspiring and makes me want to start my journey ASAP, like tomorrow...lol; Thanks for posting and happy holidays!
Thanks very much L8GrowthSpurt, and Happy Holidays!
I have mentioned here several times that I hope nobody here starts a CLL journey just by looking at this forum. The much safer way would be to do a lot of research beyond this forum.
I can tell you a lot about the challenges of CLL in terms of pain, etc. to make sure you are ready for them.
We are all different and and we should make sure we account for all the parameters before starting CLL. I hope you use your best judgement and research skills to make a decision. This forum would then be a great resource for someone who has already decided to move forward with all the details figured out (stryde or not, which doctor, when, etc.).
Quote from: BelowTheMean on December 26, 2020, 01:35:17 AMAlthough I already watched the original videos you posted on Imgur, seeing it again gives me hope!! I'm still 90 days away from day 130, but seeing you walk around like that really gives me some optimism that I'm sorely lacking right now.
Hi BTM,
Based on the first few videos you posted, I think you are doing well. Do not get too much stress. I think the most important item to look for is the x-rays. If the doctor believes you x-rays are good to perfect, then the rest (pain, etc.) would be temporary.
I still remember how hard it was to even imagine a peaceful night sleep. I thought to myself, "would I ever have a normal sleep, ever again?" Turned out a couple weeks into consolidation, my night sleeps quickly started to be back to normal (long hours of no pain) and soon even better than my old normal, perhaps cause I take exercises, and diet more seriously and also working from home has reduced some work stress for me. I know you will be there very soon BTM. Feel free to message me whenever you think talking to me would help.
Quote from: StrydeNailChallenge on December 18, 2020, 09:17:14 PMDay 142 Post-op (Fri., Dec. 11 ) - Consolidation Day 61
The walking time record results I had promised to some of you:
Start time around 5:01pm: https://imgur.com/BVdKAMw
Distance (Miles) Duration (Minutes) Video/Image
0.5 ? Unfortunately recording failed, but should be 7+ minutes
1 ? Unfortunately recording failed, but should be 14+ minutes
1.5 <23 https://imgur.com/jnJIfZ3
2 <30 https://imgur.com/PG8LTpb
2.5 ~37 https://imgur.com/MxAaAIp
3 <45 https://imgur.com/KFx1QOc
A few notes:
1) I walked on a grass area that was a bit muddy. I believe I can be faster on a hard floor, but I don't want to put too much pressure on my knee joints.
2) The land was a like a small square which each lab around 0.15miles. On a straight path I can do better.
3) My shoes were not that great for walking.
4) I had a mask on for the first 0.5 miles, but I removed it for the rest of the 2.5 miles, as no one was around and I felt like walking without a mask would be easier.
I am still happy with my results. Let's see who can break my record of 3 miles in less than 45 minutes. I have been able to easily beat any fast walker I found while walking outside 
As I had also said before I consider myself generally as a fast walker, so I think my record is not easy to break
I walk for long distances, so you probably notice that my speed did not degrade as I got close to 3 miles! I probably start to see a slow down if I walk for more than 10 miles!
I believe as far as walking is concerned, I definitely feel good about my progress and I consider my walking as back to my old normal.
In the quest of getting back to normal, I believe I should now focus more on jogging and swimming. I had started jogging a month ago, but from now on I will push for higher speeds and longer durations.
Day 142 Post-op (Fri., Dec. 11 ) - Consolidation Day 61
I have decided to move my videos (from imgur) to youtube. I am therefore reposting my walking time records
Start time around 5:01pm:
Distance (Miles) Duration (Minutes) Video/Image
0.5 ? Unfortunately recording failed, but should be 7+ minutes
1 ? Unfortunately recording failed, but should be 14+ minutes
1.5 <23
2 <30
2.5 ~37
3 <45
In addition to the notes I had posted earlier for Day 142, I would also like to add that the way I speed walk, is not marathon style. Marathon style to me looks more like running than walking. I also find it a bit funny (with the hip movements 
), so I prefer to not walk like that in the park I was using to record this video However I know marathon style, would increase speed, substantially.
Also a request: If you know someone who is a fast walker, please see if you could convince them to do walk, using similar conditions like mine and then let me know the time. I'd like to know how slow I am compared to a normal fast walker (someone who has not done CLL) and if too slow, I'd know that I have to work harder towards getting back to normal speed.
Hey SNC
In your sig it says you have a 1 cm discrepancy between your legs. Why didn't you just lengthen 1 cm less on the already longer leg to fix your discrepancy?
Quote from: Highest on December 26, 2020, 02:18:25 AMHey SNC
In your sig it says you have a 1 cm discrepancy between your legs. Why didn't you just lengthen 1 cm less on the already longer leg to fix your discrepancy?
Hey Highest,
That's a great question Unfortunately the 1cm discrepancy comes from the tibia area (i.e., my right tibia is 1 cm taller than my left tibia). Dr. M and myself both thought it would not be a good idea to try to fix that discrepancy by adding another discrepancy (of having uneven tibia and femurs both).
No one can tell the 1cm difference. I myself can see if when I compare my legs, as my right knee is a bit taller, when straightening my legs. I must have had this discrepancy for a long time perhaps since I was growing in my teen years. However I never felt any major (negative) impact cause of the 1 cm discrepancy.
I probably can treat it with having an insole (of 1cm) in left shoes, but I have not felt any pain in knees, and my walks look normal, so I have not had any motivation to look for treating it.
SNC - couldn’t agree more with you; advice that should guide everyone. I’ve been researching and waiting for a very long time (over a decade) and look forward to pulling the trigger in early 2021. Happy holidays to you and all - esp those CLLers like you who have taken the time to share their experiences.
Quote from: L8GrowthSpurt on December 26, 2020, 03:41:30 AMSNC - couldn’t agree more with you; advice that should guide everyone. I’ve been researching and waiting for a very long time (over a decade) and look forward to pulling the trigger in early 2021. Happy holidays to you and all - esp those CLLers like you who have taken the time to share their experiences.
Good to see this, L8GrowthSpurt,
I wish you a great 2021 and hope to see you here tall and strong soon,
SNC
Day 143 Post-op (Sat., Dec. 12 ) - Consolidation Day 62
Day 144 Post-op (Sun., Dec. 13 ) - Consolidation Day 63
Day 145 Post-op (Mon., Dec. 14 ) - Consolidation Day 64
Day 146 Post-op (Tue., Dec. 15 ) - Consolidation Day 65
Day 147 Post-op (Wed., Dec. 16 ) - Consolidation Day 66
Day 148 Post-op (Thurs., Dec. 17 ) - Consolidation Day 67
Day 149 Post-op (Fri., Dec. 18 ) - Consolidation Day 68
Day 150 Post-op (Sat., Dec. 19 ) - Consolidation Day 69
Day 151 Post-op (Sun., Dec. 20 ) - Consolidation Day 70
Day 152 Post-op (Mon., Dec. 21 ) - Consolidation Day 71
Day 153 Post-op (Tue., Dec. 22 ) - Consolidation Day 72
Day 154 Post-op (Wed., Dec. 23 ) - Consolidation Day 73*
* Weekly updates or longer make more sense (than daily updates). However I list all the days to hopefully make searches more convenient. E.g., if at the top right search box, we look for Day 150 or Consolidation Day 70, the following updates would hopefully be easily found.
Updates: In the journey of going back to normal, the most important items to note are my strength and flexibility. I feel stronger on a daily basis. E.g., I feel more comfortable with squats on a daily basis. My flexibility also improves as time passes. I have posted some videos related to my walks already.
I finally got a chance to try the monkey bars workout to check whether I could be as comfortable as I used to be, pre-op. Turned out to be piece of cake! I feel very completely while on monkey bars, as if I had not done any surgery. I now believe I could have resumed such activities much earlier. Here is a short video of my post-op monkey bars:
Painkillers: I had stopped Gabapentin on Day 87 (Sat., Oct. 17, i.e., Consolidation Day 6). I had completed my Tramadol withdrawal on Day 90 (Tue., Oct 20, also Consolidation Day 9). I have not used any painkillers since then.
Pain: It's been a couple months I have experienced no pain or any discomfort related to the CLL surgery. I have added several daily activities (two stretching sessions, several mile walks, jogging, swimming, cycling, etc.). I get muscle soreness on legs (e.g., on calves when I walk for over 10 miles or so), which I think is normal for any athlete. Good thing is I typically feel fresh with soreness gone, by the following morning.
Sleep: My night sleeps (of minimum 7 hours per night) are even better than before the surgery. That could be thanks to my less stressful work during covid-19 times, better diet, and being more active. I also typically take an afternoon nap.
I will continue to post my updates until I feel completely normal on all activities I used to do before the surgery.
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