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Posted on Jan 16, 2021, 6:17 pm
#491

awesome! i would need to follow your diary. 8cm with consolidation in 7 months.wow!!
could you please post your xrays(blurring out sensitive info) if you dont mind.

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Posted on Jan 16, 2021, 8:37 pm
#492

Quote from: fivetenneeded2016 on January 16, 2021, 06:17:11 PMawesome! i would need to follow your diary. 8cm with consolidation in 7 months.wow!!
could you please post your xrays(blurring out sensitive info) if you dont mind.

Hi fivetenneeded2016,
Consolidation in month 5; cause today, I am at the end of month 5, and full consolidation must have happened a few weeks ago.

Sure, I'll post them. Dr. M.'s office gave me a CD this time (on Jan. 12th). I'll post them as soon as I find a PC with a CD player.
I have also already posted the distraction time x-rays.
I had also posted the info on two more x-rays, one pre-op to measure the left & right height discrepancy and another, at end of distraction, to double check that there was not femur height difference.

 

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Posted on Jan 23, 2021, 8:41 am
#493

Quote from: StrydeNailChallenge on January 16, 2021, 08:37:11 PMHi fivetenneeded2016,
Consolidation in month 5; cause today, I am at the end of month 5, and full consolidation must have happened a few weeks ago.

Sure, I'll post them. Dr. M.'s office gave me a CD this time (on Jan. 12th). I'll post them as soon as I find a PC with a CD player.
I have also already posted the distraction time x-rays.
I had also posted the info on two more x-rays, one pre-op to measure the left & right height discrepancy and another, at end of distraction, to double check that there was not femur height difference.

 



did other people notice your height change ? did you fell any posture change while walking ? how much you gain height ?

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Posted on Jan 31, 2021, 6:30 pm
#494

Quote from: montahn on January 23, 2021, 08:41:50 AM

did other people notice your height change ?

Hello montahn, sorry about the delay.   

Since my surgery happened during the covid-19 stay-at-home times, and also thanks to my fast recovery in months 5 post-op, I've got to meet only a few colleagues, friends and family members, in person, while I did not look normal! 

Some close family members and friends knew about my surgery from the beginning. For the rest, If they notice that I look taller, I pretend it's the shoes, or that I got thinner. In any case, I don't mind telling people about my CLL if needed. 


Quote from: montahn on January 23, 2021, 08:41:50 AM

 did you fell any posture change while walking ?  ?



During distraction I walked like a robot or penguin Femurs with Dr. Shahab Mahboubian - July 2020 That improved starting a couple weeks into consolidation.

I believe my posture has improved compared to before the surgery for two reasons: 1) I had a bit of femur height discrepancy (left femur a bit shorter than right) which was mostly fixed by lengthening the left a bit more than right.. 2) I have been consistently exercising and stretching; the keyword is "consistency". I've always been very active and athletic, but before the surgery, I was not consistent.

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Quote from: montahn on January 23, 2021, 08:41:50 AM
 how much you gain height ?

8cm.

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Posted on Feb 1, 2021, 2:27 am
#495

Wow I am very surprised that people do not "dig into" it more when they notice that you are taller.

Do you think they would notice if you also did tibias and gained 4-5cm more? (I know this is not your desire, but for example if you did want to)

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Posted on Feb 4, 2021, 3:51 am
#496

Hi SNC,

How are you feeling these days? It's been so many days that you haven't posted a video update, are you still doing your daily routine exercise? Have you tried anything new?

Hope you are feeling well Femurs with Dr. Shahab Mahboubian - July 2020

LuMu

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Posted on Feb 9, 2021, 10:31 pm
#497

Quote from: Vibes on February 01, 2021, 02:27:09 AMWow I am very surprised that people do not "dig into" it more when they notice that you are taller.

Do you think they would notice if you also did tibias and gained 4-5cm more? (I know this is not your desire, but for example if you did want to)

Vibes, you answered your own question. I did the femurs' stryde mainly to experience the challenge and learn from it and looked at the height gain as a side benefit. I will not do tibias for various reasons including the following: 1) I look for challenges and at times I repeat them; but for the CLL, I don't think I would learn much if I did the tibias, 2) doing tibias, I would be too tall. I am quite happy with 180ish height, 3) CLL put a lot of pressure on my friends and family who knew about it. I don't want them to go through this once more.

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Posted on Feb 9, 2021, 10:33 pm
#498

Quote from: LuMu on February 04, 2021, 03:51:19 AMHi SNC,

How are you feeling these days? It's been so many days that you haven't posted a video update, are you still doing your daily routine exercise? Have you tried anything new?

Hope you are feeling well Femurs with Dr. Shahab Mahboubian - July 2020

LuMu

Hi LuMu,
Thanks for checking on me. Everything is good and I feel better (stronger) than a few weeks ago, since my last post.
Sure, I'll post some videos soon.

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Posted on Feb 9, 2021, 11:18 pm
#499

Welcome back snc glad everything is fine 💪🏻

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Posted on Feb 10, 2021, 6:19 am
#500

Quote from: ghkid2021 on February 09, 2021, 11:18:35 PMWelcome back snc glad everything is fine 💪🏻

Thanks ghkid,  I appreciate your support since the beginning of my CLL journey.

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