MEDICAL DISCLAIMER: The information provided on OrthoLength Pro is for educational purposes only and does not substitute for professional medical advice. Always consult with a qualified orthopedic surgeon.
Posted on Nov 22, 2015, 10:55 pm
#141

It's good that you're improving, I've read recoveries are different for everyone.

You should exercise for months and consult a million doctors before deciding on amputation.

No way you'll get back to normal by amputating a leg.

Like (0)
Posted on Jan 10, 2016, 2:18 am
#142

Updates?

Like (0)
Posted on Jan 19, 2016, 10:50 pm
#143

update is im better . but nowhere near where i need to be

my left leg still is weak,and has a limp. my right look looks ok when walking

the issue is strength... not sre of its due to my past achilles issues, but i can walk   fast  no matter how hard i try

i have to put a ton of energy into walking at a normal pace, so its hard to walk   anything but a short distance

I can barely do  heel raises now, which is better than before, but nothing compared to how i used to be...

 my walking is very strained.... i keep hearing i just need more pt, strengthening, but ivdont know... my achilles/calf area is just so weak

now regarding the lower leg amputation, this is what everyone needs to understand

my legs,  especially my left leg  has little push off power... thats the reason for my issues... just so stiff, and weak...

id guess im 40 to 45% of what i was.... and this ALL due to my achilles issue... though my left leg has a few other issues

i mention lower left leg amputation, because they technology now that mimics the achilles/calf, and can  be as efficient as a normal leg

no, its not the same thing, but   id be generating A LOT more push off strength from this  device than i can now

its not like im trying... my achilles is so weak, that when i walk, im expending a  lot more energy than a normal person would

its just awful to be honest and very depressing... i need to lose 30-35 lbs now,etc because i literally have no life

i spoke with the dr that did my achilles, dr shah, and he just says to come do a reconstruction to get more strength.

i just dont believe  i can gain  much more strength.. tgis is not me being a defeatist, or lazy

I should have done more research, and not listened to the dr when he said no loss of strength from achilles surgeru

look up studies on achilles lengthening... there  seems to be a permant loss of oush off power, and its a significant loss

now thats for only 1 leg... i had open achilles lengthening on 2 legs.... we are likely talking a severe permant loss of push power

dr paley told me as such... i asked him could i get  back to 90% after achilles lengthening... he said very bluntly, NO.

He flat out said no... he said maybe with gastroc recession... he mentioned achilles shortening, but not 100% assured it will work

Dr monegal thought I culd make a full recovery, but I don't think he realized  what the other dr had done

when monegal does a tenotomy, he dos it the day of the surgery, makes small incisions, and, i might be mistaken,  but makes a tear, so the tendon can stretch

its my nderstanding that he does not actually cut the tendon completely, then  stitch it up after a lengthening

  he knows now that i had an open surgery months after my initial operation, and that my ballerina was very severe... he was shocked at why they hadnt fixed it before

i had -60 degrees  flexion

now dr monegal didnt say im screwed, but i did  sense a change in his texts to me

i think the only way i get back to a normal life is by   getting a rtand new lower leg... my left leg has many issues

  1-  nerve damage... i cant feel part of my left foot... it is supposedly sural damage, which isnt supposed to hurt function, but thats not really true... it does create a defecit

2-    open achilles lengthening, with large nasty scar... this has futher weakened my left leg severely

3- further surgery to correct  a deformity, which has  left me with a rod and scress in my left leg... now it doesnt matter which dr does this surgery

this is further trauma to the leg, and has further weakened my left leg..

when you put all this together,  i hope members can see why i think about lower left leg amputation... it isnt because i think ill be  100% pre surgery...  but i do believe it would improve my current situation...

look up the iwalk biom... people can walk fast, jump, and even jog on this thing

its possible to get  to 90% of what you were

my left leg is maybe 30% of what i was, and the achilles lengthening likely caused  permanent damage... certainly the nerve damage is permanent...   it hasnt changed in well ocer a year

i hope everyone now understands my situation, and my thinking.. maybe some will still disagree, but they wont think im totally crazy now

i have advice for members considering this operation

do not do it...

I am very depressed today... cant go enjoy a walk, 30 lbs overweight...

its not worth being 7 cm taller if you barely go out

im determined to get bac to normal, but   doubt its possible without further  surgery

Like (0)
Posted on Jan 19, 2016, 11:01 pm
#144

Have you done any reseach about GH (grow hormone) ? Ask to a specialist if this could help you. I remember to see something about tendon recovery with that

Like (0)
Posted on Jan 19, 2016, 11:09 pm
#145

I'm familiar with hgh, but I don't think it'll do much

the weakening comes from the lengthening itself.  My left leg has so many  issues that have weakened my leg... i really be surprised if anything could my left leg back to an acceptable state... just too much permanent damage and trauma.. id like to believe im wrong, but in my brain, i know the odds are against

only hope i have of walking normally at a decent pace  is  an advanced lower limb prosthesis

 the amount of energy i have to expend to walk at even a normal speed is truly unbelievable

and  with my friend today, i told him to walk fast, but fast in the sense of being in a rush

he did it, and just flew right by m... i couldnt get  near me.... i just do not have the power in my   lower leg... i tried walking as hard as i could, and i coukdnt come close to him, and he was just doing a normal  sped up walk

it was very disheartening...  there's no  power being generated... and this seems to be a soft tissue issue... doesnt seem like muscle herapy is gonna fix this power loss

Like (0)
Posted on Jan 19, 2016, 11:19 pm
#146

hang in there. I am sure everything will turn out on the bright side FINALLY FIXING MY LEFT LEG WITH DR. MONEGAL IN BARCELONA- JULY 2,2015

Like (0)
Posted on Jan 20, 2016, 1:13 am
#147

crimsontide,

Have you ever thought that maybe the problem lies within yourself and not with your legs, not with Dr. Shah, not with Dr. Bagirov, and, heck, not even with your ex-gf? I have been following you diaries and you seem to be very stubborn and impulsive. You complain about everything and do not think through your decisions very well.

Dude, you're always in denial. You ask for forum member's opinion but you never listen to them. It seems that you ask for opinions because you're only seeking for reassurance.

I'm gonna walk you through some of your decisions here:

First, you partly blame Dr. Bagirov for your problems because you think he's subpar. And whose fault was that? You went to him (a doctor lacking credentials) instead of Mitkovic (who has more credentials on this forum and old forum) because Mitkovic was not replying to your emails. Have your ever thought that maybe he's freaking busy? or you annoyed the heck outta him with your emails?

Btw, you said:

Quotejust as a heads up to anyone thinking of mitkovic....   don't even try.... he won't contact you...
I emailed him a month a ago, and I received a reply in less than 24 hours. Maybe you should improve the way you write too (punctuations, tone, etc.) then maybe your emails can be more enticing. But whatever, this isn't a big deal.

Second, you decided to undergo release surgery despite the opposition from this forum and even from your doctor, Dr. Bagirov, because you said:

Quotenothing wrong with  getting a release....  like i said,palsy does it all the time
Please enlighten me on this one. Where's the logic here bro?
Quotewannabe, lets take this very logically... start with premises we can agree on

1- palsy does releases

2- paley does do it not just  as a fix, but as a preventive measure

i think  we can logically infer that the reason for doing the release beforehand is because  in his mind, the complications of ballerina outweigh the risks of the release?FINALLY FIXING MY LEFT LEG WITH DR. MONEGAL IN BARCELONA- JULY 2,2015
So if Paley told you to eat sh11t, you'll eat sh11t?

And then, you took your frames off a few months early because:

Quotei guess  healing is really  down to your genetics, as far as bones go... ill have frames off before many others...I'm convinced though that the reason others don't heal so well are the long times in frames
A few months after..

Quotebut i have somewhat bad news

i  had the surgery, then had casts put on because of the achilles... thought the cast would keep leg in place

well, my right leg which was healed, is straight, but my left leg is not
I am not trying to attack you or something. I just want to knock some sense into you and want you to be fk1ng strong. I really feel sorry for what you are experiencing right now. I truly am. However you brought these problems to yourself. Dude, I urge you to see a Psychiatrist/Psychologist right now. And don't fk1ng amputate your leg. Whatever, your brain tells you. Just fk1ng don't. Just for once, listen to us.

Like (0)
Posted on Jan 20, 2016, 9:04 pm
#148

Not sure how multi quote

Bagoriv's frames are too tiny, and aftercare was nonexistent... I don't think anyone can disagee with that... Who knows how "its my life"  is now,

I never really considered Mitkovic because of the momorails...  He actually emailed me.  Mitkovic has had more than a few bad cases

Bagirov   technically a never told me anything... He speaks no English at all, and was very hard to reach him.  A bigger problem is  no one else speaks English at his office, so you have to wait forever to get a reply... That might have changed


You did not read my diary carefully if you think I took off the frames because I wanted to...

Dr shah took off the frames because he said it would be okay... My right leg turned out to be okay,  but left one did not..  When I contacted him about it,  his response was "  i expected that this could happen, no problem, come see me for correction"

He said the exact opposite before the surgery

 I'll say more about Mitkovic... he has had many issues... including  legs simply caving in due to his nail and frames.. T

Tiny, you seem to to think that I'm a rare case.. you have not had this surgery,  but I can tell you   most patients are suffering  problems... I'm just very open about it, and don't accept it

Look at rgkey... he posted a video of him squatting, but he doesn't actually do even 1 real squat.. now maybe that's acceptable to him and others, but not me

Kilokahn has issues going downstairs, etc... Ask yellow if he's healed yet

Who is the patient of Paley that has leg snap?? I can list a few more, but won't because they wouldn't like it...

Look at Sweden... he posts that he still sometimes has days he can barely walk...l ook at his videos...    this is a person that was a  great athlete. Swden is honest about his situation

If you go through the diaries, the success rate is quite low.. Some people that post positive things on this board can not even walk after over a year...   This is fact btw, and not conjecture... When I say can't walk, I don't mean someone like myself, who just can't walk as they used to.. I mean they use a wheelchair....

You contacted Mitkovic recently, which means you're thinking of this surgery

I was very similar to you... I'd read the diaries,  and think most seem positive... those guys complaining   only have themselves to blame... I'll be fine

That is not the reality...  I'm just very open about it

To give an example... I see Kilokahn's video of his walking... Now this may surprise the board, but I can walk similar to that... From my writing, that might be a big surprise, but I'll explain

You can't notice the amount of energy I use to  walk normally... or how it feels...  So it's simply not acceptable to me...  and I can't walk at speed... I can walk at the speed shown in Kilokahn's video, but  can't speed up. At the airport,where everyone is in a rush, 60 year old men leave me in their wake

This is not acceptable to me... I'm starting to think that it's not simply the achilles release that is the issue

I've heard of 2 patients recently that have soft tissue issues, or can't walk as fast as they used to because of tightness. Kirkp1 posted about it too. Maybe time and therapy will fix the issue, but  it's not so straightforward

My left leg has multiple issues... push off strenth is the biggest one....If my tendon and nerves are shot, along with bone issues, then this leg is basically  almost useless... not totally... it still technically works, but is so damaged that I barely do anything involving walking.

I'm  not the only one either...  Ask Sweden about his ankles.... and there are others...

My condition is just not acceptable to me.. to others, maybe they're okay with    walking speed reduced, or arthritis, or any other of a host of problems.

For me, it's not acceptable... The energy required for me to  simply walk normally  prohibits me from  walking  anything longer than a few blocks. T Uncomfortable blocks too

Perhaps more exercise will improve me to 90%, but maybe not


Technology has  improved so greatly that  a lower prosthesis is certainly better than a limpy 40% leg

My uncle is 74..He just had his lower left leg amputated

There are patients at his facility that can jump rope, and  jog with their prosthesis.

 I can barely do a heel raise...  I couldn't jump or jog now no matter how hard I tried.    Soft tissue damage is very hard to fix.. It's killing my walking ability


I hope to recover... Monegal feels I will, but who knows...
You can choose to believe I'm an anomaly, but it's  false... This is not my opinion either...

Tibike, thank you   

Like (0)
Posted on Jan 20, 2016, 11:16 pm
#149

Hope you get better Crinsomtide. You have reason... this surgery is not a fking joke and it is disgusting how some doctors contradict themselves.

You are a Monegal patient. You have met his patients. You know I'm telling the truth. Musicmaker can't walk since 2014. Big fking disaster. Others can't walk as they used to. Not their fault but they aren't as open as you. Some of these people are delusional.

All things you say about patients in the forum are true. They are not healed even though they post positive things. People lie for many reasons. This is serious surgery and doctors should tell the truth instead of 'selling' their services.

Like (0)
Posted on Jan 21, 2016, 3:19 am
#150

I have to agree with Crimson on this. This surgery is an extreme decision that shouldn't be taken lightly. Unless you need it psychologically speaking I wouldn't recommend it at all. Nothing is given when it comes to this surgery I'm sorry to say.. I'm an optimistic myself but if you don't have to do it: DON'T

Like (0)

You must be logged in to post a reply.

Related Topics