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Posted on Dec 25, 2013, 4:23 am
#31

Quote from: BilateralDamage on December 25, 2013, 03:34:16 AMAlmost the same height as me, I'm 167 cm and aiming for 173-174 after my first PRECICE lengthening.

Then I'm gonna go back and do another 6 cm on my tibia to hit 180 cm!

What's your wingspan and arm length?  Also sitting height?

Good luck! Where do you plan to go for LL?

I also plan to come back and hit the tibias later, but it would be wise to think of it one step at a time.

Unfortunately, I don't know what my wingspan/arm length/sitting height is. Never really bothered to measure those.

However, while I was in yoga class a couple weeks ago, a guy from the college basketball team was sitting next to me. We were on our knees, sharing the mattress. I realized that we almost had the same torso length.

Quote from: Medium Drink Of Water on December 25, 2013, 03:42:54 AMI think femurs are the right choice for you.  Your femurs look disproportionately short, especially compared to your long arms and torso.  I think you'll look more proportional after LL.  Hope everything goes well for you between now and then!

I told this a thousand times to people who worried that LL would mess up my proportions. I always told them that I was already disproportionate. You know, that bull  idea of "God made you perfect the way you are". Nah. I think I'll pass.

Thanks, I hope so too. I wouldn't mind bad things happening to me, but I can't bear to see my family getting sad over this. I promised them that I'd be fine.

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Posted on Dec 25, 2013, 10:35 pm
#32

I don't want to reveal my choice until I pay for the surgery, but I'm for sure having the surgery done May 2014.  I'm excited to post a detailed diary, maybe a video log similar to leechletll. Fitbone Femur Lengthening in Istanbul - Dr. Muharrem Inan

Always smart to take it a step at a time!  Could you tell me more about this nail that your doctor is using?  What's the weight-bearing, etc.?

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Posted on Dec 25, 2013, 10:57 pm
#33

Fitbone has a larger diameter than the first Precice, therefore it has less risk of bending or breaking. However, just like the first Precice, it isn't weightbearing. You either have to lengthen one leg at a time, or stay on a wheelchair during the lengthening phase. It usually takes an additional month after beginning consolidation for the patient to start walking. Fitbone's advantage to the Betzbone or to Albizzia equivalents, I believe, is that it is a controlled rate mechanism rather than a ratcheting, mechanical "clicking" system in which you have to bend your legs to a certain angle to lengthen the bone. Similar to the Precice, Fitbone is activated by a remote control. I believe this means less damage to the nerves and soft tissue, and faster consolidation of the bone bridge. I don't care about weightbearing as long as you ensure to undergo a good physiotherapy following the operation. Precice is a magnetic system; whereas Fitnone is an electrical system, but they both have remote controls.

http://m.youtube.com/watch?v=I6qFbZfFW1Q
http://m.youtube.com/watch?v=xkAa7-eG-KU

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Posted on Dec 26, 2013, 6:27 pm
#34

Hi Chris,

Is there any accomodation provided in the package? and is there any workout sessions included?

I assume that after the lengthening phase you will be able to move yourself with crunches, is that correct?
I'm thinking that in the event on slow bone regeneration you will want to be able to move around.

Do you know if the Fitbone device modifies the curve of the femur bone? I don't know if this is a good or a bad thing, maybe someone can let us know.

And finally, does anyone know if you can end up with knee problems from Fitbone. I know that when using an internal device on tibias you can have knee issues and I'm looking to compare with Precice and Jamalnail.

Best of luck,

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Posted on Dec 27, 2013, 10:12 pm
#35

Hi Keep Growing,

Accomodation isn't included in the package, but nevertheless I did some research for international patients in the future. There's Mim Hotel right next to the hospital, and if you make a special deal with them for staying 3 months, the rate is €60 per night. They have special rooms for disabled people such as LL patients. Renting a nearby residence/apartment suite for 3 months would be a lot cheaper though. Mim is a 4 star hotel, there might be cheaper options. I'm thinking about setting up a rehab center-ish patient home in Istanbul for international patients in the future, but obviously I have to recover first. (P.S: I haven't talked about this with the doctor. We have no agreements whatsoever, I'm just a regular patient. I wish we had an agreement though, I'd gladly advertise the Fitbone or the doctor to pay less.. Lol.) I'll be staying at home, which is an hour away from the hospital in heavy Istanbul traffic. Not bad.

Workout sessions will be adjusted depending on the lengthening phase. There will be rehab every single weekday with the physio, who will be coming home to help me out. He will also assign therapy movements that I have to do on my own every day. The PT will be heavier after we pass 5 centimeters.

Your assumption is correct, I will hopefully be able to walk with crutches after the lengthening (plus some additional time for consolidation OR immediately after lengthening if my doctor does another surgery to insert the titanium sheets for support.. so there are two possible scenarios.)

What do you mean with "modifying the curve of the femur bone"? If I got it right, I believe you must be asking about the MAD (Mechanical Axis Deviation)? Those are calculated weeks before the surgery on your X-ray, and sent to the doctor as a report.

I'm having my femurs lengthened, so I don't know if knee problems are relevant. We'll see. It won't be a breeze, but I hope and pray there won't be any complications we can't deal with. A friend of mine had a leg discrepancy problem and got his femur lengthened (only one leg) with the Fitbone with Professor Baumgart in Germany. He's fine now.

Cheers,
ChrisIsaak

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Posted on Dec 28, 2013, 11:05 am
#36

Hi,

The reason I asked about walking while lengthening is because I'm looking to return home and lengthen while performing my desk job. Off course I'll take care to go to a physio after finishing my day in the office.
I'm not sure what MAD is but have a look at the attached photo. You'll see that the femur is slightly bent. If you cut it and insert a nail it will somehow straighten and I'm not sure if this is ok on long term.
As far as the knee issues, well, the Fitbone is inserted thoughu the lower side of the bone so I'm thinking it may have some effect on the knee...or not ? as compared to Bliskunov nail which enters through the upper side. I'm really afraid of knee pain. Fitbone Femur Lengthening in Istanbul - Dr. Muharrem Inan

Cheers,

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Posted on Jan 1, 2014, 3:09 pm
#37

I'm currently in talks with Mim Hotel. Might actually stay there for at least a month since they have rooms for disabled people. It might be more convenient than staying at home for a while.

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Posted on Jan 4, 2014, 9:18 pm
#38

Checking in to the hospital today (Sunday) for blood tests.

Surgery on the following day (Monday).

In performance arts, when we want to wish good luck to someone, we say "Break a leg!"

I guess the phrase suits the situation just fine.

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Posted on Jan 5, 2014, 9:04 am
#39

Surgery tomorrow morning at 8 AM.

 Fitbone Femur Lengthening in Istanbul - Dr. Muharrem Inan

 Fitbone Femur Lengthening in Istanbul - Dr. Muharrem Inan

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Posted on Jan 5, 2014, 10:38 am
#40

I've been pondering about femur lengthening since i'm doing the tibia now. I know LON would make LLer impossible to sleep since the frames are high, unless you have thick buttocks. However I don't see much hindrances from Monorail. Can anybody give me some input on femur by way of Monorail?

I did talk with my doctor regarding internal nail, but all he could say was the price will be high. I'm looking forward to my recovery at home then restrategize.

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