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Posted on Jul 19, 2015, 7:31 pm
#41

Cooper, does the rod stay inside after you are all done or does it come out?  How would you compare this method with the Precice 2 method?  Yes, the hospital food looks good, lol.

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Posted on Jul 19, 2015, 9:05 pm
#42

How much does Dr Monegal charge for LON? Also, could you please ask him his opinion on LON vs LATN vs LATP (lengthening and then plating) for 5 cm and a timeline of three months to remove frames?

Fantastic diary, I hope to soon have my tibias done and one day have my femurs as well. Great photos, and I know you'll do great!

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Posted on Jul 20, 2015, 5:14 am
#43

Hi Cooper

Congrats on your another LL journey!  You are the real LL hero.  It is not just because you have done two LL surgeries, but because you are willing to share your story and happy to help other members here perhaps outside as well.  After two surgeries, you will be definitely different and live in a very different life.  I am very happy for you!!   I really wish I could have done LL but had no chance so far.  But I will do it someday when the time is right.

I just have one question for you.  Since you have done a quite successful LL on femurs with Dr. Paley using Precise, why didn't you do tibia with him?  Is that mainly because of the better price with Dr. Monegal?  I also kind of see he is a Dr. who really cares about his patients.  But, I probably can't do ll with him because of limited time.

Anyway, any kind of your thought will be highly appreciated!

Wish you the best of LL journey! 

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Posted on Jul 20, 2015, 6:32 am
#44

Quote from: patientdad on July 19, 2015, 07:31:32 PMCooper, does the rod stay inside after you are all done or does it come out?  How would you compare this method with the Precice 2 method?  Yes, the hospital food looks good, lol.

It stays in for a year or two. Like precise the nail has to come out at some point but timing does not matter. It can be done via out patient surgery. The magnetic device of precise is bulky and one have to push harder to get to close proximity of precise rod.

The fitbone has small censor and goes on top of the skin. Both device is effective and precise --not ratcheting system, that is the best part! But fitbone has small wire comes through skin. Both are top notch and world class.

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Posted on Jul 20, 2015, 7:55 am
#45

Quote from: Arche on July 19, 2015, 09:05:03 PMHow much does Dr Monegal charge for LON? Also, could you please ask him his opinion on LON vs LATN vs LATP (lengthening and then plating) for 5 cm and a timeline of three months to remove frames?

Fantastic diary, I hope to soon have my tibias done and one day have my femurs as well. Great photos, and I know you'll do great!

Arche- how you doing bro? I think it is about 19k euro. The price may be on his thread. I will check with him LATN vs LTAP.

I think 3 months time frame is doable for 5 cm.

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Posted on Jul 20, 2015, 8:10 am
#46

Quote from: Ghostfish on July 20, 2015, 05:14:32 AM
I just have one question for you.  Since you have done a quite successful LL on femurs with Dr. Paley using Precise, why didn't you do tibia with him?  Is that mainly because of the better price with Dr. Monegal?  I also kind of see he is a Dr. who really cares about his patients.  But, I probably can't do ll with him because of limited time.

Anyway, any kind of your thought will be highly appreciated!

Wish you the best of LL journey!

Ghostfish- thanks for your wishes. I will need lot of them  Fitbone Stage Right Tibia Lenghtening (Dr. Monegal), Barcelona, Spain. I did not go to dr. Paley solely for the price. I thought about going back but didnot feel right to spend another $100k.

Plus dr. Monegal was everything I was looking for. Fine hospital in advance country, internal option and experience and caring doctor.

Dr. Paley is the most busiest surgeon I have seen in my life. When he came to my room he was flanked with 10/12 other people. He is celebrity doctor in my words. But you are in great hands of experts. All the complication is treatable and you will have safe lengthening. Cannot say the same for other doctor except dr. Rozbruch in my opinion. I am inquiring a lot regarding Dr. Monegal his experience in dealing complication.

But as far as caring dr. Monegal is in top chart. He comes close to dr. Jamal as far as caring and checking well being of the patient. I am still early to convincingly vouch my opinion. But what I have seen here I am impressed and very happy.

My flexion is 90 and extension is 0. Very happy with the result so far. Calve muscle is relatively tight but swollen has come down quite a bit.

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Posted on Jul 20, 2015, 8:18 am
#47

Day 6: have a good 5 hour sleep night. No pain just some stiffness in calves muscle. I did light stretching in bed in the morning. Asked nurse to bring ice. I am icing as I am writing this note.

Had a break fast and now waiting for my good physio. I might leave to MIC today. Really want to get out form here. I can stay couple more days if I request at no cost. But rather be with other LL friends at MIC.

I went outside the hospital porch first time yesterday evening. It felt good to be outside and breathe in open air.

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Posted on Jul 20, 2015, 9:38 am
#48

Hey cooper as you've been on the forum for ages I'm sure your aware of all the studies relating internal tibial nailing and permanent knee pain what made you decide to go with this option?

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Posted on Jul 20, 2015, 10:14 am
#49

Didn't Dr. Monegal say something about a different way of cutting the bone below patella?
I don't want to quote him wrong but he was pretty confident that the knee pain is avoidable this way and that his patients don't suffer from this. At least that's what I remember him saying.

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Posted on Jul 20, 2015, 11:34 am
#50

Another favor to ask of you Cooper: once you are at MIC, please let us know how reliable and speedy the internet connecion is (especially with VPN).

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