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Posted on Jan 19, 2019, 6:15 am
#1

Just a general curiosity question for the community.  For those of you who really want to pursue the CLL journey, what is preventing you right now from going forward with the surgery / procedure?

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Posted on Jan 20, 2019, 2:29 am
#2

Hi Guys,

I went ahead and summarized the reasons below from the previous posts.  Any other reasons?

-Financial Burden - How to pay for it?
-Finding the time to take time off from job/career
-Fear of Chronic Pain
-Fear of Disability
-Lack of Proven Case Studies (Other patients)
-Fear of not being able to return to previous life activities
-No guarantee that things will go as planned and as hoped for
-Loss of extremity
-Death
-Pain that comes with temperature changes
-Loneliness
-Remorse / Regret
-Depression
-Journey Fatigue
-Uncertainty regarding Doctor Ethics

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Posted on Jan 21, 2019, 2:22 pm
#3

Quote from: Cr7 on January 21, 2019, 01:58:08 PMCan u pls elaborate how come La growin had a bad outcome?


Hi Cr7.  I think you may have misunderstood.  LAGrowin had a great outcome and achieved nearly 3 inches of height and normal walking ability in 6 months w/ Dr. Mahboubian of North Hollywood, California in USA.

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Posted on Jan 21, 2019, 3:31 pm
#4

Quote from: Cr7 on January 21, 2019, 03:00:05 PMHello infullstryde, I think that Lagrowin had a good outcome, I followed his diary and am following yours too.
However I said to elaborate in response to myloginacc's post who said "he is an LL vet who had a bad outcome. Don't attack him".
I hope that your pain management keeps on getting better.
Remember all this pain will go away but the height you will gain will remain with you. Godspeed brother.


Thank you CR7! I really appreciate your support.

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