Quote from: leonazul99 on October 16, 2022, 06:39:42 PMBeen at 0.78mm daily for 4 months, no consolidation, have skipped up to 2 days for pain.
Quote from: SpeedDialer on October 17, 2022, 03:14:12 PMI am fairly certain you don't mean 78mm daily (search '78 mm in cm' in google to see what I mean)
Think you meant 0.78 mm per day right?
Hm... 0.78*15=11.7 so I guess for g-nail that'd be about 11-12 gnail clicks per day? I'm on 10 clicks per day now (about 0.666 mm per day I think?)
I'm hoping the doc will let me do even less per day, I just don't know how low I can go before premature consolidation becomes a problem
it's for the Betz nail, each click is .0052mm. It 13 days for 1cm rounded or 1.014cm
Yep, 0.78. Whether premature consolidation happens is individual but I read somewhere that the average person consolidates at 0.25mm a day, so Im scared to go more than 2 days without clicks. Keep in mind if PC starts happening in the first couple days you can still break through it and get back to normal. There was a time clicks became really hard at that rate and I went to 20 clicks and then back to 15 and it was fine. I don't think one day you just can't click and that's it. You will notice the difficulty building and building.
Quote from: SpeedDialer on October 17, 2022, 03:14:12 PMI am fairly certain you don't mean 78mm daily (search '78 mm in cm' in google to see what I mean)
Think you meant 0.78 mm per day right?
Hm... 0.78*15=11.7 so I guess for g-nail that'd be about 11-12 gnail clicks per day? I'm on 10 clicks per day now (about 0.666 mm per day I think?)
I'm hoping the doc will let me do even less per day, I just don't know how low I can go before premature consolidation becomes a problem
At Novotel when you got breakfast twice, did someone at the the buffet help you put the food on the plate each time? I find it a bit difficult to reach some foods (like the eggs in those metal heater things) while on the wheelchair
They always try to help. The ladies at the restaurant are so nice. Even too much for me.
Hi OzBoy39
First off, I've really enjoyed your diary and appreciate the information provided! This information is extremely valuable to some of the us who will be doing this procedure or are considering it.
I found out about CLL back in 2014/2015 and have now decided it's now or never. I've booked my surgery bi-lateral femurs using G-nails with Dr Giotikas in December 2022!!
I understand you stayed in Athens for 2 months, then went back home. I'm considering staying in Athens for 6 weeks then going back home. I live alone and I'm very independent. When you were at 6 weeks how was your mobility and ability to be self sufficient? If you lived alone do you feel like you would be self sufficient at 6 weeks or would you need assistants? I'm really curious about driving. Do you think you would be able to drive at 6 weeks? I'm thinking I may need to drive to PT when I'm back home. Any circumstances you think may be a problem at 6 weeks? If at 6 weeks you don't think you'd be self sufficient, at what point do you think you would be? Sorry for all the questions 
, I'm just trying to get an idea on how independent I will be at 6 weeks. I would really appreciate you input and response!
If anyone else who has been through the process has any input, I'd appreciate that as well.
Hi OzBoy39
First off, I've really enjoyed your diary and appreciate the information provided! This information is extremely valuable to some of the us who will be doing this procedure or are considering it.
I found out about CLL back in 2014/2015 and have now decided it's now or never. I've booked my surgery bi-lateral femurs using G-nails with Dr Giotikas in December 2022!!
I understand you stayed in Athens for 2 months, then went back home. I'm considering staying in Athens for 6 weeks then going back home. I live alone and I'm very independent. When you were at 6 weeks how was your mobility and ability to be self sufficient? If you lived alone do you feel like you would be self sufficient at 6 weeks or would you need assistants? I'm really curious about driving. Do you think you would be able to drive at 6 weeks? I'm thinking I may need to drive to PT when I'm back home. Any circumstances you think may be a problem at 6 weeks? If at 6 weeks you don't think you'd be self sufficient, at what point do you think you would be? Sorry for all the questions , I'm just trying to get an idea on how independent I will be at 6 weeks. I would really appreciate you input and response!
If anyone else who has been through the process has any input, I'd appreciate that as well.
Quote from: LimbExtender on October 24, 2022, 12:46:20 AMHi OzBoy39
First off, I've really enjoyed your diary and appreciate the information provided! This information is extremely valuable to some of the us who will be doing this procedure or are considering it.
I found out about CLL back in 2014/2015 and have now decided it's now or never. I've booked my surgery bi-lateral femurs using G-nails with Dr Giotikas in December 2022!!
I understand you stayed in Athens for 2 months, then went back home. I'm considering staying in Athens for 6 weeks then going back home. I live alone and I'm very independent. When you were at 6 weeks how was your mobility and ability to be self sufficient? If you lived alone do you feel like you would be self sufficient at 6 weeks or would you need assistants? I'm really curious about driving. Do you think you would be able to drive at 6 weeks? I'm thinking I may need to drive to PT when I'm back home. Any circumstances you think may be a problem at 6 weeks? If at 6 weeks you don't think you'd be self sufficient, at what point do you think you would be? Sorry for all the questions , I'm just trying to get an idea on how independent I will be at 6 weeks. I would really appreciate you input and response!
If anyone else who has been through the process has any input, I'd appreciate that as well.
I did gnail femur surgery in early to mid September so I actually think right now I'm roughly around 6 weeks
Right now here are the issues I'm bumping into:
- sometimes hip pain maybe 5-6 out of 10 sometimes but more often 2-3 pain will kick in (? maybe from the nail inside pushing against insides?) and sometimes that pain spreads to the rest of the leg sometimes and I gotta sorta ice pack it/wait it out for a while. Seems to be (not sure though?) related when I sit down too fast or take a step a bit too far forward. I also wonder if it is related to lying on the side, not sure though
- knee pain (3-4ish out of 10 pain)/thigh stiffness waking me up a few times each night -> I stretch/then ice pack it for a while each time
- lower leg nerve pain, sharp pain, goes from low pain to high real fast when one of my hip flexors is stretched more
- Although I think I might technically be physically able drive now, I'm a bit afraid of certain pains (like above) kicking in in the middle of driving and I wouldn't feel that comfortable doing it
- I am able to shower with the crutches, go the bathroom with the walker, and go to the taxi to PT with my crutches. I have not attempted stairs and am scared of them but I think I am technically probably able to do them with a rail to hold onto but would not feel safe doing it tbh. I will say that ordinary tasks tire me out alot more than they would normally though so that's a consideration.
- I can't really bend down to pick something off the floor that easily, I think I might technically be able to do it but don't feel safe doing it (lack of hamstring range of motion) and I just use the grabber
- Walking normally ish with crutches for me feels like a light hamstring stretch and sometimes that deep inside hip pain mentioned above kicks in after certain kinds of steps, not sure what triggers it
I'm not sure when I'd feel self sufficient, like I feel I am physically capable of alot of tasks with the assistance of crutches/walker but don't feel quite safe doing them. I feel like another month I'd feel alot better but then again my legs will also be tighter/more lengthened by then. I can see why they tell patients 6 weeks though, like I do feel so much stronger than before
If this deep hip pain would stop kicking it at various times, I'd feel alot closer to normal/more independent
Now then again, ozboy seems like his recovery has been better than mine so his input could be valuable. He has also walked alot more than me.
When are you coming to Athens?
Quote from: LimbExtender on October 24, 2022, 12:46:20 AMHi OzBoy39
First off, I've really enjoyed your diary and appreciate the information provided! This information is extremely valuable to some of the us who will be doing this procedure or are considering it.
I found out about CLL back in 2014/2015 and have now decided it's now or never. I've booked my surgery bi-lateral femurs using G-nails with Dr Giotikas in December 2022!!
I understand you stayed in Athens for 2 months, then went back home. I'm considering staying in Athens for 6 weeks then going back home. I live alone and I'm very independent. When you were at 6 weeks how was your mobility and ability to be self sufficient? If you lived alone do you feel like you would be self sufficient at 6 weeks or would you need assistants? I'm really curious about driving. Do you think you would be able to drive at 6 weeks? I'm thinking I may need to drive to PT when I'm back home. Any circumstances you think may be a problem at 6 weeks? If at 6 weeks you don't think you'd be self sufficient, at what point do you think you would be? Sorry for all the questions , I'm just trying to get an idea on how independent I will be at 6 weeks. I would really appreciate you input and response!
If anyone else who has been through the process has any input, I'd appreciate that as well.
Hi Bro
The first two weeks - you will need some help in mobility even though Gnail is weight bearing
Your muscles are weak, and thus u need a walker to walk.
It is not advisable to go outside alone until you are able to move with crutches.
Athens Road and Buildings are not wheelchairs or handicapped friendly.
I stayed in Athens for 9weeks, completed 85% lengthening before flying home.
You can do physio yourself by using Yoga Band for stretching and station bicycle for strength.
It is exactly what you will be doing at Athens for 4 times per week.
I drive when home, it should not be a problem.
You may experience some muscle stiffness and numbness - so jus take it easy, do massage and rest or do less clicks.
Once you stop clicking, your legs will improve day by day.
FYI...I was walking independently within 3 weeks consolidation.
No duck ass or wide legs, my walking gait was good but slow.
Now, i can do brisk walking and jog.
Do take this forum as a reference and consult the doctor before decide what to do.
After all, it is jus an experience sharing and none of us here is the LL doctor.
Good luck !
You’ll be able to drive at 6 weeks. Gmail is similar to betzbone which I had done
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