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Posted on Feb 1, 2023, 3:34 am
#1

After 1 yr of recovery, has anyone still not managed to walk unassisted? Please inform... thanks, curious about variation of recovery time.

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Posted on Feb 2, 2023, 9:10 pm
#2

Bump

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Posted on Feb 2, 2023, 9:24 pm
#3

Quote from: LengtheningDream on February 01, 2023, 03:34:04 AMAfter 1 yr of recovery, has anyone still not managed to walk unassisted? Please inform... thanks, curious about variation of recovery time.


almost 8 months post op here, delayed union and nerve damage and i have a friend who was on a wheelchair for 2 years after LL due to non union

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Posted on Feb 2, 2023, 9:43 pm
#4

Quote from: saltedchocolate on February 02, 2023, 09:24:36 PMalmost 8 months post op here, delayed union and nerve damage and i have a friend who was on a wheelchair for 2 years after LL due to non union


Care to share who your doctor/surgeon was?  Or the organization?  Was it due to the surgeon or just unlucky?

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Posted on Feb 2, 2023, 11:52 pm
#5

Quote from: lessthanavg8300 on February 02, 2023, 09:43:53 PMCare to share who your doctor/surgeon was?  Or the organization?  Was it due to the surgeon or just unlucky?


It was the surgeons fault, so, by the time i reached 3.5 cm. i was doing .75mm-1mm /day, then he said after seeing my xrays that 'Your left leg is lengthening slower due to tight muscles so speed it up to 1.25mm/day, bc of that I got nerve pain, Tho i had all sensation but when i removed frame at 6.8 cm, I went into the OT with alot of ballerina but full sensation, He did ATL and in that he cut my sural nerve during it. I wokeup with no sensation on my sole and aloooot of nerve pain, that nerve pain was 12/10. I would rather kms than experience that pain bc it was due to a nerve cut and he told me oh its just removal pain it'll go away with time.
I left him and went to a neurologis who conducted an MRI and ultrasound and i have a neuroma on the sural nerve which needs to be removed and nerve needs to be repaired

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Posted on Feb 2, 2023, 11:55 pm
#6

Quote from: saltedchocolate on February 02, 2023, 11:52:24 PMIt was the surgeons fault, so, by the time i reached 3.5 cm. i was doing .75mm-1mm /day, then he said after seeing my xrays that 'Your left leg is lengthening slower due to tight muscles so speed it up to 1.25mm/day, bc of that I got nerve pain, Tho i had all sensation but when i removed frame at 6.8 cm, I went into the OT with alot of ballerina but full sensation, He did ATL and in that he cut my sural nerve during it. I wokeup with no sensation on my sole and aloooot of nerve pain, that nerve pain was 12/10. I would rather kms than experience that pain bc it was due to a nerve cut and he told me oh its just removal pain it'll go away with time.
I left him and went to a neurologis who conducted an MRI and ultrasound and i have a neuroma on the sural nerve which needs to be removed and nerve needs to be repaired


What a f*cking nightmare.  Im really sorry this happened to you.  I cant imagine that type of pain.  I assume you went to Turkey or India for your surgery.  They really do not give a sh*t about people in these places.  Its just sham "surgeons" who are trying to escape poverty and are happy to cripple you and take your money to make that happen.

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Posted on Feb 3, 2023, 12:17 am
#7

Quote from: lessthanavg8300 on February 02, 2023, 11:55:58 PMWhat a f*cking nightmare.  Im really sorry this happened to you.  I cant imagine that type of pain.  I assume you went to Turkey or India for your surgery.  They really do not give a sh*t about people in these places.  Its just sham "surgeons" who are trying to escape poverty and are happy to cripple you and take your money to make that happen.


this is what my cut nerve which has now become a neuroma looks like on an ultrasound. the pain of when the nerve was cut. omg. omg i cannot put it into human words.

https://imgur.com/a/iJ9Zq7T

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Posted on Feb 3, 2023, 12:33 am
#8

Quote from: saltedchocolate on February 03, 2023, 12:17:43 AMthis is what my cut nerve which has now become a neuroma looks like on an ultrasound. the pain of when the nerve was cut. omg. omg i cannot put it into human words.

https://imgur.com/a/iJ9Zq7T


I am so sorry. Praying for your recovery!

May I ask who your surgeon was or from which country?

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Posted on Feb 3, 2023, 1:07 am
#9

Quote from: saltedchocolate on February 03, 2023, 12:17:43 AMthis is what my cut nerve which has now become a neuroma looks like on an ultrasound. the pain of when the nerve was cut. omg. omg i cannot put it into human words.

https://imgur.com/a/iJ9Zq7T


Yikes.  I cant even imagine.  Wishing you all the best in your recovery.

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Posted on Feb 3, 2023, 7:16 am
#10

Any more experiences?

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