They offer oxycodone. I try and sleep with legs as straight as possible, but either way it takes a mild bit of effort to fully extend them when I get up to walk. Sleeping really badly again tonight.
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You have to make efforts fully extend your legs at the knee area or hip?
I agree, it is wise to take as few oxycodone as possible.
Are you having pain at the ITB release site? Can you tell if ITB release surgery has helped (loose)?
Installing height- Programdude's Precice 2 Internal femurs with Dr. Paley
August 14th-
I really don't know if the release helped or not, all I know is it outright hurts, moreso than being tight(which is actually more of a good sign- tightness can mean bent nails and complications). Good news is working with my PT and independently icing it has helped make significant progress. Day 1 of the issue it would have taken a team of people to hold me down on my left side, and just yesterday it was still impossible to lie on that side and pressing down would make me jolt. Today my PT was able to massage into it well and stretch it. Certainly feels good to conquer issues- or at least make progress. So in 3 days 10/10 pain(with pressure) to 2/10 with pressure. One of the many reasons competent PT are ESSENTIAL for this process. They were able to identify the issue day 1, stretch me properly and turn things around/instruct me on how to turn things around in a matter of 48 hours.
As far as straightening, they can be straight fine- But they are anal about wanting them CONSTANTLY locked out. This is one of the big advantages to losing the wheelchair and using the walker/crutches.
Today I bought crutches and will be using those as much as possible. They are priced VERY fairly for the extreme quality and I look forward to getting used to them. They certainly feel more mobile and unlike the walker don't BUTCHER your palms. Seriously the walker gets old fast- waiting for the elevator every day using that is such a pain.
Just about halfway through the month and think my next x rays are in a week so I'm feeling pretty good. Gonna go to a going away party downstairs for two of the LL'ers who are leaving, and hopefully tire myself out. I really don't want a repeat of last nights total lack of sleep.
That is great that you get to use crutches soon. Hopefully you can go to more places with crutches.
I wonder what is Dr. Paley's reasoning to let you use crutches now instead of right after surgery. Is your bone more consolidated now, compared to right after surgery? Can the nail support more than 75lb now? I know you have lost some weight. But I am talking in general, not in your specific case.
August 15th-
In my case its just that I lost 20 pounds that lets me use the crutches now. In theory once you were with it you could pretty much immediately use them.
Got some ZZZquil which a LL'er who left today swore by, which will hopefully help save me at night. Speaking of that LL'er, his nail stopped working around 7 CM, which fortunately for him was his goal.
How were his proportions after doing 7CM?
Fine from what I could tell, you would never think twice about his proportions, at least with shorts on. He started off very short at around 5 3 or so. He had shorter tibia to begin with too.
Quote from: programdude on August 15, 2014, 11:49:58 PMFine from what I could tell, you would never think twice about his proportions, at least with shorts on. He started off very short at around 5 3 or so. He had shorter tibia to begin with too.
Awesome! I'm glad for him! I have friends who are 5'6 and completely fine with their heights. I hate to admit it, but 5'3 almost seems freakishly short for an adult man, but 5'6 seems very normal. Definitely not "ideal", but perfectly normal. Going from crazy short (height is unfortunately the first thing I notice about 5'3 people, but not 5'6 people) to just normal (going from bellow the 1st percentile to 5th-8th percentile), must be a very positive and life changing experience.
He seemed extremely happy and seemed keen on doing tibias sometime in the next few years.
August 16th-
ZZZquill works how my LL friend advertised. Basically falling asleep is just about as difficult and you will still wake up fairly frequently- however unlike usually you will be able to pass out again. This led to a very weird night of me passing out and waking up at least 20 times. After 7ish hours I felt groggy and like crap but forced myself to go get breakfast at which point I felt a bit better. So this'll help me but not the end all be all for awesome sleep.
Two groups of LL'ers are gone so it seems really quiet here. I'm very happy for them though, they seemed very satisfied and because they had a good support system seemed to have a good journey, and were thankful for no complications.
I know theres been progress with my issues etc. but the physchological aspect of this is still very taxing- The big issues mostly defeated so I'm back to having just a general dull feeling of not being well-aches, stomach, not actually being able to focus on anything, poor sleep. Getting texts from people who think I'm off having a blast as I'm lying around in discomfort sort of sucks, and every day when I wheelchair to get food(the only way to carry it) I just feel so in the way of everyone in/around the elevator/trying to get food. I know this all sounds super petty, but it all combines and mixes together into a very real negative feeling that I think people should be aware of. I am closing in on that one month mark which does feel good, but I really need to see another X-Ray to get me going again. I think I have one sometime early next week though which is good assuming every things working fine(if the pain and tightness are anything to go by, it is).
Interesting thoughts, regarding the negative feelings. As a non-LLer, I never think about those things. Also this is just a pure guess, but because you are more accomplished (have your business etc.), you are probably not used to being helpless.
Right now, keep up with the program, one month has passed the rest will pass as well.
I have a question regarding the ITB release, did Dr. Paley said that you needed ITB release because without that surgery, the nail was at risk for bending during lengthening? Did you says that ITB surgery was absolutely necessary or it is just helpful
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