My LL Journey - Tibia LON - Dr. Pradip Sharma

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Sharing my latest X-rays -

https://imgur.com/EbNB9Vg
https://imgur.com/ISxKYbq

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Day 60: Back after a long time. Time flew fast, thanks to the hectic office work that I picked from this week on. Finally it is the weekend, the same old excitement that u get after a week long hustle, guess some feelings neva die. Today I decided to end the day with a bottle of beer. As I gulp my drink and sail in high spirits, my nostalgia kicks in and brings me a bunch of old memories to ponder over. I am missing my life, family and friends, can't wait to get back to my normal.

This journey is different and unique in its own way. In LL you are served in a platter, an assortment of mental, financial and physical (trust me this is the least important) pain, I don't think there is any other pain left for you to test after this. TBH if you make out normal without troubles this journey is truly a gem of experience, it has a potential to transform you to a much better personality (if u r in ur right mind). It makes you mentally stronger and balanced, and introduces you to the real you, the one that is deep inside.
That's my two cents on life with LL. Wish all u beautiful people a good life and time with you near and dear ones. Take care. Will write an update on my condition in the next post. Good Night. Cheers!"

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Day 61: As I come closer to achieving my target, I can feel the dysphoria leaving my mind already. I was told that height alone can't bring success in life (there are taller people who are not successful) but yes, if you can use it smartly in a combination with your other skills it can certainly add on to your strength and improve the outcome of your life. Its been a while, height is not something that I care about anymore but yeah there is definitely some excitement about going out and living a new life but I know there is still a lot of time left before I can do that all perfectly.

A quick update about the condition as promised - legs are normal as per Harry, pain is there but on and off mainly due to the pin tearing. I don't have any ballerina yet but some tightness definitely, especially in the right foot. Overall, I have become a lot weaker, I can feel weight loss, I can see my collar bones popping out, my thighs have lost too much muscle and hanging loose. According to Harry, this will get better as I start walking and the muscles will recover and regain tightness. I am still lengthening at 0.75mm per day, pulling each turn at about 8 hour interval. I believe this is good as it gives enough time for the soft tissues to heal, relax and stretch before the next turn.

As mentioned earlier, I have started doing my office work which was an issue before, it takes my mind off the discomfort and other things, however the bad posture has started giving me back pain, especially around the upper hip area. This is due to continuously sitting in one posture for long hours.

My PT is progressing well, I have limited my walking to once or twice a week in order to avoid pressure on the pins but I do make sure to stand on a daily basis. I hope to see things get better in the near term.

Another thing - Hotel staff has gone very lazy and keeps you waiting for small tasks, may be its due to the rising corona cases and lockdowns that they have cut down there staff. Not liking food for sometime now. This is all for now can't think of anything else to put down. Until my next post, have a good time and take care. Peace.

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Do u see yourself returning to normal walking and activities besides sports after 6 months?

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Quote from: Jason125 on April 12, 2021, 11:24:59 AMDo u see yourself returning to normal walking and activities besides sports after 6 months?

I hope so. Currently, I am in frames, in the distraction phase and bed ridden for most of the time. 

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   Hope you get well soon. So far how are your feelings about you having done this surgery? Do you regret it from the mobility loss? Or you are confident of the future. This carries so much uncertainty Im scared to get it yet motivated.

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Quote from: Jason125 on April 13, 2021, 07:00:51 AM   Hope you get well soon. So far how are your feelings about you having done this surgery? Do you regret it from the mobility loss? Or you are confident of the future. This carries so much uncertainty Im scared to get it yet motivated.

I feel satisfied about having done this procedure, as I had it in mind for a long time. At least I'll now move on form thinking about height at all the time.

Mobility loss is temporary and part of the procedure. It is not something which came to me as a surprise. It is a known fact to anyone who calls for this life altering procedure.

About future and confidence - I'd like to think positive but it remains to be seen.

About uncertainty - the element of uncertainty is always going to be present in almost anything and everything you do in life, let alone the LL. However, with proper information and research you can certainly work your way to minimize the probability of mishaps. I did a lot of research prior to entering this ordeal. I met a lot of patients and was in touch with most of them for almost an year. While some had stopped responding, I was so desperate and stubborn that didn't stop chasing them, I did a lot of cross questioning with the doctor, made a list of all viable options, spent nights filtering internet for the relevant info, I made an excel on active patients journey (measuring their time in frames to start walking). Also I can't finish thanking this forum which was extremely helpful and central to my research, and eventually the decision to do LL.

It is obvious to get scared (I was too, no denying) given the nature of this surgery. But based on my research, I am confident about my team and the potential outcome. However, I will be more happy and confident once I get out of these frames and start realizing those mini goals (like walking, jogging, etc.) towards the conclusion of this journey.

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Thanks for replying. Will likely get LON for its relatively low price compared to internals. How long will you need to be in frames before you can get it removed?

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Quote from: Jason125 on April 14, 2021, 02:47:41 PMThanks for replying. Will likely get LON for its relatively low price compared to internals. How long will you need to be in frames before you can get it removed?

LON is good, its classic and much cheaper. In LON they use traditional titanium rods which find application in a variety of orthopedic procedures, unlike Stryde which is only for LL (I think). Also given the controversies around internal nails these days, LON is the best option there is for LL. The only problem with LON is the discomfort due to being in frames.

The time spent in frames depends on your goal. For 5cm, its around 2 months.

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Right. How's everything going for you this week Keynes?