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Posted on Jan 31, 2019, 7:51 am
#11

Hey Jcayabo.

I'm dr kulesh patient,  have lengthened near 5 cm,  and my left foot Is on fire  I have taken 3 pain killers and yet feeling so much pain

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Posted on Jan 31, 2019, 10:58 am
#12

Which painkillers are you taking? If it's painful around your ankle, just stop lengthening for awhile and recover. It's so much harder once you pass 5cm

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Posted on Jan 31, 2019, 4:31 pm
#13

You write that you are consolidating.

What lengthening procedure did you undergo?

When (what date) did you complete distraction/correction?

Are you experiencing any other unusual or new symptoms other than what you perceive to be nerve pain in your right leg?

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Posted on Jan 31, 2019, 6:14 pm
#14

Quote from: California2 on January 31, 2019, 04:31:38 PMYou write that you are consolidating.

What lengthening procedure did you undergo?

When (what date) did you complete distraction/correction?

Are you experiencing any other unusual or new symptoms other than what you perceive to be nerve pain in your right leg?


External Ilivarov, 7 days ago.

No other symptoms.

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Posted on Jan 31, 2019, 6:48 pm
#15

I had the same problem . Nerve pain was the worst of all. But lyrics helped me a lot. But it takes time until it works maybe 3-4 days . Because of the nerve pain my lengthening was much longer. Every time I had the nerve paint I stopped clicking immediately. I mean clicking in the beginning was so painful anyway but with nerve pain not possible. Couldn’t turn my leg even 20° When I is nerve pain. I remember that dr Betz told me that he’s patient never had damage. Also me and I was really fighting with the nerve pain a lot. After 3-4 cm When I lengthened more than 7 days without a rest it started again. I lengthened 8,3cm and I dont have any nerve damage 

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Posted on Jan 31, 2019, 9:47 pm
#16

Purely external?  Meaning no LON or LATN and you are still in frames for consolidation?

Even without knowing the above yet, let's think things through to see if you can rule out any of your concerns. 

Nerves can grow up to 1 mm per day and because you have not distracted or corrected in 7 days, it seems unlikely that you caused any new damage--right?

So, what changed?  You stopped distraction 7 days ago and your legs are beginning to heal.

Each time you distract you cause trauma which likely produces swelling.  Swelling can compress nerves and block transmission of the pain impulse. 

If you are doing purely external, some of the swelling caused by distraction is likely going away now that you are 7 days trauma-free.  If so, your legs are regaining feeling and coming back to life.  Unfortunately, this can also mean that you are beginning to feel pain that was previously blocked by swelling.  This is so even if you do not see swelling--it's there.

If so, your pain should begin to diminish over the next week as your legs begin to heal.

Naturally, if your pain increases or you experience significant swelling or redness, you should notify your MD again.

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Posted on Feb 1, 2019, 10:39 am
#17

Quote from: TemakiSushi on January 30, 2019, 02:49:06 PMMaybe its not really nerve pain
Could be inflammation caused by infection if ibuprofen worked but not Lyrica
You may need to check for sepsis and get antibiotics
Sepsis is scary.  Death rate is quite high with advanced sepsis
I really hope you get better soon

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3535127/


This probably would have been my next step, thanks for the info. I did a cycle of antibiotics as early as a month ago due to a cold/flu, so it couldn't have been advanced sepsis.


Quote from: California2 on January 31, 2019, 09:47:30 PMPurely external?  Meaning no LON or LATN and you are still in frames for consolidation?

Even without knowing the above yet, let's think things through to see if you can rule out any of your concerns. 

Nerves can grow up to 1 mm per day and because you have not distracted or corrected in 7 days, it seems unlikely that you caused any new damage--right?

So, what changed?  You stopped distraction 7 days ago and your legs are beginning to heal.

Each time you distract you cause trauma which likely produces swelling.  Swelling can compress nerves and block transmission of the pain impulse. 

If you are doing purely external, some of the swelling caused by distraction is likely going away now that you are 7 days trauma-free.  If so, your legs are regaining feeling and coming back to life.  Unfortunately, this can also mean that you are beginning to feel pain that was previously blocked by swelling.  This is so even if you do not see swelling--it's there.

If so, your pain should begin to diminish over the next week as your legs begin to heal.

Naturally, if your pain increases or you experience significant swelling or redness, you should notify your MD again.


Diary is here, detailing what pain I was experiencing previously and most recently. Full external with no nail.

http://www.limblengtheningforum.com/index.php?topic=9418.msg97760#msg97760

Literally nothing has changed, except for possibly walking less. This week without distraction has been a lazy one, purely coincidental. One day I was lying on my stomach doing ROM knee PT, which seems to be the last thing I remember, and pain was slowly building up to my knee and lower hamstrings. Then when the evening came it was impossible to sleep, so I took a diclophenac shot to get me through, it was brutal. Before the shot I could feel my leg pulsing uncontrollably at the speed of a heartbeat.

Anyway, was able to walk a little bit yesterday, and the pain hasn't blown up again. Legs are a bit weak but maybe because I've done nothing for days.

You may be right about strange pains coming up as I consolidate, I'll keep it in mind.

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Posted on Feb 1, 2019, 11:00 pm
#18

You may want to think twice about diclophenac -- it is an NSAID (non-steroidal anti-inflammatory drug) (like Ibuprofen).  NSAIDs are reported to retard bone regeneration.

An acetaminophen-based pain reliever might be better overall.

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Posted on Feb 2, 2019, 1:14 am
#19

I've been on it for 4 months and my callous is great.

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Posted on Feb 2, 2019, 1:24 am
#20

Please understand I am not trying to tell you what to do--we all must make own own choices.  I am merely sharing some generally accepted medical information for your consideration.

Some MDs from Asia and Europe do not accept this information about NSAIDs.  However, perhaps your callus would have been even better had you avoided NSAIDs?

Who knows?  Nonetheless, in my experience, better information generally leads to better decisions.

I accept the research about NSAIDs but even knowing it, I took massive doses of NSAIDs at one point because I had nothing else to fight the pain.

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