POD 19: Virtually pain free, other than some nuisances of soreness at night, zero pain. Muscles getting stronger everyday. I've also officially retired my Aide, as I no longer need her. Probably could have retired her a few days ago. Anyways, if anyone of you guys are planning to come to WPB for this and you need someone good, you can give her a ring (she let me post her # here). I made her into the ultimate aide, forced her to learn and watch all the stretches at the Paley institute to work with me at home, knows to get me breakfast before coming up stairs at Homewood suites, automatically checks and organizes all my PT schedule, has a car to take me on Saturdays for PT as well, does my laundry at her house, etc etc. Also when I leave here in a couple of months, I'll be donating my Stretching Table, my Foam roller, and all equipment I bought for this process to her so that the next person can benefit from it. Anyways, hope she helps someone else in the future! You can negotiate your rate with her -> Denise, 857-249-4442
in terms of ability to ambulate right now, if I didn't sway so much from having weak hip muscles (which I'm working on with lateral side leg raises) , I'd be able to walk completely normal (I think).
One thing I wished I knew before this surgery is, the most important muscle that will be hardest to recover are your hip muscles and your gluteus. Tons of squats and that one machine that females typically use where you sit and push your legs laterally, would have helped big time - I think. These are the muscle groups that recovers last. Almost everyone I've seen in their later stages (5cm+) still sway with their gait. The PT guys says that almost everyone gets their quadriceps and hamstrings back pretty fast, it's these two muscle groups that comes last.
New Stryde Diary 2018 - with Dr. Paley
Hi,may I know how much you pay for this STYDRE?
Nice diary. Do you think you can post a video of walking, physio etc?
POD 28: Haven't posted in awhile. Things are going pretty cruise control at this rate. I know a lot of you guys want videos, and I'll try to make one. One of the things that happens when you do this is that you get so busy with stretching and doing work online, or other things that you begin to neglect the forum. I try to keep in mind that I was once on the other side looking for as much info as possible, so for that reason I'll try my best to get a video up soon.
Here's an overall recap of everything thus far and my recommendations to date for everyone...if I had to do everything over again and knowing what I know now:
Pre-Op:
Get your Vitamin D levels checked, make sure its optimized, if not take Vitamin D Supplements
Work out your Gluteal muscles like you've never done before as you're gonna lose that big time
Work out your Hip ABductors. that will help with the swaying as you get your strength back
Stretch your hamstring to the max
Stretch your quads
Do daily "thomas stretch" (look it up)
ITB - not so much as they'll release it if you're doing at Paley
Pre book your room, homewood suites has been a great experience, book early and make sure they know you want a handicap accessible room, the folding seat to shower is money
Arrive 1-2 days early and fill your room up with TONS of water, Buy tylenol PM + regular tylenol extra strength for pain, Bandaids, Mederma, Aquaphore for wound care, buy those Icy Hot Sticker pads for pain, buy heating pads, buy cold packs (the one you can put in freezer and then place on areas of pain, buy snacks
Buy loose fitting clothes that you can easily put on and off
Buy this bed table (my favorite purchase as I can do everything from my bed):https://www.amazon.com/gp/product/B07FR4Z5GW/ -- nothing is more comfortable than working from your bed
Get an aide for at least 1 week, 24/7 and then you can determine more or less (i placed my aide's info in one of my threads above if you want)
buy a stretching strap to help you stretch
Buy Vitamin D, Magnesium, and Calcium Supplements to take daily
Buy meal replacement drinks (i did soylent)
Buy protein supplements and a magic bullet or equivalent (your muscles will be weak so you want to help it grow back fast asap)
Bring swiming trunks, you wanna do pool therapy as your cleared . it'll help you big time
Post Procedure (in hospital):
pack tons of extra snacks and food in your backpack, ask nurse if you can order uber eats or whatever, you're gonna be starving if not nauseous
try to move your legs early, your legs will essentially be non functional so try to use your hands to pull your legs and contract your knee, etc. Since i wasn't too flexible, i used to use my toe on one another to slowly slide my heels up on the bed until i can grab the back of my leg and bend my knees, i think this helped a lot with my current flexibility of my knee
Post procedure day 3-4 (in hotel)
take it easy, don't overdo your stretches and try to force yourself, or you gonna be in TONS of pain, do the exercises PT gives you but nothing more. Then starting week 3, you can start pushing yourself a bit more. Get in the hot tub and relax your muscles, the sooner the better, LA fitness has hot tubs, etc, I also stretch a lot in the hot tub, it relaxes your muscles big time and makes i easier to stretch
Many days you'll find yourself just laying around, just keep moving your legs and stretching, you'll get stronger and stronger. After week 2 it's not so much your surgery pain it's more muscle strain pain and usage pain as the muscles are weak and starts to come back to "life" if you will, just fight through it, it'll get better daily
Today, POD 28 I can say other than muscle soreness from working out and intense stretching I don't have pain, I still do take tylenol and ibuprofen but it's more for discomfort that feels like you worked out all day.
If you plan to work remotely, you realistically won't be able to until week 3 realistically. I started week 1 and 2 but i could only be maybe 20-30% efficient, week 3 is when you can go full mode again
In terms of ambulation, I get around with a cane now, at home i walk without a cane. My swaying due to week hip abductors is getting less and less everyday. Sometimes right after PT when they really stretch me out, I can walk for a good 20 mins and you won't notice any issues with me gait at all. For long distances I still use crutches as my gluteals again are super weak and get sore when I have to walk far.
Overall, I will tell you this has been a great experience. A lot of diaries on here seems to have a lot of complications, so I consider myself lucky. One thing I will tell you as well -- is that almost everyone I've met here is doing well. Today I saw someone 3 weeks post op visit, 8cm femurs, the guy walked around completely NORMAL - no gait issues at all. It was pretty incredible.
Quote from: superusercj1 on November 15, 2018, 11:59:34 PMPOD 28: Haven't posted in awhile. Things are going pretty cruise control at this rate. I know a lot of you guys want videos, and I'll try to make one. One of the things that happens when you do this is that you get so busy with stretching and doing work online, or other things that you begin to neglect the forum. I try to keep in mind that I was once on the other side looking for as much info as possible, so for that reason I'll try my best to get a video up soon.
Here's an overall recap of everything thus far and my recommendations to date for everyone...if I had to do everything over again and knowing what I know now:
Pre-Op:
Get your Vitamin D levels checked, make sure its optimized, if not take Vitamin D Supplements
Work out your Gluteal muscles like you've never done before as you're gonna lose that big time
Work out your Hip ABductors. that will help with the swaying as you get your strength back
Stretch your hamstring to the max
Stretch your quads
Do daily "thomas stretch" (look it up)
ITB - not so much as they'll release it if you're doing at Paley
Pre book your room, homewood suites has been a great experience, book early and make sure they know you want a handicap accessible room, the folding seat to shower is money
Arrive 1-2 days early and fill your room up with TONS of water, Buy tylenol PM + regular tylenol extra strength for pain, Bandaids, Mederma, Aquaphore for wound care, buy those Icy Hot Sticker pads for pain, buy heating pads, buy cold packs (the one you can put in freezer and then place on areas of pain, buy snacks
Buy loose fitting clothes that you can easily put on and off
Buy this bed table (my favorite purchase as I can do everything from my bed):https://www.amazon.com/gp/product/B07FR4Z5GW/ -- nothing is more comfortable than working from your bed
Get an aide for at least 1 week, 24/7 and then you can determine more or less (i placed my aide's info in one of my threads above if you want)
buy a stretching strap to help you stretch
Buy Vitamin D, Magnesium, and Calcium Supplements to take daily
Buy meal replacement drinks (i did soylent)
Buy protein supplements and a magic bullet or equivalent (your muscles will be weak so you want to help it grow back fast asap)
Bring swiming trunks, you wanna do pool therapy as your cleared . it'll help you big time
Post Procedure (in hospital):
pack tons of extra snacks and food in your backpack, ask nurse if you can order uber eats or whatever, you're gonna be starving if not nauseous
try to move your legs early, your legs will essentially be non functional so try to use your hands to pull your legs and contract your knee, etc. Since i wasn't too flexible, i used to use my toe on one another to slowly slide my heels up on the bed until i can grab the back of my leg and bend my knees, i think this helped a lot with my current flexibility of my knee
Post procedure day 3-4 (in hotel)
take it easy, don't overdo your stretches and try to force yourself, or you gonna be in TONS of pain, do the exercises PT gives you but nothing more. Then starting week 3, you can start pushing yourself a bit more. Get in the hot tub and relax your muscles, the sooner the better, LA fitness has hot tubs, etc, I also stretch a lot in the hot tub, it relaxes your muscles big time and makes i easier to stretch
Many days you'll find yourself just laying around, just keep moving your legs and stretching, you'll get stronger and stronger. After week 2 it's not so much your surgery pain it's more muscle strain pain and usage pain as the muscles are weak and starts to come back to "life" if you will, just fight through it, it'll get better daily
Today, POD 28 I can say other than muscle soreness from working out and intense stretching I don't have pain, I still do take tylenol and ibuprofen but it's more for discomfort that feels like you worked out all day.
If you plan to work remotely, you realistically won't be able to until week 3 realistically. I started week 1 and 2 but i could only be maybe 20-30% efficient, week 3 is when you can go full mode again
In terms of ambulation, I get around with a cane now, at home i walk without a cane. My swaying due to week hip abductors is getting less and less everyday. Sometimes right after PT when they really stretch me out, I can walk for a good 20 mins and you won't notice any issues with me gait at all. For long distances I still use crutches as my gluteals again are super weak and get sore when I have to walk far.
Overall, I will tell you this has been a great experience. A lot of diaries on here seems to have a lot of complications, so I consider myself lucky. One thing I will tell you as well -- is that almost everyone I've met here is doing well. Today I saw someone 3 weeks post op visit, 8cm femurs, the guy walked around completely NORMAL - no gait issues at all. It was pretty incredible.
good to see you are doing well. Yeah a video will be very nice for pts to see who are looking to get operated with the stryde nail.
also, the pt you saw that was 3 weeks post op that was walking normal, you said he had 8 cm femurs. but he couldnt have lengthened that fast in 3 weeks. So I am a little confused by that. Can you please elaborate on this.
thank you
Quote from: MirinHeight on November 16, 2018, 02:18:15 AMgood to see you are doing well. Yeah a video will be very nice for pts to see who are looking to get operated with the stryde nail.
also, the pt you saw that was 3 weeks post op that was walking normal, you said he had 8 cm femurs. but he couldnt have lengthened that fast in 3 weeks. So I am a little confused by that. Can you please elaborate on this.
thank you
Sorry I meant he finished his lengthening 3 weeks ago, still in consolidation phase but was walking normally.
Quote from: superusercj1 on November 16, 2018, 06:49:51 AMSorry I meant he finished his lengthening 3 weeks ago, still in consolidation phase but was walking normally.
that makes perfect sense, thanks for the update man!
Hi, Superuser
Very exciting diary! Wish your lenthening and recovery a super smooth one.
I will have a consultation next month, and will stay at homewood for 2 nights. Hopefully I have chance to talk with you.
I have some questions:
1. Could you share the link where you bought your stretch table?
2. Where did you find your helper?
Thank you
POD 39: currently at about 3.2cm. Just general tightness in my IT bands; hamstrings starting to get tight but nothing crazy yet. Sore by the end of the day due to muscle fatigue. Ambulation quality and gait continues to improve daily. I did get a little lazy stretching which I would advise NOT to do. Made my hamstrings go from 90 degrees to about 75 degrees. Going to work hard to get it back.. we’ll see. Diet wise I’m drinking a lot of protein to try to rebuild muscle. Everything is pretty cruise control right now. Getting 8-10 hrs of sleep every night on no medications.
You say it looks like everyone is fine ...
Do you believe or see someone who is not well? have problems?
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