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Posted on May 19, 2018, 11:34 pm
#31

I heard that Musicmaker was about to die too in one of the surgeries. She had a very bad reaction to anesthesia and blood loss. Other people developped blood clots. They are very dangerous. These patients didn't die but death is a risk you have to face with this surgery. Doctors who underplay risks should be discarded as options for LL.

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Posted on May 20, 2018, 4:57 pm
#32

Quote from: justice on May 19, 2018, 11:15:05 PMI know a girl in Barcelona also died (Achondroplasia).

There is also one guy who committed suicide.


Who committed suicide?

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Posted on May 20, 2018, 7:07 pm
#33

Quote from: IwannaBeTaller on May 20, 2018, 04:57:38 PMWho committed suicide?


Monegal patient. Many patients have posted about that.

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Posted on May 24, 2018, 9:59 am
#34

People who died after LL

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Posted on May 24, 2018, 11:10 am
#35

Quote from: iwontallow on May 20, 2018, 07:07:54 PMMonegal patient. Many patients have posted about that.


Can you link some of those postings?

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Posted on Jun 14, 2019, 12:01 am
#36

The amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?

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Posted on Jun 14, 2019, 12:24 am
#37

Stupid question,I know,and probably can't be answered, but how many people have CLL a year? Hopefully there's some statistics available.

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Posted on Jun 14, 2019, 6:34 pm
#38

Quote from: Hamiltonzac on June 14, 2019, 12:01:59 AMThe amount of idiots on this forum exceeds the idiots of the entire human population. 5 confirmed deaths? Did you confirm them in person or from your mothers basement?


https://onlinelibrary.wiley.com/doi/abs/10.1111/1556-4029.13769

https://www.ncbi.nlm.nih.gov/pubmed/6705403/?ncbi_mmode=std

https://www.allkpop.com/article/2018/06/musical-actor-trainee-suddenly-dies-after-limb-lengthening-surgery

https://www.vanguardngr.com/2016/01/they-let-my-daughter-die-as-i-watched-in-horror-mother-of-uniabuja-graduate/?amp

https://www.researchgate.net/publication/225890120_Strategia_nel_trattamento_chirurgico_degli_acondroplasici_tecniche_applicate_nel_Dipartimento_di_Ortopedia_e_Traumatologia_dell'Ospedale_di_Lecco

But hey, have fun calling others names, and thinking that crippling your legs for a year and surviving solely due to antibiotic abuse (in the case of externals) is just part and parcel of a normal cosmetic surgery.

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Posted on Jun 14, 2019, 6:54 pm
#39

So what's the safest method? I'm planning on getting LON but these articles scare me...

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Posted on Jun 14, 2019, 7:49 pm
#40

That's why you do research before jumping into this. If at all possible, only go for Stryde femurs. Read up on pulmonary embolism and fat embolism syndrome (FES) prevention (e.g. raised legs after surgery is a form of prevention), proper pin-site care, and osteomyelitis. Also, learn what is good callus growth based on the x-rays of the diaries posted here, so as to avoid malunion or preconsolidation. Do learn the association between the distraction rate and nerve damage, too.

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