Risks/Complications Of LL

That can happen quite fast, it doesn't really matter how much you lengthen, a bone infection can always happen and if the antibiotics won't work and the OP is not a success an amputation is the last possible way to save you from death. Also a deep vein thrombosis, which can cause a pulmonary embolism, can kill you, that happens quite often.

Yeah. I can just imagine something went wrong with the unfinished Mahboubian Diary on here Such a sleazy doctor.

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There has never been a case of amputation with ll. I don't know what you're talking about.

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I'm very scare word"amputation"

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Yes right. I'm aware anything is possible and there is a price to pay for altering the anatomy of your body. The way he said it made it sound like the chances were greater with him that's all.
What are the odds of losing a limb and death (from the mental anguish or severe pain)
and has they're been any reports of them from any ll patient or forum? Also, is it more likely this would happen on exceeding 5 cms or 7.5 cms or even below 5cms?
Chances of amputation or death is very slim to zero with a good surgeon. Deep infection, embolism and compartment syndrome can happen regardless of how much you lengthen, the latter two mostly happens after surgery. Non-union could be multifactorial and nerve damage could happen with higher lengthening amount. There have not been any reported amputation cases in forum patient diaries but I have read studies that exclude some patients from the study because their outcome was amputation. They don't state the reason why they were amputated but these patients did have pre-existing trauma before fixation and some resulted in osteomyelitis and non-union. Compartment syndrome, complex non-union and osteomyelitis resulting to amputation have been reported in studies.
Just remember that these are worst possible outcomes to LL, although rare with a good surgeon. Judging from some of the posts in this forum, it seems that some prospective LL'ers take this surgery very lightly and believe that they're immune to very serious complications. It's not a good idea to be overconfident. You must consider and accept the worst case scenario before LL. A forum member did experience a life threatening condition a day after his surgery and he immediately had to be shifted to the ICU unit, despite having surgery with the best. His experience was horrifying and seriously made me reconsider LL. It was an eye opener. I believe that majority of serious complications related to LL will not be reported in LL forums and only a very few percent of LL patients do have diaries. 
       

Chances of amputation or death is very slim to zero with a good surgeon. Deep infection, embolism and compartment syndrome can happen regardless of how much you lengthen, the latter two mostly happens after surgery. Non-union could be multifactorial and nerve damage could happen with higher lengthening amount. There have not been any reported amputation cases in forum patient diaries but I have read studies that exclude some patients from the study because their outcome was amputation. They don't state the reason why they were amputated but these patients did have pre-existing trauma before fixation and some resulted in osteomyelitis and non-union. Compartment syndrome, complex non-union and osteomyelitis resulting to amputation have been reported in studies.
Just remember that these are worst possible outcomes to LL, although rare with a good surgeon. Judging from some of the posts in this forum, it seems that some prospective LL'ers take this surgery very lightly and believe that they're immune to very serious complications. It's not a good idea to be overconfident. You must consider and accept the worst case scenario before LL. A forum member did experience a life threatening condition a day after his surgery and he immediately had to be shifted to the ICU unit, despite having surgery with the best. His experience was horrifying and seriously made me reconsider LL. It was an eye opener. I believe that majority of serious complications related to LL will not be reported in LL forums and only a very few percent of LL patients do have diaries. 
     

Yes I know. I knew that the outcome of losing life or a limb is very unlikely to happen but they're is still a chance. I think the fact that Dr. Birkholtz brought it up made me think that it happened under his supervision. I do not think I would lose a limb or die doing this operation but I do know that you are going to lose something with this surgery because no matter how successful the operation is you'll lose something like job promotion, personal relationships, lose of athletic ability etc. In my case, I think it's definitely worth going to various countries to get a good view of what it's like because all though I want this surgery more than almost anything, I know the thing that I want most could destroy me in the end even If I don't die or lose a limb.

Yes I know. I knew that the outcome of losing life or a limb is very unlikely to happen but they're is still a chance. I think the fact that Dr. Birkholtz brought it up made me think that it happened under his supervision. I do not think I would lose a limb or die doing this operation but I do know that you are going to lose something with this surgery because no matter how successful the operation is you'll lose something like job promotion, personal relationships, lose of athletic ability etc. In my case, I think it's definitely worth going to various countries to get a good view of what it's like because all though I want this surgery more than almost anything, I know the thing that I want most could destroy me in the end even If I don't die or lose a limb.
I remember the initial reaction in Dr.B's page when he mentioned amputation and was derided by several forum members. But as a prospective LL patient I would want to hear the worst case scenario before entering the operation theatre. Sometimes patients only like to hear what they want to hear and many doctors can take advantage of this, but a good doctor will always let their patients know about the worst possible outcome and not guarantee anything with a risky surgery.

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mehh if its amputation, Just end your own life fast easy. Not alot lost. But if you gain that new height. life begins. 50-50. Only the worthy survive

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mehh if its amputation, Just end your own life fast easy. Not alot lost. But if you gain that new height. life begins. 50-50. Only the worthy survive

Don't agree. Some doctors are driven by greed and not your safety. Build a strong repport with your doc and if you genuinely trust him/her, you'll probably be okay.

Chances of amputation or death is very slim to zero with a good surgeon. Deep infection, embolism and compartment syndrome can happen regardless of how much you lengthen, the latter two mostly happens after surgery. Non-union could be multifactorial and nerve damage could happen with higher lengthening amount. There have not been any reported amputation cases in forum patient diaries but I have read studies that exclude some patients from the study because their outcome was amputation. They don't state the reason why they were amputated but these patients did have pre-existing trauma before fixation and some resulted in osteomyelitis and non-union. Compartment syndrome, complex non-union and osteomyelitis resulting to amputation have been reported in studies.
Just remember that these are worst possible outcomes to LL, although rare with a good surgeon. Judging from some of the posts in this forum, it seems that some prospective LL'ers take this surgery very lightly and believe that they're immune to very serious complications. It's not a good idea to be overconfident. You must consider and accept the worst case scenario before LL. A forum member did experience a life threatening condition a day after his surgery and he immediately had to be shifted to the ICU unit, despite having surgery with the best. His experience was horrifying and seriously made me reconsider LL. It was an eye opener. I believe that majority of serious complications related to LL will not be reported in LL forums and only a very few percent of LL patients do have diaries. 
     
Very good comment. There's a clear bias in the forums not to show the complications. I have been attacked several times for writing about what i have seen at a very popular doctor. Nobody gets attacked for writing nice things. Even patients with diaries try to hide negative things (they are still under treatment , how could they dare openly criticise their doctors? ) . They rather stop writing or simply don't tell the truth.
I personally believe if i went to India my experience wouldn't have been worse than what has happened to me in Germany.

Chances of amputation or death is very slim to zero with a good surgeon. Deep infection, embolism and compartment syndrome can happen regardless of how much you lengthen, the latter two mostly happens after surgery. Non-union could be multifactorial and nerve damage could happen with higher lengthening amount. There have not been any reported amputation cases in forum patient diaries but I have read studies that exclude some patients from the study because their outcome was amputation. They don't state the reason why they were amputated but these patients did have pre-existing trauma before fixation and some resulted in osteomyelitis and non-union. Compartment syndrome, complex non-union and osteomyelitis resulting to amputation have been reported in studies.
Just remember that these are worst possible outcomes to LL, although rare with a good surgeon. Judging from some of the posts in this forum, it seems that some prospective LL'ers take this surgery very lightly and believe that they're immune to very serious complications. It's not a good idea to be overconfident. You must consider and accept the worst case scenario before LL. A forum member did experience a life threatening condition a day after his surgery and he immediately had to be shifted to the ICU unit, despite having surgery with the best. His experience was horrifying and seriously made me reconsider LL. It was an eye opener. I believe that majority of serious complications related to LL will not be reported in LL forums and only a very few percent of LL patients do have diaries. 
     

Questions rising shorty,
1. Why will non-union lead to amputation? Worst case let it stay unconsolidated, walk with crutches all your life.
2. Are there sudden "signs" of these dangers: nerve damage and compartment syndrome? So that you can stop lengthening in a timely fashion? It's not like you go to bed doing 1mm and the next morning it's over, right?
3. You seem to have a tone of someone prepared for this kind of stuff? Could you have really lived through if you faced a leg amputation? I don't understand how someone who feels so unhappy being short and considers a ridiculously crazy procedure can accept such an adverse outcome. No offense, just curious.

mehh if its amputation, Just end your own life fast easy. Not alot lost. But if you gain that new height. life begins. 50-50. Only the worthy survive
how do you suggest we end our own lives?

Very good comment. There's a clear bias in the forums not to show the complications. I have been attacked several times for writing about what i have seen at a very popular doctor. Nobody gets attacked for writing nice things. Even patients with diaries try to hide negative things (they are still under treatment , how could they dare openly criticise their doctors? ) . They rather stop writing or simply don't tell the truth.
I personally believe if i went to India my experience wouldn't have been worse than what has happened to me in Germany.

What happened to you?

Very good comment. There's a clear bias in the forums not to show the complications. I have been attacked several times for writing about what i have seen at a very popular doctor. Nobody gets attacked for writing nice things. Even patients with diaries try to hide negative things (they are still under treatment , how could they dare openly criticise their doctors? ) . They rather stop writing or simply don't tell the truth.
I personally believe if i went to India my experience wouldn't have been worse than what has happened to me in Germany.
I'm very sorry to  hear that
Get well soon

Very good comment. There's a clear bias in the forums not to show the complications. I have been attacked several times for writing about what i have seen at a very popular doctor. Nobody gets attacked for writing nice things. Even patients with diaries try to hide negative things (they are still under treatment , how could they dare openly criticise their doctors? ) . They rather stop writing or simply don't tell the truth.
I personally believe if i went to India my experience wouldn't have been worse than what has happened to me in Germany.
Unfortunately many people do dismiss things they don't want to hear. I'm really sorry for what you have gone through and I hope you do recover soon.

Quote from: SAD on December 07, 2014, 12:12:36 PM

Yes, there are sudden signs of compartment syndrome and embolism
I went through those links, but some aspects of limb lengthening are not particularly addressed.
What I think now is that the "risky" part is during the surgery. After the surgery once you start lengthening, the worst outcomes can be poor recovery and non-union. I was wondering if everyday is a dread whilst lengthening, because nerve damage and contractures can happen even while lengthening as you indicated.

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I went through those links, but some aspects of limb lengthening are not particularly addressed.
Some of the links only describe and address the condition itself. They are from general medical websites not specialising in LL but provide very helpful information on conditions that can manifest after LL surgery.

Quote from: SAD on December 07, 2014, 05:22:49 PM

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How was your mentality whilst lengthening?
Were you scared all the time about such possibilities like you probably were scared just before surgery?

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How was your mentality whilst lengthening?
Were you scared all the time about such possibilities like you probably were scared just before surgery?
Pre-op nerves was the worst. The week before LL was very emotional and my flight to SA was possibly the worst flight ever because of the constant thought of whether I would make it through LL. After my consultation with Dr.B I looked forward to my surgery and just wanted to get over with it. I was really excited when they took me to the operation theatre the next day. I felt very euphoric and relieved right after surgery. During lengthening I was constantly occupied with the fear of nail failure and failing to reach my target. Other complications like nerve damage was the least of my concern because I paid very close attention to how my legs responded during lengthening. Fortunately I did not have any complications like nerve pain and contractures. The social isolation and the monotonous days during lengthening did have a toll on me but I kept my self busy with physio, cooking, reading study materials, TV, music etc..